Mary Without Sound, what type of specialist did they send you to? I've had two separate orthopedists tell me they think I have EDS (without me bringing it up) but both of them told me they can't make that diagnosis. I asked them who does, and they both said they don't know- they only know about it because it affects orthopedic surgery. I went to my primary care, and he said he doesn't know and doesn't think it's a problem even if I have it (now looking for another doctor).
I'm actually glad you posted this. I've been wondering if I have this myself. I've had problems with my joints for a long time. And after two separate but recent injuries that required surgery, I think it's something I need to ask my doctor.
I'm sorry so many people have friends and family members with this disorder, but I'm pleased with the AWARENESS. I was diagnosed 2 years ago in a Buffalo Wild Wings. No one had ever diagnosed me, my dad, my brother or my sister.
Post by karmasabiotch on May 1, 2013 16:05:52 GMT -5
I'm wondering about my neice. She's oddly flexable and can lick her elbow. She also has a few of the other symptoms in the article I just read. She has some other unexplained medical issues that could be linked to the dx. I have a connective tissue disease so there could be a genetic connection.
I'm aware now and will be passing the info along to my sister.
Mary Without Sound, what type of specialist did they send you to? I've had two separate orthopedists tell me they think I have EDS (without me bringing it up) but both of them told me they can't make that diagnosis. I asked them who does, and they both said they don't know- they only know about it because it affects orthopedic surgery. I went to my primary care, and he said he doesn't know and doesn't think it's a problem even if I have it (now looking for another doctor).
sorry I missed you yesterday. Here is a link to the physician's list on the Ehlers-Danlos National Foundation. The doctor who made my diagnosis is on here, although I didn't know that until just now. I was referred to him by my surgeon.
That's how all my ML GTGs start, so ether or booze, your call.
We do genotyping and gene expression work in my lab and my boss is salivating over the fact that I have an additional 3 living family members with the disorder. I'm pretty sure he's gonna show up at a family party with spit cups.
Mary Without Sound, what type of specialist did they send you to? I've had two separate orthopedists tell me they think I have EDS (without me bringing it up) but both of them told me they can't make that diagnosis. I asked them who does, and they both said they don't know- they only know about it because it affects orthopedic surgery. I went to my primary care, and he said he doesn't know and doesn't think it's a problem even if I have it (now looking for another doctor).
sorry I missed you yesterday. Here is a link to the physician's list on the Ehlers-Danlos National Foundation. The doctor who made my diagnosis is on here, although I didn't know that until just now. I was referred to him by my surgeon.