From FB; WTF does this even mean? lol

[Deleted]

She wrote this whole crazy ass diatribe, and then had to comment on it, too.  Ermmm, uh, what?



A dear woman I know who is an incredible writer....wrote today and it spoke to me and my heart. Her words were expressing the pain she feels when ppl treat her as though she is invisible. ..because they have their own life and my life with these diseases have become far too complex and therefore we become invisible. Invisible to blood family...to close friends of many years...church goers....and those who look away bc they can even bear to understand why a young lady like me is having duch a hard time....I again have become invisible. When your not part of the mainstream culture your pushes out and denied equality. And when you don't come with an obvious clear answer you see right thru me like a glass window. Sorry are the words yoi say....but how sorry are you really when I'm invisible to you. NOBODY could walk this tight rope and balance like I...you would fall or learn what its like to b invisible.....I'm a humam who deserves the same rights as the rest of this human race. So before you judge me....ask yourself if your treating me respectively or do u even see me?
Like · · Share · 15 minutes ago via mobile ·
 likes this.

***:   No you don't see me....turn your head and continue to consume yourself in your own issues and false idols...or better yet your materials...then u don't even have to think about me. This is for my blood sisters....sister in laws...distant cousins and more. Dont say sorry anymore...do something maybe a small card fir a few griceries....or clothes for the kids.....or just acknowledged now and then
8 minutes ago via mobile · Like

[adhdfashion]

It means someone is on drugs?

[Mrs.Rad888]

It kind of reminds me of @cse1960 and her cousin with the Strokeaversary.
I'm guessing it's someone with a health condition who doesn't feel she's getting enough attention. Is this person normally a drama queen?

[Deleted]

Nov 4, 2013 23:42:40 GMT -5 Mrs.Rad888 said:

It kind of reminds me of @cse1960 and her cousin with the Strokeaversary.
I'm guessing it's someone with a health condition who doesn't feel she's getting enough attention. Is this person normally a drama queen?

She is like, the Queen of the drama queens.  

[kirra]

I have no idea who this lady is, but I get it.

Young people are "supposed" to be healthy. We aren't supposed to have health problems, and we sure as hell aren't supposed to have chronic health problems that will never get better because there is no treatment. Our society tends to think of illness in terms of you treat it and you either get better, or you die. There isn't a good fit for chronic but rather stable illness, especially when there is nothing you can do. And when the health problem is a rare disease... Well, it makes things harder.

It's a combination of becoming invisible and being seen for all the wrong reasons. Invisible, because my problems aren't easy, and let's just all ignore them. Too visible, because all some people see is the things wrong with me, and the real me is lost.

And it's worse at church. There's an underlying theme of if you pray the right way, you'll be healed. Add you should have peace and joy in all circumstances. And you need to correct sin in your life so that you find healing.

Thank goodness I've never posted a Facebook rant, but you know what? I get it. Some days it's just too much.

[Deleted]

Wow, that's quite the pity party.

[kirra]

Nov 4, 2013 23:44:10 GMT -5 @jezebel said:

Nov 4, 2013 23:42:40 GMT -5 Mrs.Rad888 said:

It kind of reminds me of @cse1960 and her cousin with the Strokeaversary.
I'm guessing it's someone with a health condition who doesn't feel she's getting enough attention. Is this person normally a drama queen?

She is like, the Queen of the drama queens.  

Oh. Well, that maybe changes my answer. Some people just do it for the drama.

[Deleted]

I really like how at the end there's a little guilt trip for some money.

[Deleted]

Nov 4, 2013 23:48:05 GMT -5 killercupcake said:

So... she's feeling invisible?

I'm terrible at reflecting content and feelings.

DO U EVEN SEE ME....?

[Ohhmm(bligo)]

Sometimes it's so loud she thinks the gods can hear her pain.

[Ohhmm(bligo)]

If you replied "Hmm?", it would be the most awful-person thing ever to do.

And I'm in pain so I would cackle with glee.

[fuckyourcouch]

[Ohhmm(bligo)]

Nov 5, 2013 0:27:23 GMT -5 fuckyourcouch said:

I am crying laughing.  I'm never going to be able to look at my sister with a straight face again.

[joshlyman]

I have never, and will never, understand posting shit like this on FB. If she is feeling invisible, how the heck does this solve anything? If I was her friend or family member, she would become a lot more invisible since I wouldn't be able to look at her without rolling my eyes.

What happened to talking to people? Or even emailing them and letting them know what is wrong? Is it the fact that there is less chance of being a giant martyr that way?

Yes, I am very get off my lawn about this lol

[Deleted]

Nov 4, 2013 23:45:44 GMT -5 kirra said:

I have no idea who this lady is, but I get it.

Young people are "supposed" to be healthy. We aren't supposed to have health problems, and we sure as hell aren't supposed to have chronic health problems that will never get better because there is no treatment. Our society tends to think of illness in terms of you treat it and you either get better, or you die. There isn't a good fit for chronic but rather stable illness, especially when there is nothing you can do. And when the health problem is a rare disease... Well, it makes things harder.

It's a combination of becoming invisible and being seen for all the wrong reasons. Invisible, because my problems aren't easy, and let's just all ignore them. Too visible, because all some people see is the things wrong with me, and the real me is lost.

And it's worse at church. There's an underlying theme of if you pray the right way, you'll be healed. Add you should have peace and joy in all circumstances. And you need to correct sin in your life so that you find healing.

Thank goodness I've never posted a Facebook rant, but you know what? I get it. Some days it's just too much.

I hear you. I get what this lady might have been trying to say, but I feel like putting it all out there on fb is just a bit over dramatic. It won't get her the attention she says she wants, but instead will just basically be shit stirring.

[hisno1girl]

The over use of ellipses would make me DEFRIEND her automatically. I have no tolerance for that foolishness.

[themoneytree]

If this were an unusual type of thing for this person to post then I would be really worried about her. It sounds like she's struggling and I can understand where she is coming from.

[Deleted]

It's not unusual for her. I've known her since high school, so for nearly 20 years. She posts something similarly dramatic every few months.

She's quite the vague-booker, but I gather she has fibromyalgia and chronic fatigue syndrome. Or something.

[wambam]

Maybe if she didn't vaguebook, people would know what's going on and wouldn't treat her like she's invisible anymore.

Also, asking for stuff in the comments is awful. Awful.

[saucyc]

I can't get past all of the ...'s

[cleo29]

What are people supposed to say to her?

[kirra]

Nov 5, 2013 7:07:36 GMT -5 wambam said:

Maybe if she didn't vaguebook, people would know what's going on and wouldn't treat her like she's invisible anymore.

Also, asking for stuff in the comments is awful. Awful.

Probably not. I'm sure the vague booking is contributing, as is her reputation for being a drama queen, but being treated as invisible would probably happen anyway. 

I really, really hate posts like this, because they paint a bad picture of people with chronic illnesses. I doubt I'll ever make a Facebook post about my problems, but if I do, it will be literate, it will not be about me as an individual, and it will be during the awareness month for my disorder and phrased as such. Because too many people aren't diagnosed because they doctors aren't aware of "rare" disorders. 

[kirra]

Nov 5, 2013 9:08:19 GMT -5 cleo29 said:

What are people supposed to say to her?

Coming from someone who's been there- just listen. Don't tell me that I'll get better. I won't. Don't tell me that if I just have faith, I'll be healed. Don't tell me that I was chosen for this because I'm strong enough to deal with it, and they wouldn't be. Guess what? You deal with what you have to. It has nothing to do I with being strong or not. 

Do treat me as a person. There are no words that would make this better, and I know that. 

Do listen when I need to vent. 

On the days where I want to pretend my illness doesn't exist, let me. 

I realize it's a lot to ask, but I don't know where I am most days. I'm trying to figure out all these damn problems and live a fulfilling life anyway. 

Really, just listen. Remember that I'm a person, not just a disease, but that I am struggling with all these problems, and they are a part of my life. Not all of it, but part of it. 

Edited for typo, and to add that this is obviously a soapbox issue for me, and I'm not taking anyone's responses as a reaction to me. They're obviously reactions to an idiotic Facebook message that makes no sense. 

[cleo29]

Nov 5, 2013 9:41:58 GMT -5 kirra said:

Nov 5, 2013 9:08:19 GMT -5 cleo29 said:

What are people supposed to say to her?

Coming from someone who's been there- just listen. Don't tell me that I'll get better. I won't. Don't tell me that if I just have faith, I'll be healed. Don't tell me that I was chosen for this because I'm strong enough to deal with it, and they wouldn't be. Guess what? You deal with what you have to. It has nothing to do I with being strong or not. 

Do treat me as a person. There are no words that would make this better, and I know that. 

Do listen when I need to vent. 

On the days where I want to pretend my illness doesn't exist, let me. 

I realize it's a lot to ask, but I don't know where I am most days. I'm trying to figure out all these damn problems and live a fulfilling life anyway. 

Really, just listen. Remember that I'm a person, not just a disease, but that I am struggling with all these problems, and they are a part of my life. Not all of it, but part of it. 

Edited for typo, and to add that this is obviously a soapbox issue for me, and I'm not taking anyone's responses as a reaction to me. They're obviously reactions to an idiotic Facebook message that makes no sense. 

I would do all of those things, but in regards to the FB woman, it sounded like she meant the general public. What more does she want?

[wrathofkuus]

If she'd said what kirra said, she'd have made a lot of sense.

[yourmother]

What kind of responses is she getting to her post?

[Gato]

kirra, you sound awesome, and whatever comments you'd like to make, I would listen to.

I have a feeling that this woman's friends and family would avoid her even if she weren't sick.  The guilting, the personal attacks, the asking for stuff. She sounds like a miserable person just in general.

[shostakovich]

"I'm feeling really invisible, you guys. But you know what would make me feel LESS invisible? Groceries. And cash. TIA."

[kirra]

Thanks everyone for being nice even though I went off on a bitchy and emotional rant

I'm going to blame being bitchy and emotional on being sick. I just got home from the doctor. I have the flu. I never would have thought I would be happy to hear I have the flu, but it goes away, and it gets better. It's screwing with my autonomic nervous system because my body sucks, but once I get over the flu, that should go back to my normal. So thank goodness it's the flu, and not a sudden turn for the worse. And I probably have a milder case than I would have, because I got the flu shot in September.

I completely understand all of your responses to her odd post. It makes me embarrassed for her, and it makes me angry, because people don't remember literate posts. They remember dumb shit (I do too). So when they think about whatever chronic illness she has or might not have, her face and her rants are what they'll remember.

I just think that there were some valid emotional points in there, because they are things that I've felt. She just expressed them in a highly inappropriate and confusing manner. And rather offensive, actually, when you consider the whole asking for money part and all the people she called out.

[Deleted]

Nov 5, 2013 12:33:02 GMT -5 yourmother said:

What kind of responses is she getting to her post?

None at all. Radio silence.