I'm so sorry to read this. Having worked with patients with ALS, I've seen how devastating it is. I can't imagine what you and your family are going through. :-(
I'm so sorry you're going through this hamster. My DH's grandfather also had ALS, and I know how hard it was on his dad as well. The best thing you can do is try as hard as you can to be strong for your DH and let your FIL know how much you love him too. No one expects more than that. Big hugs.
Post by lurknomore on Sept 21, 2014 17:06:30 GMT -5
I'm sorry you and your DH are going through this. There are lots of us here right now dealing with elder care issues. So feel free to vent and share your struggles. It's not fun. At all. {{hugs}}
hamster, hugs to you and to mr. Hamster and your FIL. If there is anything Internet strangers can do let me know. I am so, so sorry that your family...or any family...has to face this devastating disease.
ALSA.org has a page called products to make daily life easier and a free download with ideas of how to simplify certain tasks that become more difficult (including getting out of bed).
Maybe making a photo book of all the fun recent things they've done and things they do over the next year would be therapeutic? Or maybe you could get a really nice family photo shoot really soon so you guys have some great shots of the family?
I am so very sorry your family is going through this.
Post by crashgizmo on Sept 21, 2014 17:25:54 GMT -5
I am so sorry for you, your H, and family. Neurological diseases are just awful and so hard for everyone. Please feel free to vent here anytime, and know that we are all here for you.
Hamster, please feel free to use us to vent, cry, freak out, etc. I am so sorry about your FIL. This has got to be hard on your whole family. {{{hugs}}}
I got teary reading this. So sorry, I can't even imagine how rough that is.
I went to Quaker school most of my life, and in situations like this I was taught to "hold people in the light." So here's an internet stranger holding you and your family in the light during this time.