LouisaMay and anyone else re: infant hypotonia

[Deleted]

Maybe Marmee will work

[Marmee]

I do vaguely remember her hunched over and core weakness was one of her main issues.

At birth she was a little like a rag doll & was my 3rd child so I noticed but wasn't really alarmed. By 5-6mo I had the Ped mention it to me (she slide through hands) but was of the "wait & see" mentality. I'm not (lol) & just happen to have my sister who is a PT in town & had her look at DD3. My sister doesn't specialize in kids but she said she definitely had low tone. I remember around the same time she learned to sit up and did so very oddly...basically she'd swing her legs around (did the splits!) and then push up from the middle. She was definitely hyper flexible (another sign). I called the Ped & told her what my sister said & she referred me to EI, no questions. She didn't get the EI eval until around 9mo and definitely qualified for PT (she also had sensory issues & wouldn't bare weight on her feet so she got OT too). Once I learned it was OK to force her to do things she progressed quickly. She walked by 15mo & "graduated" out of EI by 18mo. She's fine now though she's still flexible and tires quicker than my other 2 at that age. No underlying cause was ever found (& I had them test her). Also my DH seems to have her feet sensory issue & who knows if he is lower tone but I wouldn't be surprised...she looks & acts just like him. I think a lot is just genetics. I think even without PT, she'd have been fine but it'd have been a lot slower for her gross motor development. Sorry if repeated anything is already told you. It doesn't hurt to wait a bit but if your the action type like me (I worry less if I'm being proactive) then I'd pursue testing down the line if need be.

[Marmee]

Oct 1, 2014 20:10:01 GMT -5 @tambcat said:

Thank you! That's the one I was going to pick, but I wasn't sure.

I'm both because apparently I'm a moron & have 2 logins (1 on iPad, one on my phone) & just realized it.

[CloudBee]

DS was in PT for months for torticollis. The pedi sent us, not EI. Can you call your pedi and ask them to write the prescription for an evaluation? I wouldn't want to wait much longer, because if she does need PT, they will give you a ton of suggestions on things you can do at home on a daily basis.

EI can be slow going. I called last week after our original inquiry got lost, and now have to wait another month for DS's evaluation. We're concerned about his speech and hearing. The pedi isn't concerned yet, but his ENT told us to stay on top of it. (And he has yet to pass a hearing exam since leaving the hospital.)

Good luck. It's frustrating, but I've found you usually need to keep nudging to get these appointments on the books.

[CloudBee]

I hear you on the lifetime max for PT visits, but I would consider risking a single visit if EI keeps dragging this out.

For us, we didn't have a max, but were only approved for X amount unless we had a repeat evaluation. Evaluations (he had 2 of the course of treatment) didn't count as a true PT visit. It never got deducted from our allowable visits. I think this is standard practice.

Good luck.