CD3 Bloodwork & CF testing ???

[cgpm]

So I now have a referral to an RE and we are starting testing.  I'm not sure how I feel about having this ball rolling, but I'm going to go with it until my gut tells me to stop.  

Anyway, we are now on cycle 15.  I have only one ovary (I lost my other to a very large cyst) and I now have several cysts on my remaining ovary.  We have been monitoring those since the spring.  My Dr. now wants the RE's opinion of draining them, in addition to regular testing for infertility.  This is a total catch-22 because the cysts could be causing problems, but having them drained can also affect fertility.  Ugh.

My real question is that today I'm going in for CD3 blood work and my Dr. wanted to know if I wanted CF testing done.  She said I can think about it and have it done any time, which I said that yes, I wanted to think on it.  I know what CF and that you can be a carrier, etc., but she also said it can have other implications with insurance and the like.  Does anyone know anything about this or has anyone made the choice to have it done or not have it done?  Obviously I need to talk to DH, but I was caught off guard when she brought it up.

TIA!

[Mushe]

That's an interesting take from your doctor. CF testing was one of the standard tests my old OB practice did when I was pregnant with #1. Unfortunately, mine came back that I AM a carrier, so getting MH tested and waiting for results when I was already 12+ weeks pregnant was pretty awful. It's not like you'd be surprised and actually diagnosed as having CF without already knowing, so I don't really see how insurance comes in at all, especially post-ACA, since companies can't use an existing medical condition against you.

[aprilsails]

I'm in Canada so I don't know about any possible insurance complications, but I had CF testing done a year ago before we were thinking of having children.

My cousin is a carrier of a non-standard CF gene mutation and 1 of his 4 children has CF. As a result, everyone in my generation has to undergo the testing, which takes 3 months to come back due to the fact that my cousin's gene mutation is not on the standard panel (he was previously told he was not a carrier - he is!)

I came back negative which is a load off our shoulders. I think it was worth the extra 20 minutes for the blood draw.

[boiler717]

We had it done. Well, I was tested and it was negative so DH didn't have to be tested. I had a friend with Mushe's experience and it was pretty awful so I'm glad to know now.

[King26]

We had it tested as well. Well, like boiler717 I was tested and since I was negative, DH didn't have to get tested. I'm glad we did it as one of thee first tests at the RE so we would know.

[cgpm]

I just wish they would've asked me about it ahead of time instead of putting me on the spot the day of. I felt like an idiot being like, "uh, well, I don't know."

[pooh8402]

My RE didn't even ask me, she ordered the CF testing. It's appropriate in our case since my sister is a carrier (discovered during her IF workup). So BIL was tested and he is negative. I came back negative too, so my H wasn't tested.

[jessnpaul]

I had all the genetic testing (CF included) done when I was pregnant with B. It's pretty standard from what I know!