Wanted to give you ladies a quick update since yesterday provided some answers.
First, she ha her procedure again. They drained 9.5 liters which was nearly double from last time in a shorter interval. She is feeling much better now but that's obviously not good news.
The good news...her appt went really well. Her new doctor and everyone there were like "why are you not at the transplant center!?! You are way too young (57) and a good candidate". She goes to another doctor (this one is leaving for another job) in 1-2 weeks, needs another procedure done (she's had it before), and will get the transplant process started soon.
You guys I honestly didn't know if this was a possibility (I have been pushing her for years to push for a transplant but she always pushed back because all her other doctors said she wasn't a good candidate). I really really hope and pray that she gets one. That's her only chance of being around longer. She seemed so hopeful and optimistic after that appointment yesterday- it was nice to see.
We also went to Panera and C was good! I have learned that the trick is to feed him...if he's nursing he can't cry and I can eat and then he's happy afterwards. All in all a very good day'
I was wondering if she would be a candidate for a transplant. (I never thought about it until recently when I had a patient that had a Lung transplant.)
I hope this works out for her and she had more time with you and family.
Post by luv2rn4fun on Feb 18, 2015 10:23:16 GMT -5
Thank you ladies! Your thoughts and prayers mean more than you know! Truly appreciated! I really really hope she gets on the list fast and is one of the lucky ones that gets a transplant. She has had an attitude of not feeling hopeful about a transplant all the way til yesterday...the nurse said she should be at the transplant center and she made a comment along the lines of "so many people needing a liver and not enough to go around" and the nurse said something like "yeah, but you're young, otherwise healthy, and don't drink". I think it really made her realize for the first time that this just might happen...praying this appointment was soon enough and she has enough time left before getting a transplant. This process has been so hard on everyone...when I think of about it I truly cannot imagine life without her here. Just typing that out brought tears to my eyes.
melsamoony- Things are better but I could still use a lot more help We really need to come to an agreement on a schedule for the weekends so he's at least giving me a break for three of the feedings. That would help a ton. Weeknights are better though...I basically tell him he has C the last stretch before we head to bed and sometimes before then. He gets home at 4:30 and I feed C again at 5:30 so he has him for about an hour (one of the worst times of the day too) before bed. Thankfully C is going down better these days...last night only took 52 minutes including 30 minutes of feeding.