Post by HoneySpider on Feb 18, 2015 13:11:31 GMT -5
It was more involved than I expected
The good news is that the surgery went well. We're still waiting on the pathology report to come back but she said the tissue mass did appear to be "retained products of conception" as we assumed. The bad news is, my doctor had to do more than expected because once she removed the tissue mass, there was a ton of scarring behind it. She was able to remove about 3/4 of it in the OR but she said that one tube was completely blocked and the other was partially blocked.
This surprised me because I had a HSG in June and there was no blockage, so I guess it grew a lot since then.
So today in the office I had another hysteroscopy to try and remove more of the scarring. There was also some new scar tissue that had built from the surgery which she was able to easily remove. I had to get a local anesthetic for all of this (not expecting this) and a blood vessel in my cervix burst creating a ton of bleeding.
She was able to get some more of the scar tissue out but at this point she can't see if the tubes are open because there is good tissue covering it which she doesn't want to remove. So now I go for another HSG, then after that I have another office hysteroscopy. If the tube is blocked I'll have to have another surgery in the OR. If it's clear, then we can move forward and basically she will just make sure that no new scar tissue develops.
The surgeons meet monthly with the REs and I will be one of the patients they discuss this coming meeting to decide what to do. It sounds like there is a good chance they will recommend we go right to IVF once we're done with cleaning out my uterus.
It's just one thing after another for my poor uterus. On the positive side, things look better now than they did before so we're making progress, it's just taking longer than expected.
I'm kind of an emotional mess right now. I am meeting DH for lunch in a little bit so I'm on campus and I sat in a bathroom stall crying for like, 10 min before I decided to text him and see if he could just come meet me for a few minutes so I had someone to talk to. He didn't answer and in the meantime I sort of pulled myself together only not. The anesthetic left me a little lightheaded and I've also been on estrogen pills since the surgery so I have all kinds of things messing with me right now. I figured it might be helpful to come here and write it all out!
I'm so sorry you had to go through that, it's a lot to take in all at once . I hope that your next appointments go smoothly and that you see a light at the end of the tunnel. Take it easy & be gentle with yourself. ((Hugs))
All I could think while reading this was "well, shit". It does seem like it is just one thing after another. I'm so sorry. That is a lot to take in when you weren't expecting it. I guess the one bright spot is that it seems you are in really good hands with this new doctor, and like you said, making progress. I hope you can enjoy lunch with your H and we're here if you need to talk. Hugs.
Ugh what an emotional appointment. I'm glad the overall appointment was good. I'm so glad you have what seem like awesome doctors for you through this. Huge hugs! BFP soon!!!!!
I'm sorry that you had a tough appointment, but it's great to hear that they're making progress and really working to put together a plan for you. Take care of yourself. ((( HUGS )))
*hugs* I am so impressed with how well you keep carrying on in spite of all the things that keep going wrong. I'm sorry that this wasn't an easy day, or an easy fix. I'm praying that this is the last bump in the road to getting your perfect little baby for a life time of cuddles. Take care of yourself. Spoil yourself if necessary!
Have you and your H already discussed how you feel about doing IVF, or is that new information as well?
We're ok with doing IVF and assumed it might come to that, we just thought it would be later on down the road. We wanted to try a few IUIs first.
Post by HoneySpider on Feb 18, 2015 19:09:03 GMT -5
Thanks for your hugs and good thoughts. We do have a great group of doctors and I am so thankful for that. It's just hard to not have an end in sight but I have to remember that we will eventually get there - they are all working hard to fix this.
I came home after lunch (instead of staying on campus - we were supposed to go to the game tonight) and DH took a few hours off work to come home with me which was awesome. I just got up from a little nap which I think helped.
Post by wanderingenough on Feb 18, 2015 20:07:51 GMT -5
Wow. So much for you to take in at one appointment. I'm sorry this process is longer and more frustrating than you initially anticipated. It seems reassuring that your docs want to get the best game plan going forward though!
Wow, that's a lot for one appointment. It sounds like the doctors are on top of things, so hopefully that helps with the progress of everything. Huge hugs while you are still figuring it out.
I really hope this did the trick and your HSG is clear. You have been through more than enough, and I am praying it is smooth sailing for you from here on out.
HUGE ((hugs)) friend. I'm really sorry you had such a rough appointment. That's a ton of information to take in and yet another setback but still progress in the right direction. I'm praying for you and rooting for you as always. I'm happy to hear your doctors sound really amazing and on top of things...it sounds like you truly couldn't be in a better place in that regards. Praying they have answers and solutions that lead to your BFP sooner than later. God must have a super special child waiting for you guys. Hang in there friend- you are incredibly strong and such an inspiration in how you continue to shine inspite of such hard times and adversity.
Ugh I'm really sorry that you have to go through all of this, physically and mentally. I'm sure it's frustrating, but relieving at the same time. FX that this is your answer and you are so close to moving forward. (((hugs))).
I'm so sorry that there have been so many obstacles for you I really hope that this has done the trick and your HSG will come back clear. Huge hugs HoneySpider, you're in my thoughts.