XP: I had my surgery post-op appt

[HoneySpider]

It was more involved than I expected

The good news is that the surgery went well. We're still waiting on the pathology report to come back but she said the tissue mass did appear to be "retained products of conception" as we assumed. The bad news is, my doctor had to do more than expected because once she removed the tissue mass, there was a ton of scarring behind it. She was able to remove about 3/4 of it in the OR but she said that one tube was completely blocked and the other was partially blocked.

This surprised me because I had a HSG in June and there was no blockage, so I guess it grew a lot since then.

So today in the office I had another hysteroscopy to try and remove more of the scarring. There was also some new scar tissue that had built from the surgery which she was able to easily remove. I had to get a local anesthetic for all of this (not expecting this) and a blood vessel in my cervix burst creating a ton of bleeding.

She was able to get some more of the scar tissue out but at this point she can't see if the tubes are open because there is good tissue covering it which she doesn't want to remove. So now I go for another HSG, then after that I have another office hysteroscopy. If the tube is blocked I'll have to have another surgery in the OR. If it's clear, then we can move forward and basically she will just make sure that no new scar tissue develops.

The surgeons meet monthly with the REs and I will be one of the patients they discuss this coming meeting to decide what to do. It sounds like there is a good chance they will recommend we go right to IVF once we're done with cleaning out my uterus.

It's just one thing after another for my poor uterus. On the positive side, things look better now than they did before so we're making progress, it's just taking longer than expected.

I'm kind of an emotional mess right now. I am meeting DH for lunch in a little bit so I'm on campus and I sat in a bathroom stall crying for like, 10 min before I decided to text him and see if he could just come meet me for a few minutes so I had someone to talk to. He didn't answer and in the meantime I sort of pulled myself together only not. The anesthetic left me a little lightheaded and I've also been on estrogen pills since the surgery so I have all kinds of things messing with me right now. I figured it might be helpful to come here and write it all out!

[vanillahip]

::so many hugs::

They're making progress! That's wonderful, and the prognosis sounds really good! I'm so sorry it's taking so long and is such an involved process though, I wish this time would fly by for you

[ginkgoleaf]

oh, HoneySpider, I'm so sorry that this is such a process to sort out for you. It seems like the Dr is being pro-active in getting the surgery done soon and consulting with the surgeons. If you have to do IVF, I promise it's not as terrible as you might think it would be. The end result will be worth it no matter how you get there.

[raangoli]

So many hugs HoneySpider. I am crying after reading your post. I am glad that things look better now and there is a better understanding of what is going on, but wow that is A LOT.

It sounds like you have a really good team of doctors on your side. I am keeping everything crossed for you.

[EllenGriswold]

(( HUGS )) for everything you are dealing with. It's a lot of emotions all at one time.

Sounds like you have a good team of doctors, just take it one step at a time.

[oneslybookworm]

((HoneySpider)) - sorry it's been such a rough go of it! Thankfully, it sounds like your team has a good plan. Hang in there!

[MrsMB]

So many hugs. I am SO sorry you had to deal with all of this. I am so sorry!! Please take care of yourself today. Sending you lots of prayers that you get the best scenario in all of this!

[july]

Sorry that it has taken so long. It does sound positive that there is a way forward now. I hope everything goes well for you.

[Mushe]

HoneySpider, I am so sorry to read that there was so much more to deal with than expected. I am thinking of you, and sending lots of good thoughts. It sounds like you have a great medical team in your corner.

[callmehales]

i want to hug you and send a separate hug for your ute =( it sucks when it's one thing after the other, but hopefully you'll get some good news soon!

[mandiespharm]

((Hugs)) you are so strong and will get through all of this.

[mac08]

Omg HoneySpider I can't even believe that, it's just not fair that you've had to deal with so many obstacles.  At least you are making progress, but going through so much on the way has got to be so difficult.  If they recommend going to straight to IVF, at least you won't waste time and can go straight to what should give the best results.  Hugs!

[tiptoetulips]

Wow! That is all so so intense I'm amazed by your strength! I'm sorry you had to do that without your h. I hope they find a good plan of attack for you and the rest is smooth sailing!

[HoneySpider]

Thanks, everyone. It's been a lot to process and I know it's not the end of the world, just have to keep at it and hopefully we will eventually get where we need to be. Just so hard to remember that sometimes! I do have a really good medical team and I am so thankful for that.

I met DH for lunch and I was still feeling really emotional and just worn out so I ended up going home after and he took a few hours off work to come home with me which was really awesome. I took a little nap which helped.

[shauni27]

oh dear. I am so sorry. But I feel optimistic for you that they were able to remove a lot of scar tissue and SEE what could be causing the problem. It feels like you are making progress.

I am glad you are being seen and there are steps that you and the medical team are taking to make this work for you. And I am glad you and your husband had a nice afternoon off together. treat yourself well.

[loira]

Oh HoneySpider, that is a shitload to go through. You must be feeling so overwhelmed. I'm really glad you're making progress, and that your medical team seems to have your case as a focus. Huge ((hugs)).