I'm getting concerned. Emerson's EVD drain stop draining last night. They've been in a few times flushing the drain and checking out her head, but haven't told me much. That concerns me because her surgeon and residents have always been super communicative about what they are doing. The only thing her surgeon said for sure was that going back into the OR to try to reinsert the drain would not be beneficial. Emerson is acting normal so that's good. Ugh I was feeling so good about this yesterday. I'm about to send my cousin for wegmans Chinese food, fried ravioli, and mozzarella sticks. I've never stress eaten like I have the last three months. I over heard something about a rapid MRI, but no one has talked to me.
Post by skiesthelimit on Feb 27, 2015 13:46:45 GMT -5
I hope they talk to you soon. Can you ask a nurse what's going on? It sounds like it may be blocked. I used to work on a neurosurgery unit and that would happen a lot. The fact that she is acting normal is a great sign. Keeping you in my prayers xox
That sounds super stressful and frustrating. Don't be afraid to politely but firmly ask for an update. As the parent, you're entitled to up to date information. Hang in there, mama! Glad to hear Em is acting like herself.
K I am so sorry. I hope that everything is ok. Is there someone you can talk to? I hate for you to be stressed and concerned like this without even knowing if there is something for sure going on. Maybe tell one of the nurses you are worrying and concerned? I want to hug you so badly.
Her nurse just told me she is scheduled to have a rapid MRI around 3 and that neuro would come talk to me soon. They want to see what's going on, but aren't super worried that anything is terrible because she's acting normal. It might just mean the drains done working.
I'm so sorry that you have to worry about this. My heart goes out to you for all that you've been through and are going through! I hope the drs can give you more info soon that puts you at ease.
(((hugs))) oh K, I cAnt even imagine the stress and anxiety you must be feeling. You are doing so well coping with all of this. You are so strong. I hope everything is fine and will be thinking of you and sweet E.