Endometriosis people

[floridakat]

I have stage 4 endo. I'm not currently on BC, so I don't know if this will be of any use to you, but I'm under similar stress right now and my periods have been horrific. Last month it lasted two and half weeks, and then I started up right on time again a week later. Other than age (I'm 42), I don't have any other reasons for my changes to my period other than extreme stress.

[Deleted]

I had terrible issues with Yaz and the only pill that ended up working for me was Seasonique. I am currently off (TTC) but something about Yaz just never worked for me and I always had horrible cramping and I bled for the entire 3 months that I was supposed to be adjusting to it.

[wambam]

I don't have endo.

However, I bled on every pill I tried until I tried a triphasic pill.

[floridakat]

Mar 4, 2015 10:29:21 GMT -5 mofongo said:

Mar 4, 2015 10:27:30 GMT -5 floridakat said:

I have stage 4 endo. I'm not currently on BC, so I don't know if this will be of any use to you, but I'm under similar stress right now and my periods have been horrific. Last month it lasted two and half weeks, and then I started up right on time again a week later. Other than age (I'm 42), I don't have any other reasons for my changes to my period other than extreme stress.

I'm sorry:(

It's okay, I'm coming to terms with where we are with my dad. I've been following your story because there are so many parallels between our situation. (I hope that doesn't sound creepy.)


As far as the crappy periods go, I've dealt with horrible periods my whole life. Endo can suck a big fat one as far as I'm concerned. 

[Deleted]

Mar 4, 2015 10:30:06 GMT -5 mofongo said:

Mar 4, 2015 10:28:31 GMT -5 @libellula said:

I had terrible issues with Yaz and the only pill that ended up working for me was Seasonique. I am currently off (TTC) but something about Yaz just never worked for me and I always had horrible cramping and I bled for the entire 3 months that I was supposed to be adjusting to it.

I had been on yasmin for like a decade, before ttc, and it was awesome. I guess it could just be my body changed?

It absolutely does change. I used to do great on Ortho-Tri-Cyclen before my ENDO developed and then switched to Kariva (continuously) which did well until I started having babies. I did the mini pill while nursing, and when I needed to transition, I tried the Yaz and it was just awful. Seasonique is what I eventually was using between kiddos.

[floridakat]

Mar 4, 2015 10:33:58 GMT -5 mofongo said:

Mar 4, 2015 10:32:19 GMT -5 floridakat said:

It's okay, I'm coming to terms with where we are with my dad. I've been following your story because there are so many parallels between our situation. (I hope that doesn't sound creepy.)


As far as the crappy periods go, I've dealt with horrible periods my whole life. Endo can suck a big fat one as far as I'm concerned. 

Not at all. What is his diagnosis? If it's not too personal.

He has end-stage lung cancer that metastasized to his brain and bones. He also has severe COPD. 

[floridakat]

Mar 4, 2015 10:40:49 GMT -5 mofongo said:

Mar 4, 2015 10:37:23 GMT -5 floridakat said:

He has end-stage lung cancer that metastasized to his brain and bones. He also has severe COPD. 

((hugs))

Thanks so much. I didn't mean to hijack your post. 

[Deleted]

Mar 4, 2015 10:37:23 GMT -5 floridakat said:

Mar 4, 2015 10:33:58 GMT -5 mofongo said:

Not at all. What is his diagnosis? If it's not too personal.

He has end-stage lung cancer that metastasized to his brain and bones. He also has severe COPD. 

Oh man, I'm so sorry, floridakat. ((HUGS))

[AHappierHour]

I had a similar experience with Othro ( genartic ). I was on a certain brand for a few years them the pharmacy switched genartic brands and I started getting horrible headaches, spotting for weeks, sick to my stomach. My Dr said my body was just getting used to the new pill. Even though they were the same every company has their own formula. As soon as my body regulated itself the pharmacy switched back and I got sick again and got PG with DS2.

[car.ramrod]

Mar 4, 2015 10:37:05 GMT -5 @libellula said:

Mar 4, 2015 10:30:06 GMT -5 mofongo said:

I had been on yasmin for like a decade, before ttc, and it was awesome. I guess it could just be my body changed?

It absolutely does change. I used to do great on Ortho-Tri-Cyclen before my ENDO developed and then switched to Kariva (continuously) which did well until I started having babies. I did the mini pill while nursing, and when I needed to transition, I tried the Yaz and it was just awful. Seasonique is what I eventually was using between kiddos.

This was me too.  The only pill that ever worked was Seasonique but then I started continuously bleeding (5 months) and they tried everything to stop it.  I ended up going on Depo Lupron (puts you in menopause) for 11 months and it saved me.  I felt like it had taken over my life.  I went off it and had a laparoscopy and that helped as well.  I was able to get pregnant with my DS1.  Between those pregnancies I went back on seasonique and then had another laparoscopy before TTC DS2.  


After DS2 it got significantly worse and I ended up having a partial hysterectomy (they took everything except one ovary so I still produce hormones) and it was the greatest thing that ever happened to me.  I feel like I got my life back.  It was such an easy surgery (da Vinci machine) and recovery and I felt better than I had in 10 years within two weeks.  I had it at 30 which is really the youngest they want to do it but I knew I was done having kids and I was so tired of this ruling my life. Obviously that is the worst case scenario but I always tell everyone about the partial because so many doctors go straight for the full hysterectomy which is not necessary and which throws you into menopause.  I spent a lot of time researching doctors in my area that specialize in endometriosis before I met with one and she was amazing.  So much more knowledgeable than my ob/gyn.

I hate you are going through this but sometimes it takes trying a bunch of different pills to find one that will work.  Also you might look into if there is a doctor in your area that specializes in endo as it is a really hard disease to deal with.

[Deleted]

I've had two surgeries and done Lupron twice now and I have several long-term issues because of it. My children are worth it though.

[nursewife]

I had almost constant spotting, or was in my period. It got pretty normal. Has your doctor ever tried Lupron? That was the 1 med that stopped the bleeding.

[thedude]

Mar 4, 2015 10:28:31 GMT -5 @libellula said:

I had terrible issues with Yaz and the only pill that ended up working for me was Seasonique. I am currently off (TTC) but something about Yaz just never worked for me and I always had horrible cramping and I bled for the entire 3 months that I was supposed to be adjusting to it.

I've never taken Yaz, but had a similar experience where a pill that worked well for several years just stopped being as effective. More intense cramps/bleeding definitely occurred when I was more stressed. I figure it was a hormonal thing. Anyway, I second Seasonique/Amethia. It was by far the very best I ever felt on a BC pill. The constant dose was much better for me than the pills where the hormone dosage varies greatly day to day. I took it for maybe 4-5 years until my hysterectomy.

ETA I see Lupron mentioned in here, so I just want to make a quick plug to do your research before going on Lupron. I know some people had good experience in that it gave them some relief and stopped the bleeding for a while, but it can have some significant side effects and longer term effects, so just do your research and talk to your doctor before doing it

[Deleted]

Yes, I had great Lupron results, but the long term side effects have begun to make themselves evident and it's scary to say the least.