Another update - pic on pg 2

[blane12]

I'm sorry I keep leaving these here, but other than my close family and friends, I have no where else to put this.  So Coltons bili levels haven't went down today, but because he is getting older, the range becomes larger of what's acceptable.  So they felt pretty good this morning about where he was when I talked with the Drs at 11p. They were going to back the draws up from 6hrs to every 8 and took the IV out.  So I got to hold hi. And feed him outside of the lights twice today.  I got discharged though which really sucks because we live an he away from the hospital.  I came home this afternoon around 5 feeling decent about how he was doing.  

So I just called to see how his latest draw was. And it's at 15.  The draw before was 12.  So it's still going up and not going down at all. They had to put a UVC port in his belly button because they couldn't get the IV back in.  They are Doing another IVIG right now, and drawing again at 10p.  If this IVIG doesn't work, they are going to have to do a full blood exchange.  There are more risks associated with that.  I'm not clear on all the risks yet as I'm still trying to pull myself together with the latest news.  I am so scared and frightened with worry.  I just want my baby to at least be on the mend.  

Im sorry to keep putting this here, but I just had to put it somewhere.

[kandrze1]

Oh wow, I just am seeing all of this. I'm sorry. I hope things start to improve!

[Na]

Omg please don't apologize! Use all of us to send as many good thoughts and prayers as possible. I am so sorry about this, we will be thinking of you both!

[racheliz]

I'm so sorry to hear this. Lots of good thoughts and prayers for him. I hope you get good news at the next blood draw!

[TrudyCampbell]

Don't apologize, this is what we are here for! I'm so sorry, this all sounds so stressful. Praying for a great update soon.

[fusion]

yes, please don't apologize! Thinking of you and your sweet little baby (((hugs)))

[katfco]

I was hoping you'd keep updating, although I'm sorry the update isn't better. I know we're on opposite sides of Columbus, but if you need anything, don't hesitate to ask.

[The Foozzler]

I am so sorry. Please feel free to reach out to us whenever you need. Continue to pray for your little guy.

[sunshineluv]

Oh my goodness, I hope and pray the ivg works and his levels begin to fall. Big hugs to you. Please keep us posted.

[dbe100408]

I hope you get good news soon. Prayers for you and sweet DS.

[Regina Philange]

Praying for your little guy. So sorry you are going through this.

[Deleted]

Praying for Colton!

[whodey]

I'm so sorry Colton's levels are improving more, I'm not sure what hospital he's at, but I'm in Columbus if you need anything

[bean47]

I'm so sorry you're going through this. I hope the next IVIG is just what he needs to start improving.

[skiesthelimit]

Please don't appologize. We are here to support you so post as much as you need too. I'm praying for little C. Sending you a million hugs. I'm so sorry.

[creamsiclechica]

Oh sweetie, I am so sorry. You must be so overwhelmed and emotional. I am praying so hard for everything to improve as easily and painlessly as possible for you and your little boy. I can't wait until you can have Colton home with you.

[joyhart02]

Praying for you guys.

[orangeblossom4]

I am so sorry to hear this. I will continue to pray his levels go down. If you need a place to stay so you'll be closer to the hospital we have an extra room. Also, if you'd just need mr to bring something to the hospital don't hesitate to let me know. This has to be so hard.

[blane12]

Thank you so much ladies. You are making me cry again . The up and down is just killing me. Now I'm at home and feel so far away. I considered driving down again but I can't hold him or anything anyway so I'd just be doing the same thing I'm doing here.... He's at OSU. I have no doubt they are doing everything they can. I can't even put into words what I'm feeling. I did some googling (yes I know not always a great idea) on the exchange and feel a little better about it. Obviously, I will talk to the dr about it too when I call next if it's needed. I feel so bad for my sweet helpless boy that he's being put through all this. I can't tell you enough how much I appreciate it.

[LiveLoveLearn]

I'm sorry all of this has to be so hard and frustrating. Prayers to you. I hope you get good news that his levels are going down soon.

[aubreyann]

Thinking of you. I'll be on campus Wednesday if you need anything!

[aubreyann]

Mar 6, 2015 20:41:42 GMT -5 blane12 said:

Thank you so much ladies. You are making me cry again . The up and down is just killing me. Now I'm at home and feel so far away. I considered driving down again but I can't hold him or anything anyway so I'd just be doing the same thing I'm doing here.... He's at OSU. I have no doubt they are doing everything they can. I can't even put into words what I'm feeling. I did some googling (yes I know not always a great idea) on the exchange and feel a little better about it. Obviously, I will talk to the dr about it too when I call next if it's needed. I feel so bad for my sweet helpless boy that he's being put through all this. I can't tell you enough how much I appreciate it.

Can I bring you some cookies or buckeye donuts?

[bigapple]

So many hugs to you. Please share here whenever you want.

I'm thinking of you guys and hoping for some great news soon.

[rjamz]

I'm thinking of you guys! And never apologize for posting this stuff, it's what we're here for!

[jenbelle]

Oh, please don't ever apologize! You know we are here whenever you need us, praying lots of prayers that this transfusion is all he needs. Sending hugs!!!!

[helicase]

I've been thinking of you guys all day. I pray his levels go down tonight.

[artgal84]

I've been praying for you and your baby boy. I hope his levels start to go down soon. I'm sorry you're going through all of this. Hugs!

[silverjm]

Sending so many hugs your way. My T&P will be with you.

[mlkgls]

Please post as much as you want, we want to know how you're both doing! I'm sorry you didn't get better news this evening. T&ps tonight's results go down. 

[lolaburns]

Please don't apologize. My heart breaks that you are going through this and I pray that the IVIG tonight works so he doesn't have to have the full exchange. Thinking of you <3