We have a diagnosis

usm
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We have a diagnosis Apr 20, 2015 11:12:42 GMT -5 via mobile

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Post by usm on Apr 20, 2015 11:12:42 GMT -5

We've been in the PICU since Thursday on the vent and requiring lots of O2 and nitric. They have run every panel and culture waiting on something to come back. RSV came back negative and we got to stop wearing gowns and masks. We just got word he has some respitory illness similar to RSV that the nurses have never heard of but the Dr is familiar with.Anyone familiar with Metapneumovirus? I just read on the cdc website that is presents with ear infection 60% of the time and it was noted on admit that his left eardrum around his tube was red. It's spread through contact so we have to wear gowns and gloves now touching him.

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Kcthepouchh8r Full Member Posts: 3,131 Likes: 1,431	We have a diagnosis Apr 20, 2015 11:17:17 GMT -5 via mobile Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Kcthepouchh8r on Apr 20, 2015 11:17:17 GMT -5 Never heard of that but I hope he gets well soon.
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Deleted Posts: 0	We have a diagnosis Apr 20, 2015 11:19:28 GMT -5 via Tapatalk Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Deleted on Apr 20, 2015 11:19:28 GMT -5 Haven't heard of it but glad you have an answer and thinking of you guys and sending good vibes for a speedy recovery!!!
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andrewsgal Full Member Posts: 3,888 Likes: 2,990	We have a diagnosis Apr 20, 2015 11:23:22 GMT -5 via Tapatalk Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by andrewsgal on Apr 20, 2015 11:23:22 GMT -5 Glad you got answers. I am sorry you are going through this.
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momin2013 Senior Member Posts: 7,580 Likes: 7,339	We have a diagnosis Apr 20, 2015 11:25:40 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by momin2013 on Apr 20, 2015 11:25:40 GMT -5 No experience with that, but I'm glad at least you have a diagnosis. Wishing your DS a speedy recovery.
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nowa Full Member Posts: 1,334 Likes: 671	We have a diagnosis Apr 20, 2015 11:26:07 GMT -5 via mobile Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by nowa on Apr 20, 2015 11:26:07 GMT -5 Glad you know what it is finally!! What's the treatment?
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lala Senior Member Posts: 5,815 Likes: 3,995	We have a diagnosis Apr 20, 2015 11:27:19 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by lala on Apr 20, 2015 11:27:19 GMT -5 I'm so glad you know what you are dealing with and that the doctor is familiar! I hope he gets better soon.
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jag01 Full Member Posts: 1,125 Likes: 708	We have a diagnosis Apr 20, 2015 11:27:33 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by jag01 on Apr 20, 2015 11:27:33 GMT -5 Glad to hear that he got a diagnosis, hopefully they can start treating it soon and he'll be on the road to recovery.
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usm
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We have a diagnosis Apr 20, 2015 11:31:43 GMT -5 via mobile

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Post by usm on Apr 20, 2015 11:31:43 GMT -5

Apr 20, 2015 11:26:07 GMT -5 nowa said:

Glad you know what it is finally!! What's the treatment?

Just keep him comfortable and let it pass. They are giving lasix to dry out his lungs and steroids to open his airways. It presents like a common cold but he may have aspirated when he was coughing and gotten pneumonia so he is also on broad spectrum antibiotics.

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usm Full Member Posts: 1,463 Likes: 1,095	We have a diagnosis Apr 20, 2015 11:32:39 GMT -5 via mobile Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by usm on Apr 20, 2015 11:32:39 GMT -5 Thank you all! DH went back to take care of DS1 this week so I am sitting in the PICU with this info and no where to get it out.
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quesyrah Senior Member Posts: 6,661 Likes: 4,812	We have a diagnosis Apr 20, 2015 12:00:51 GMT -5 via Tapatalk Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by quesyrah on Apr 20, 2015 12:00:51 GMT -5 I wish I had some words of wisdom but I'm glad you have an answer and a treatment plan. Hope he gets better quickly!
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rosesandpetals Full Member Posts: 1,670 Likes: 1,071	We have a diagnosis Apr 20, 2015 13:25:50 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by rosesandpetals on Apr 20, 2015 13:25:50 GMT -5 Glad you have an answer and a doctor who is familiar with it! Sending good thoughts for a speedy recovery!
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jnksmom Junior Member Posts: 687 Likes: 277	We have a diagnosis Apr 20, 2015 13:32:28 GMT -5 via mobile Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by jnksmom on Apr 20, 2015 13:32:28 GMT -5 I have not heard of that but I am glad you got some answers. I'm sorry you are dealing with this. I hope he recovers quickly.
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lexus Full Member Posts: 2,242 Likes: 1,854	We have a diagnosis Apr 20, 2015 20:35:57 GMT -5 via mobile Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by lexus on Apr 20, 2015 20:35:57 GMT -5 Hoping for a speedy recovery.
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Deleted Posts: 0	We have a diagnosis Apr 20, 2015 21:33:56 GMT -5 via mobile Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Deleted on Apr 20, 2015 21:33:56 GMT -5 Aww hope it runs it's course quickly!!
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penguingrrl Elder Posts: 14,972 Likes: 15,906	We have a diagnosis Apr 20, 2015 21:37:40 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by penguingrrl on Apr 20, 2015 21:37:40 GMT -5 I'm glad you have an answer and hopefully he'll be on the mend quickly! I have never heard of that.
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We have a diagnosis

Post by usm on Apr 20, 2015 11:12:42 GMT -5

Post by Kcthepouchh8r on Apr 20, 2015 11:17:17 GMT -5

Post by Deleted on Apr 20, 2015 11:19:28 GMT -5

Post by andrewsgal on Apr 20, 2015 11:23:22 GMT -5

Post by momin2013 on Apr 20, 2015 11:25:40 GMT -5

Post by nowa on Apr 20, 2015 11:26:07 GMT -5

Post by lala on Apr 20, 2015 11:27:19 GMT -5

Post by jag01 on Apr 20, 2015 11:27:33 GMT -5

Post by usm on Apr 20, 2015 11:31:43 GMT -5

Post by usm on Apr 20, 2015 11:32:39 GMT -5

Post by quesyrah on Apr 20, 2015 12:00:51 GMT -5

Post by rosesandpetals on Apr 20, 2015 13:25:50 GMT -5

Post by jnksmom on Apr 20, 2015 13:32:28 GMT -5

Post by lexus on Apr 20, 2015 20:35:57 GMT -5

Post by Deleted on Apr 20, 2015 21:33:56 GMT -5

Post by penguingrrl on Apr 20, 2015 21:37:40 GMT -5