Post by carolinagirl831 on May 12, 2015 13:25:22 GMT -5
I'm so sorry , I had to google it but it appears there is a wide variety of how greatly the system is affected. Hopefully Drs can give you more info. Hugs, we are all here for you in whatever support you may need
Post by water*drop on May 12, 2015 13:44:40 GMT -5
I'm so sorry. Is there anybody who can help out with your DD tonight so you and your DH can just take a little bit to talk/cry/scream/stare into space/whatever? Sending so many hugs to you and your family.
I'm so sorry. Is there anybody who can help out with your DD tonight so you and your DH can just take a little bit to talk/cry/scream/stare into space/whatever? Sending so many hugs to you and your family.
I'd love to but I'm just not sure when we will tell our families (at least not until we meet with the doctor tomorrow) and I'm just not ready to talk about this with anyone else without more information yet. A last-minute call would arouse some suspicion but I will consider this.
Thank you all, again. I really hope a meeting with my doc and with a genetic counselor provides more clarity. I hate not knowing the severity level, because from what I can tell, symptoms and prognosis run the gamut. I opted for the amnio for confirmation and while it gave that, now there is just more uncertainty.