I'm in. I have a 4.5 year old with hypotonia and apraxia. Overall she is doing great and has made so much progress since we started therapy at 2. She was basically nonverbal at that time and was just obviously very different from her peers. Now it's a different story--she makes friends easily, talks all day, and gross motor skills are her strength. She still has articulation issues that need to be addressed though and I think we will be in therapy for that for a long, long time. She was dismissed from private therapy a year ago but has continued to get speech only through the school district. We just had another private speech and OT eval last week and she does qualify for speech again. It's kind of a blow and I don't want to do it but of course we will. It doesn't take away from her hard work but it does feel like it. The good news is we no longer qualify for OT. She's in the 80% for fine motor skills now which is amazing since a year and a half ago she couldn't even pick up a pencil properly.
As for the hypotonia it will always be there but our "therapy" plan of lots of swimming and gymnastics seems to be working. She loves both and I think it will be a requirement for her to keep up with one or the other at least through elementary school.
Having a kiddo with any sort of special needs is SO hard. It hurts when you see your kid struggling with something that comes so easily to typical kids. I'm now in a place where I can easily focus on DD's strengths instead and am no longer bitter. It took me a long, long time though and it felt very lonely. Hugs to everyone!
I hope it's ok if I post here too. My kids needs aren't as in depth as the others but I don't feel like I really have anyone to discuss these issues with. All 3 kids have hypotonia. We are finding that the issues related to this come and go over time. Sometimes it is more pronounced and other times it's not as noticeable. It's like they make big improvements and seem to almost catch up and then slide back again. Like someone else mentioned, it's just always there and never goes away.
The girls were just diagnosed at their 15 mo appointment. Right now they started pt and st. It is very hard for E to stand independently. She cannot take any independent steps. K can take a few steps but is still shaky.
J cannot alternate going up steps and is still really slow. About a month ago we had a family orientation for preschool. At the end everyone was leaving and all the kids ran up the stairs. I hated seeing them all run up the stairs and J was slowly going up one foot at a time. That stung a little. I'm afraid this will impact how he interacts with his peers. Especially since he is naturally shy. I notice at the playground he will hang back and wait for other kids all the time because he perceives it as unsafe because he doesn't have the strength to compete going across the bridge etc. When other kids are too.
Sometimes I think what makes it worse for me is that my husband often doesn't notice these things.
We have DS's IEP in place for 1st grade (high functioning autism), he's doing PT for gross motor delays, and we do see improvement which is great, but he's still 2 years behind in most of his gross areas. I feel bad for him b/c he finds everything exhausting from having such low muscle mass and low tone.
DS had issues with hypotonia in the classroom. Any exercise you can do to improve his stamina is useful. Walks after school, active play on the playground can all improve the impact of low tone. DS routinely works 8-10 hr shifts at his PT job, sometimes at a desk and sometimes on his feet all day. He still has low tone, but he is very strong and has good stamina.
One thing to look for is that his desk and chair are appropriately sized. This can help a lot with fatique around seat work. A Sit'n'Fit Cushion might give him a platform to provide sensory feedback to keep him actively engaged in sitting properly which is necessary for writing.
We also started him w/ a psychologist, who is working on giving him social skills and teaching him appropriate social cues and such. I'm not sure how effective that'll be since he does really well w/ adults in general - not sure if he'll be able to (or care to) translate it to interacting more w/ kids.
We did this. It was very useful for DS and for myself as well. The psych helped DS with a lot of ToM exercises and CBT to help him be less rigid and anxious. He always gave us "homework" that consisted of taking the lesson out into the real world and practicing it with other kids.
DS was always great with indulgent adults at that age. Now that he is an adult, he's sort of awkward at times.
I have plans to sign him up for social skills groups, but we do so many activities already that I am kind of dragging my feet over it.
Is this not included in his IEP? School is the most natural place for social skills instruction since it offers the actual peers with whom he needs to interact effectively. Inability to play cooperatively at recess, participate in group projects or converse appropriately at the lunch table are all educational needs in first grade.
Social skills groups can be a double edged sword. On one hand you generally get access to an appropriate skills curriculum like Michelle Garcia Winner's Social Thinking, but on the other the children in these groups are not as engaged in communicating as typical peers would be so it's harder to practice.
I'm very nervous for him going into 1st grade. He is nervous of the full day (k is 1/2 day here) and his challenges are focusing and just the stress of being in a classroom w/ so many kids. Add in the muscle issues (apparently it's physically hard for him to sit and write even b/c of his lack of strength) and I'm afraid he's going to hate school. He's at least a grade level ahead in subjects, so I know he can do the work, but that won't last if he can't pay attention...
Can you visit the school ahead of time? Maybe meet with the teacher one afternoon when she's setting up the classroom?
DS attended a small private school for kindie and first with 16 kids to a class, then he attended a private lab reading school for two years with tiny classes of 8-10 (with 2 teachers). When he bridged to public mainstream I had real concerns about this, but he did really well because the kids in the mainstream were less needy and dramatic and the teacher was terrific. He fit right in and was happy there.
The unknowns really are the worst. Because of how large her ventricles were R is missing a lot of brain mass and just like everyone else, no one can predict what it will/won't lead to.
Yeah, I don't know if I'll ever get used to hearing "reduced brain volume" or "dead brain tissue." It always blows my mind that neurologists can talk about that stuff like they're ordering a coffee or something.
P's stroke size has recently been upgraded from "medium" to "large." Ugh.
I'm in. DD has ASD. She is attending an ABA based preschool 2 days a week until August when she will enter their 5 day a week program. She is responding really well to ABA and the school, she even has a friend in her class. I am nervous about the transition to the full time program as she will no longer have her 1:1 aides but her team there (BCBA/teacher/aides) all agree she's ready and she is doing well with the transition plan right now (with a few small bumps along the way) so I'm hopeful.
Me too... his are gross and fine motor skill issues. He was also born with some physical deformities although he's had surgeries to correct/improve them.
He goes to a special needs preschool and is flourishing! Certain things are still hard for him but i constantly see improvement! His new teachers all tell me how impressive he is in spite of the limitations he's been given!
I'm glad to hear he's doing well in the SN preschool! We are set to switch P when he turns 1.
He was in Early Intervention until he turned 3... that's when they age out and then the town we live in takes over his therapies. They have a preschool by you at age 1?
I wish I had gotten him EI before age 1. He was 8 weeks premature but no one told me I could start services as soon as possible!
I'm glad to hear he's doing well in the SN preschool! We are set to switch P when he turns 1.
He was in Early Intervention until he turned 3... that's when they age out and then the town we live in takes over his therapies. They have a preschool by you at age 1?
I wish I had gotten him EI before age 1. He was 8 weeks premature but no one told me I could start services as soon as possible!
It's a "therapeutic preschool." So, basically his EI services will transfer to the preschool as his provider--they have several PT, OT, SLTs on staff there. It goes from age 1 through kindergarten. The therapists meet regularly with the classroom teachers to integrate the therapy teachings into classroom routines and all the teachers have advanced qualifications. It will basically function as daycare.
They also have a pool for aquatic therapy, which I think will be awesome for him given his tone issues.
I hope it's ok if I post here too. My kids needs aren't as in depth as the others but I don't feel like I really have anyone to discuss these issues with. All 3 kids have hypotonia. We are finding that the issues related to this come and go over time. Sometimes it is more pronounced and other times it's not as noticeable. It's like they make big improvements and seem to almost catch up and then slide back again. Like someone else mentioned, it's just always there and never goes away.
The girls were just diagnosed at their 15 mo appointment. Right now they started pt and st. It is very hard for E to stand independently. She cannot take any independent steps. K can take a few steps but is still shaky.
J cannot alternate going up steps and is still really slow. About a month ago we had a family orientation for preschool. At the end everyone was leaving and all the kids ran up the stairs. I hated seeing them all run up the stairs and J was slowly going up one foot at a time. That stung a little. I'm afraid this will impact how he interacts with his peers. Especially since he is naturally shy. I notice at the playground he will hang back and wait for other kids all the time because he perceives it as unsafe because he doesn't have the strength to compete going across the bridge etc. When other kids are too.
Sometimes I think what makes it worse for me is that my husband often doesn't notice these things.
DS2 has hypotonia. He was a floppy baby right from the start-always feeling like he was slipping through our hands when we picked him up, especially after the newborn phase when most babies use more of their muscle control to grasp on.
Anyway, have your kids had SureSteps? DS2 couldn't stand independently AT ALL (so not even while holding onto something or trying to cruise) until he got his SureSteps at 16 months. They were a real game-changer for us.
I'm not sure we belong here b/c right now, DS2 is almost caught up. He's still having trouble on stairs and the PT says he'll need leg/ankle braces for a few more years. He is getting much better with his sensory issues related to eating (which our PT says is common in hypo kids), and is finally not screaming through every meal and actually eating. He's also having a huge verbal breakthrough, and his pronunciation is getting much better. Our PT said many hypo kids have speech-related issues, especially those with the oral sensory problems DS2 went through around eating.
I hope it's ok if I post here too. My kids needs aren't as in depth as the others but I don't feel like I really have anyone to discuss these issues with. All 3 kids have hypotonia. We are finding that the issues related to this come and go over time. Sometimes it is more pronounced and other times it's not as noticeable. It's like they make big improvements and seem to almost catch up and then slide back again. Like someone else mentioned, it's just always there and never goes away.
The girls were just diagnosed at their 15 mo appointment. Right now they started pt and st. It is very hard for E to stand independently. She cannot take any independent steps. K can take a few steps but is still shaky.
J cannot alternate going up steps and is still really slow. About a month ago we had a family orientation for preschool. At the end everyone was leaving and all the kids ran up the stairs. I hated seeing them all run up the stairs and J was slowly going up one foot at a time. That stung a little. I'm afraid this will impact how he interacts with his peers. Especially since he is naturally shy. I notice at the playground he will hang back and wait for other kids all the time because he perceives it as unsafe because he doesn't have the strength to compete going across the bridge etc. When other kids are too.
Sometimes I think what makes it worse for me is that my husband often doesn't notice these things.
C is 15 months and doesn't stand on his own either. He just started pulling up and "cruises" a little, and will take a few steps if we hold both hands. Funny enough his doctors don't seem really concerned because they see him as "on track" even though he just started crawling and pulling up in the last few weeks (which, in my mind, is several months behind). I'm also fairly certain that he's going to need speech (he only has maybe two words, mama and dada, and isn't consistent with them).
I'm in. I have a 4.5 year old with hypotonia and apraxia. Overall she is doing great and has made so much progress since we started therapy at 2. She was basically nonverbal at that time and was just obviously very different from her peers. Now it's a different story--she makes friends easily, talks all day, and gross motor skills are her strength. She still has articulation issues that need to be addressed though and I think we will be in therapy for that for a long, long time. She was dismissed from private therapy a year ago but has continued to get speech only through the school district. We just had another private speech and OT eval last week and she does qualify for speech again. It's kind of a blow and I don't want to do it but of course we will. It doesn't take away from her hard work but it does feel like it. The good news is we no longer qualify for OT. She's in the 80% for fine motor skills now which is amazing since a year and a half ago she couldn't even pick up a pencil properly.
As for the hypotonia it will always be there but our "therapy" plan of lots of swimming and gymnastics seems to be working. She loves both and I think it will be a requirement for her to keep up with one or the other at least through elementary school.
Having a kiddo with any sort of special needs is SO hard. It hurts when you see your kid struggling with something that comes so easily to typical kids. I'm now in a place where I can easily focus on DD's strengths instead and am no longer bitter. It took me a long, long time though and it felt very lonely. Hugs to everyone!
I hear ya. My kid may never be the first to do anything but you know what? He's an awesome kid nonetheless! He's compassionate, sweet, funny, well-behaved (for a 3 year old), and is always laughing! So maybe he'll never be valedictorian or captain of the football team. But he's strong in other ways because he's been through so much more than the average kid!
Every new thing he does is such a victory and I'm constantly in awe of him. He doesn't let his physical weaknesses stop him from climbing to the top of the swingset (he doesn't even need my help anymore, although he needs my help getting down if he opts not to use the slide). He finally talks about friends (he took time to catch up socially). He's still the cautious, shy kid but he's made leaps and bounds from the 2 pound preemie who was born with an association called VACTERL. So while it's been a rough road to get to this place, we're in a pretty good one now even though we still have more to go! There may be more surgeries down the line... there'll be plenty more therapy... but he's happy and that's really most important.
He was in Early Intervention until he turned 3... that's when they age out and then the town we live in takes over his therapies. They have a preschool by you at age 1?
I wish I had gotten him EI before age 1. He was 8 weeks premature but no one told me I could start services as soon as possible!
It's a "therapeutic preschool." So, basically his EI services will transfer to the preschool as his provider--they have several PT, OT, SLTs on staff there. It goes from age 1 through kindergarten. The therapists meet regularly with the classroom teachers to integrate the therapy teachings into classroom routines and all the teachers have advanced qualifications. It will basically function as daycare.
They also have a pool for aquatic therapy, which I think will be awesome for him given his tone issues.
Hi all. I have participated in our sn board here and on the other "new bump", but I love connecting with other moms who are dealing with some of the junk I am.
My youngest, Wesley, has Down syndrome. He just turned 6 mo. He has a small hole in his heart (PDA), which is being monitored but is thankfully very small. He has jesting logs in one ear and will hopefully soon get a hearing aid. He has PT weekly for low tone and a general gross motor delay but is not too far behind. He is rolling over (yay!!) and propping himself up on his elbows in a very adorable way. He loves his big brother and sister almost as much as they love him and I'm sure they will be great motivation to get moving
dcrunnergirl52, no I have never heard of those! I just looked them up though and I think they might be really helpful for E. She seems to rotate her feet inwards. J walked shortly before 17 mos and it looks like the girls may be close to that but I'm not sure.
I wonder if they would be helpful for J too. I think he is also rolling inwards.
Also it's interesting you mention the eating. I mentioned this to the pedi at his 3 year appointment because I think he definitely has some of this going on, although oddly enough it seems to be getting better now that I notice it lol. But he will eat a pouch of say, broccoli and carrot (no fruit) but won't eat the actual food. And it seems to be a texture thing. Same thing with fruits. He will eat a banana pouch but not a banana etc. Lately he seems to be doing better but it's still there.
I hope it's ok if I post here too. My kids needs aren't as in depth as the others but I don't feel like I really have anyone to discuss these issues with. All 3 kids have hypotonia. We are finding that the issues related to this come and go over time. Sometimes it is more pronounced and other times it's not as noticeable. It's like they make big improvements and seem to almost catch up and then slide back again. Like someone else mentioned, it's just always there and never goes away.
The girls were just diagnosed at their 15 mo appointment. Right now they started pt and st. It is very hard for E to stand independently. She cannot take any independent steps. K can take a few steps but is still shaky.
J cannot alternate going up steps and is still really slow. About a month ago we had a family orientation for preschool. At the end everyone was leaving and all the kids ran up the stairs. I hated seeing them all run up the stairs and J was slowly going up one foot at a time. That stung a little. I'm afraid this will impact how he interacts with his peers. Especially since he is naturally shy. I notice at the playground he will hang back and wait for other kids all the time because he perceives it as unsafe because he doesn't have the strength to compete going across the bridge etc. When other kids are too.
Sometimes I think what makes it worse for me is that my husband often doesn't notice these things.
C is 15 months and doesn't stand on his own either. He just started pulling up and "cruises" a little, and will take a few steps if we hold both hands. Funny enough his doctors don't seem really concerned because they see him as "on track" even though he just started crawling and pulling up in the last few weeks (which, in my mind, is several months behind). I'm also fairly certain that he's going to need speech (he only has maybe two words, mama and dada, and isn't consistent with them).
I knew the girls were behind speech wise. Pedi wanted 5 words at 15 mos and they had maybe 1. So even before their appointment I had them evaluated for speech. Then they had a huge word explosion of course. But they will still be working with her because I forsee articulation becoming an issue like it did for J as he got older.
Then I also noticed them sitting in the W shape and knew then they had the hypotonia too like J. The thing is, J was definitely more behind gross motor wise at a younger age. They seemed to be moving along just on the later end but we just assumed it was because they were slight preemies (36w4d) but now it's clear there is more going on. The pt has been good for them though. They had their first session last week. Originally, we were thinking every other week but I'm going to ask if she can come weekly because she can help them more than I can. She just seems to know what to do and they are more willing with her whereas with us it becomes a game.
dcrunnergirl52, no I have never heard of those! I just looked them up though and I think they might be really helpful for E. She seems to rotate her feet inwards. J walked shortly before 17 mos and it looks like the girls may be close to that but I'm not sure.
I wonder if they would be helpful for J too. I think he is also rolling inwards.
Also it's interesting you mention the eating. I mentioned this to the pedi at his 3 year appointment because I think he definitely has some of this going on, although oddly enough it seems to be getting better now that I notice it lol. But he will eat a pouch of say, broccoli and carrot (no fruit) but won't eat the actual food. And it seems to be a texture thing. Same thing with fruits. He will eat a banana pouch but not a banana etc. Lately he seems to be doing better but it's still there.
Definitely ask about the SureSteps. Our PT took one look at DS2 and knew he'd need them once he got to the right developmental stage the first time she saw him at 8 months. They weren't cheap but so worth it. Before insurance they were over $1,200 for one pair, but thankfully insurance covered 75%. We're getting his second pair this week. DS2 walked at 18 months, and I'm convinced that if he hadn't had them, it would have been many, many months before he walked without them.
He was also the same way with foods. He would eat pouches and liquids but didn't want to touch anything with texture, even pouches with any texture. It was so bad that we had to have him on Pediasure for about 8 months after he turned 12 months just to make sure he was getting nutrition. And, every meal was horrible with him literally screaming the whole time, such that my older kids were covering their ears between bites. Life has been so much better since he's overcome most of that. I hope your food battles are getting better too.
The unknowns really are the worst. Because of how large her ventricles were R is missing a lot of brain mass and just like everyone else, no one can predict what it will/won't lead to.
Yeah, I don't know if I'll ever get used to hearing "reduced brain volume" or "dead brain tissue." It always blows my mind that neurologists can talk about that stuff like they're ordering a coffee or something.
P's stroke size has recently been upgraded from "medium" to "large." Ugh.
All I can say is try not to think about it because it doesn't really mean anything. I get upset when people talk about how plastic babies' brains are because while yes that is true, what was gone cannot be replaced. BUT it can fill in with fresh new brain that can be utilized, though it won't just happen on its own.
I can't find DD's MRI pre-shunt, but she barely had any tissue on the right side (left side of pic). This is 3 months after placement:
Brie when is P's next MRI? I bet you'll see a big difference! You can see how much DD's changed in just 3 months.
I don't know. We haven't really found a neurologist we want to stick with yet. We saw one a couple of weeks ago, but we didn't click at all and he didn't give us any practical suggestions for his stroke-related care. He basically just tried to weigh in on the cranio issue.
We see his physiatrist, who I really like, next month and I'm hoping he will suggest a neuro and/or a course of action.
Post by longtimenopost on Jul 6, 2015 10:06:44 GMT -5
That's great @kar! We are gearing up for our next set of orthotics. We had some cascades but last fall we went in a whole new direction and quit traditional PT and OT in favor of ABM, which is generally anti-orthotic but allows in some circumstances with caveats. What treatment are you looking at for your DS?
Brie when is P's next MRI? I bet you'll see a big difference! You can see how much DD's changed in just 3 months.
I don't know. We haven't really found a neurologist we want to stick with yet. We saw one a couple of weeks ago, but we didn't click at all and he didn't give us any practical suggestions for his stroke-related care. He basically just tried to weigh in on the cranio issue.
We see his physiatrist, who I really like, next month and I'm hoping he will suggest a neuro and/or a course of action.
Yeah, our neuro knows next to nothing about current treatment for CP. He's honest about it and leaves it up to the specialized professionals. We still see him yearly and the goal is for him to catch other issues we may not be focusing on, like seizure activity.
I don't know. We haven't really found a neurologist we want to stick with yet. We saw one a couple of weeks ago, but we didn't click at all and he didn't give us any practical suggestions for his stroke-related care. He basically just tried to weigh in on the cranio issue.
We see his physiatrist, who I really like, next month and I'm hoping he will suggest a neuro and/or a course of action.
Yeah, our neuro knows next to nothing about current treatment for CP. He's honest about it and leaves it up to the specialized professionals. We still see him yearly and the goal is for him to catch other issues we may not be focusing on, like seizure activity.
P's physiatrist actually has CP himself. It's so awesome.
Post by chickenlittle on Jul 6, 2015 10:59:59 GMT -5
My older son, who just turned 3, has hypotonia and hyperflexibility which is a tough combo. He also wears AFOs to support his ankles and feet which definitely help but he's recently become aware that not all kids have them, so he's been refusing to wear them. He also aged out of EI, but didn't qualify for further services so we're doing private PT through our insurance.
He's also battling a stutter that we are monitoring before pursuing services.
It's becoming more heartbreaking to watch him struggle to keep up with his peers.
Hope it's OK if I come out of lurking and join in here. My son is 16 months old and can't sit indepenently, crawl, stand, etc. We are still trying to figure out why. He was diagnosed with hypotonia and gross motor delay at 8 months. Started PT and OT, which he still gets twice a week through our state early interevntion program. Around 12 months, they added hypertonia to the mix - he seems to have hypotonia in his core and hypertonia is in arms and legs, which makes for a tough combination.
For example, when we place him in a seated position, his legs immediately stiffen up but he falls forward. If we pull his legs in so his feet are touching, he either falls forward or falls to the side. Likewise, if he reaches out for something, he stiffens his arm, reaches out to the side and then comes forward with his elbow locked. Once he grabs the object he wants, we have to remind him to bend his arm and you see the determination but it takes a few seconds for the signal to get to the muscles and bend. His hands are almost always fisted and the more tired he gets, the more he folds them in torwards his chest.
He doesn't have words yet, but has been babbling a ton lately. He knows who everyone is (if we ask where Dada is, he turns to look at him right away but he doesn't look at him and say da da). He is such a bright, funny little boy, and I focus on the fact that he is happy and loved and doesn't know that he's different yet. It's harder for us than it is for him, although as he's getting older he gets frustrated easily. I was doing really well for a while, and then Friday we spent time with friends of ours who had a baby 3 months after we had Jack, and when they left I lost it - I cried harder than I have cried in a long time. When we are alone with him it's easy to focus on all the amazing things he's accomplished. When he's next to other kids his age, it's glaringly obvious how far he still has to go.
We are still trying to figure out what happened/what is happening. As far as we know, he did not have a stroke in utero. There's no brain damange or abnormalities that we can see on the MRI. He had a spinal tap in May to test for metabolic issues, particularly Dopa Responsive Dystonia but we haven't gotten those results yet. Part of me is anxious for a diagnosis, and yet my stomach drops every time the phone rings. I'm terrified that it will be something that will get worse over time, but I'm trying not to borrow trouble.
While I hate that anyone has to experience the ups and downs of being a special needs moms, it's nice to know I'm not alone.
Post by longtimenopost on Jul 6, 2015 11:21:54 GMT -5
hugs puplove214. You can see in my post DD didn't sit independently until 18 months, has never crawled, and stood at 27 months. She is 2.5 and has never stood independently or attempted to cruise. Being around other kids is hard. Thankfully, no one locally in my family has young children but friends do, and when my BFF's 12 month old came over last week and could do more than her it really hurt my heart. I can understand being anxious for a diagnosis even if it won't change your course of action.
Brie I completely agree about the neurologists. We're still using the attending that saw R as an inpatient when the seizures started and while I don't love his personality I do like that he has been involved since the start, so we're sticking with him for now. This is just anecdotal and I'm sure not true across the board by any means, but our PICU nurses told us most of the neurologists are sort of weird.
P's school sounds like it will be amazing! I'm not aware of anything like that here. Does P get both PT and OT? I'm not quite clear on the difference between the two.
Brie I completely agree about the neurologists. We're still using the attending that saw R as an inpatient when the seizures started and while I don't love his personality I do like that he has been involved since the start, so we're sticking with him for now. This is just anecdotal and I'm sure not true across the board by any means, but our PICU nurses told us most of the neurologists are sort of weird.
P's school sounds like it will be amazing! I'm not aware of anything like that here. Does P get both PT and OT? I'm not quite clear on the difference between the two.
He does, right now he qualifies for weekly PT and monthly OT. We supplement with PT and OT through the children's hospital every 6 weeks as well just to have a second opinion and more ideas on how to work with him.
As I understand it, PT is more gross motor stuff (sitting, crawling, walking) whereas OT is more fine motor stuff and practical skills like eating. For now, he doesn't really need as much OT because babies don't do a ton of fine motor skills until they're a bit older, but it will become more important as he grows. There is a lot of overlap though.
It's so hard to coordinate physicians, even in the same system. I feel like we SHOULD have a neuro as his primary doctor, but the physiatrist/rehab med doctor is so great I'm tempted to stick with him for most of our stroke-related concerns.
Post by liveintheville on Jul 6, 2015 13:44:15 GMT -5
Aw thanks for thinking of me. We're hanging in there. Still trying to get services like an FBA. Which is required by MA but our insurance claims they don't have to follow state law since they're federal. I feel like banging my head against a wall at times.
We're totally torn on which kindergarten class. And integrated class with 1/2 on IEPS and 1/2 not with smaller class size or just go inclusion. I want to go inclusion. But we're waitlisted for it.
Getting L to a child psych to discuss drugs for his adhd. Whether to use them or not and what our options are. Unfortunately we're waiting about a year to see a developmental pediatrician. Thus the child psych.
On the plus side camp started today! Both kids are gone 8:30-4:45p! We were too late to get into a special autism camp, so he's going to our local rec center camp. They're aware of his special needs and have no problem taking him and assigning him special help, which is great.