Update (good) in OP: I will be leaving here (bad news)

[starryfish]

I mentioned I got a biopsy done, well the results are not good. I have a super rare disease and it's dangerous for me to get PG right now. There is a possibility that I will never be able to get PG bc it could worsen my disease. I find out more at my appt Thursday. I am devastated that I might not ever have a bio child but am ok with adoption.
It's just so much to take in right now ;-(

Update:

When this all first started I scheduled an appt with the best kidney doctor in my city but it wasn't until 6 weeks from now. I called earlier this week and the stars aligned and they fit me in this morning. So I got my second opinion (from the best guy in town who is VERY in the know about this disease) this morning. He gave me a MUCH better prognosis than my original doctor. He thinks he can get me through a healthy (although high risk) pregnancy. My kidney numbers have improved over the last couple of months due to some good healthy decisions I have made (that resulted from trying to get PG) and so his course of treatment is much better and not as invasive for now. It might get more invasive in the future (if my numbers decline because my disease goes through remission phases, so we are not sure if I am going through that now).

But bottom line is that he wants me to make some more serious life changes (super low sodium diet, low protein, etc) to help increase my chances of keeping my kidneys working to their best ability. So for now the news is SO much better, we can try to get PG, and if I worsen, we will deal with that when it happens.

Thank you all SO much for your support. This has been the toughest week of my life, but I am SO much more at peace now with my health. So I will be sticking around here as long as my body cooperates and hopefully I can have a healthy PG sometime soon!

[Deleted]

I'm so sorry starryfish.

[awick14]

Oh no starryfish. I am so sorry! ((Hugs))

[rt2008]

I'm so sorry

[HoneySpider]

((starryfish)) I am so sorry

[kellikans]

I am so sorry. Huge hugs to you starryfish.

[sterl724]

I'm so sorry.

[belle55]

I'm so sorry. (Hugs)

[raangoli]

I am so sorry, starry. I hope that your appointment on Thursday gives you some better news. You are in my thoughts.  (hug2)

[grace]

Oh no, I'm so sorry.

[callmehales]

i am so sorry!

[konapoppy]

I am so sorry to hear this. Hopefully Thursday will allow you to make a plan moving forward that you and your H can be excited about. Hugs.

[starburst604]

I'm so sorry to read this Starry.

[Mushe]

Oh my goodness, I am so sorry to hear this, starryfish. I hope you get better news at the follow up and in the future.

[elleblue]

I'm so sorry starryfish.

[Deleted]

Oh man, how awful. I'm terribly sorry.

[macmars45]

I'm so sorry. (Hug)

[knx9211]

I am so very sorry

[boiler717]

I'm so sorry, thinking of you

[awick14]

Thinking about your today starryfish. I hope your appointment today goes better then you think it will.

[oneslybookworm]

OMG, I am so sorry to hear this. HUGS lady

[mpc]

HUGS. so sorry about this news.

[konapoppy]

Great update! Glad you have a positive path forward and a doctor on your side.

[raangoli]

What a great update. I hope your body cooperates in all aspects - kidney and otherwise.

[grace]

This is so scary. I'm glad you went to get a second opinion and that things are looking up!

[Deleted]

Great update!

[knx9211]

Great update!! Glad to see it.

[autumnfire]

So happy to hear your update. All the best hun!

[ouokie]

I'm sorry about the health stuff going on right now, but I'm so happy that you got a second opinion. Lots of hugs for you I can't imagine the emotional rollercoaster you were on this week.

[awick14]

Just catching up on your update and I have to say that I cried reading it. I am so happy for you. It sounds like you have a great doctor and I am so glad you got a second opinion. FX that things continue to get better for you.