I'm back in the ER - 15-hour headache

[toepick]

Previous post: pandce.proboards.com/thread/472934/spent-last-15-hours-er

I'm back in the ER. 2nd time in a week. I have now had 4 "worst headaches of my life" in 10 days.

In the midst of a 15-hour headache. I had no idea you could even have a headache that long. I did not sleep for one minute last night. My doctor couldn't control for pain and frankly is so concerned that she wants more imaging.

I had a CT and a lumbar puncture last time and they were clear. I think they want to do an MRI now. Starting to freak out about brain tumors. Trying to decide if I wned someone to come sit with me. I have already imposed so Much on people.

[Deleted]

I am so sorry, I hope you are on the mend soon. And reply on the people around you, you aren't imposing.
((hugs))

[Deleted]

I hope this is something that isn't serious and easily treated. I would absolutely lean on your support system. This is important stuff.

[ginger]

They want to be there. Promise.

Good thoughts and prayers.

[nahoku]

I'm so sorry. I hope you get some relief and some answers soon.

[FastHands]

Ugh I am so sorry. Don't hesitate to reach out to those closest to you. It's a cheesy song, but it's true -- they'll need someone to lean on at some point, and I'm sure you are always there for others.

[calle28]

I hope they find out the cause.

I say you should rely and lean on your loved ones.

[JayhawkGirl]

Call someone. I'd be so upset if someone I cared about was at the hospital alone. You're not imposing. I promise.

I hope you get some answers and that they're easily treated ones at that.

[lilafowler]

I'm so sorry-please don't go through this alone.

[balletofangels]

Did they get an opening pressure with your lumbar puncture?

[toepick]

Aug 31, 2015 9:33:15 GMT -5 balletofangels said:

Did they get an opening pressure with your lumbar puncture?

I have absolutely no idea. Presumably?

[alicenelson]

I am so sorry, Toepick.  Please do not hesitate to call a friend to be with you.  I hope you feel better soon and, more importantly, that they find out what's causing the headaches.

[balletofangels]

Aug 31, 2015 9:33:56 GMT -5 toepick said:

Aug 31, 2015 9:33:15 GMT -5 balletofangels said:

Did they get an opening pressure with your lumbar puncture?

I have absolutely no idea. Presumably?

They don't always if they are only looking for meningitis. I have idiopathic intracranial hypertension ie. too much spinal fluid.

Symptoms to look for:
1. ICP over 20 with Lumbar Puncture
2. Worst headache ever
3. Blurry vision
4. Swooshy noises in your ears
5. Nausea

I hope it is a quick fix and you feel better soon!

[toepick]

Aug 31, 2015 9:38:15 GMT -5 balletofangels said:

Aug 31, 2015 9:33:56 GMT -5 toepick said:

I have absolutely no idea. Presumably?

They don't always if they are only looking for meningitis. I have idiopathic intracranial hypertension ie. too much spinal fluid.

Symptoms to look for:
1. ICP over 20 with Lumbar Puncture
2. Worst headache ever
3. Blurry vision
4. Swooshy noises in your ears
5. Nausea

I hope it is a quick fix and you feel better soon!

My vision is fine and I have no ear noises. Basically feel 100% fine except for worst headache of my life and nausea

[whiskeyandwine]

I'm so sorry. I agree w the others - call somebody. I would want to be with you if I was your friend. Hugs and healing vibes.

[onesweetworld]

Sorry if this has been mentioned but have they checked for meningitis? My coworker got it last summer and it went undiagnosed despite multi-hospital visits. What you're describing sounds like her experience.

[flex]

(((hugs))) I hope they figure out what the heck is going on. (((more hugs)))

[keyslover]

I am not sure of your medical history, but before DH was diagnosed with Lyme he has horrible headaches and he ended up in the ER a handful of times.
They did a CT, Lumbar puncture and MRI. The only thing that showed up was white spots on his MRI.

Good luck and I wish you relief soon.

[Eagles]

I'm so sorry. Please call someone to be with you. If it helps, I have horrible migraines and what my neurologist calls a "textbook perfect" brain, structurally (I had an MRI/MRA) so I hope your brain is also perfect.

[lovelyshoes]

Sending good thoughts and prayers to you. I hope they figure out what's going on soon.

[pumpkin]

Thinking of you and hope you have some answers soon

[Deleted]

I'm so sorry, hope you have answers and feel better soon!

[LoveTrains]

Aug 31, 2015 9:38:15 GMT -5 balletofangels said:

Aug 31, 2015 9:33:56 GMT -5 toepick said:

I have absolutely no idea. Presumably?

They don't always if they are only looking for meningitis. I have idiopathic intracranial hypertension ie. too much spinal fluid.

Symptoms to look for:
1. ICP over 20 with Lumbar Puncture
2. Worst headache ever
3. Blurry vision
4. Swooshy noises in your ears
5. Nausea

I hope it is a quick fix and you feel better soon!

I have this too and it was my first thought to ask about the opening pressure on the LP! Good luck and I hope you feel better soon. The other possibility is that you have a spinal headache from the LP.

[LoveTrains]

Aug 31, 2015 9:39:23 GMT -5 toepick said:

Aug 31, 2015 9:38:15 GMT -5 balletofangels said:

They don't always if they are only looking for meningitis. I have idiopathic intracranial hypertension ie. too much spinal fluid.

Symptoms to look for:
1. ICP over 20 with Lumbar Puncture
2. Worst headache ever
3. Blurry vision
4. Swooshy noises in your ears
5. Nausea

I hope it is a quick fix and you feel better soon!

My vision is fine and I have no ear noises. Basically feel 100% fine except for worst headache of my life and nausea

That's how I presented with intracranial hypertension - just nausea and headache but also papillodema identified by my optometrist.

[dove]

Hang in there!
Fwiw - i never had headaches prior to my brain tumor discovery. Just a random seizure. Which from what I was told is usually the most common symptom that leads to discovery.
I know it's hard to not think of worst case scenarios.

[toepick]

They are redoing the CT scan, lumbar puncture (ugh) and then doing an MRI. Guess they really think brain bleed.

[rosiebear]

Oh you poor thing! I hope you get answers and relief soon!

[WOT?*]

I hope they figure it out soon and it's an easy fix.
While we are "here" to support you, please call someone to sit with you and walk you through it so you're not at the hospital alone. They will want to be there. Trust.

[keyslover]

Aug 31, 2015 9:05:35 GMT -5 toepick said:

Previous post: pandce.proboards.com/thread/472934/spent-last-15-hours-er

I'm back in the ER. 2nd time in a week. I have now had 4 "worst headaches of my life" in 10 days.

In the midst of a 15-hour headache. I had no idea you could even have a headache that long. I did not sleep for one minute last night. My doctor couldn't control for pain and frankly is so concerned that she wants more imaging.

I had a CT and a lumbar puncture last time and they were clear. I think they want to do an MRI now. Starting to freak out about brain tumors. Trying to decide if I wned someone to come sit with me. I have already imposed so Much on people.

STOP!  If you have a good support system, they will not think you have imposed too much on them.  They want to help.  Do not make decisions for them. Ask them to be with you. If they are good people, they will come hang out with you.

I really do hope you get relief.  Do not hesitate to ask for help.

[meganew]

Tons of hugs and support your way. Please call someone- your loved ones want to be there with you.