I'm so sorry. DH had his first seizure at 30. He was on meds for a couple years then his neuro took him off them because he thought it was a one time thing. He had a seizure 2 years ago ( at 35) and is now diagnosed with epilepsy and on meds forever. It's a hard adjustment (and the no driving sucks) but hopefully you will respond well to meds with little to no side effects. DH has been on keppra but I'm not sure what class it is vs pregnancy/ivf
I'm sorry. I really hope that the MRI and EEG give you better answers.
FWIW, it's not been that big of a deal for me to cross check drugs between my OB and my neuro. My neuro is actually pretty good with what my drug options are as a TTC/pregnant/lactating woman but it really hasn't been that big of a deal for me to call my OB or M's pedi with a question about a proposed drug. Just make sure you are really open with all docs about everything.
I'm so sorry. I hope you get the best answers possible, whatever those are. Can you ask your doc for some anti nausea meds? I'm on promethazine and I have lorazepam, but I understand that's a lot stronger (maybe not good for IVF)
Not a doctor of course but doesn't it seem a little premature to call it epilepsy before testing? Our friends daughter had to go through exhaustive testing before they finally concluded it wasn't epilepsy. I hope this doctor isn't needlessly scaring you.
Whatever it is, I wish you the very best. You have quite a bit on your plate right now. ((((Hugs))))
I'm sorry. My son's preschool teacher had an unexplained seizure too. She too couldnt' drive for 3 mos but then was cleared to drive again as she didn't have another seizure. I hope the same holds true for you.
I'm sorry. That really sucks! I'm glad your doctor is being proactive though. As scary as this is, having a neurologist who isn't proactive is seriously the pits. I hope that the 3 months goes by quickly, and that all of the tests bring good news.
Not a doctor of course but doesn't it seem a little premature to call it epilepsy before testing? Our friends daughter had to go through exhaustive testing before they finally concluded it wasn't epilepsy. I hope this doctor isn't needlessly scaring you.
Whatever it is, I wish you the very best. You have quite a bit on your plate right now. ((((Hugs))))
According to him, it's not normal that I get nauseous if I drive by trees and the light flashes through them. He seemed to think that was a very bad indicator. At the beginning of our conversation he said, "Well, sometimes seizures just happen, but then they never happen again." Then H told him that flashing lights make me sick and he said, "Oh, well... Never mind."
I was looking at epilepsy.com's list of triggers, and on that day, several had come together. I had started my period (hormonal changes in general and the start of your period are listed, and I had just stopped taking my IM progesterone injections, which I suppose counts as a hormonal change), I was under a lot of stress (third failed IVF), I had consumed an unusual amount of alcohol for myself the night before, I hadn't slept, and I was dehydrated. In retrospect, I wasn't quite myself on Friday. While driving home in the middle of the day, I had to cover my side view mirror at a red light, since the turn signal of the car behind me was reflecting in it and making me feel sick. Normally that's only an issue at night. So, I'm hoping that even if the EEG comes back saying that I have epilepsy, there will be something to my theory that this happened only because all of these possible triggers came together to create the right environment for a seizure to happen. Maybe knowing that, I can do things to make future seizures less likely, by not drinking at the start of my period, or staying hydrated and sleeping, for example.
I just popped in to see if you updated. I'm glad to see that you and the doctor are following up. The strobing was what caught my eye as well, as it was a trigger for XH. If there is ever anything you want to talk about (I haven't had seizures but dealt with XH when he had his first at 25 and for many years afterward) feel free to PM me. Or there are a couple other ladies here that are dealing with it as well and I'm sure they would talk with you as well.
I want to add that I get nauseated and get migraines if I'm around strobing or flashing lights. I can deal with police lights if I'm passing them quickly, but it's unpleasant. Light through trees while driving makes me dizzy. It's very hard for me to drive at night in rain due to the reflection of the lights on the road. Strobing lights occasionally make me feel like I'm going to pass out.
My sister is the same way. Neither of us has ever had a seizure, though. I've brought it up with a GP, who believes it's an eye issue (I can't remember the name...something with light refraction) rather than a neuro issue.
I want to add that I get nauseated and get migraines if I'm around strobing or flashing lights. I can deal with police lights if I'm passing them quickly, but it's unpleasant. Light through trees while driving makes me dizzy. It's very hard for me to drive at night in rain due to the reflection of the lights on the road. Strobing lights occasionally make me feel like I'm going to pass out.
My sister is the same way. Neither of us has ever had a seizure, though. I've brought it up with a GP, who believes it's an eye issue (I can't remember the name...something with light refraction) rather than a neuro issue.
I have similar reactions too, and sometimes my vision sort of blacks out for like a millisecond when passing by trees on a sunny day or when I see strobe lights. I've been told it's a vision thing too. I've only had febrile seizures as an infant, which I guess is not uncommon.
I'm sorry about your diagnosis, but I'm really glad you're on the road to finding out if that's the true diagnosis and getting treated. I'm really also glad no harm came to you in the finding-out, and here's hoping your doc can help with the IF stuff, too.
Post by bernergirl on Sept 16, 2015 12:36:06 GMT -5
Hugs... And following this as my PCP just referred me to a neuro for some unexplained loss of consciousness that she suspects may have been a seizure. I have had a few "episodes" of the aura part for several years, maybe once or at most twice a year. The last one before this most recent one was over 18 months ago (I did not lose consciousness). This one I did
Hugs... And following this as my PCP just referred me to a neuro for some unexplained loss of consciousness that she suspects may have been a seizure. I have had a few "episodes" of the aura part for several years, maybe once or at most twice a year. The last one before this most recent one was over 18 months ago (I did not lose consciousness). This one I did
I'm sorry. I didn't have anything like an aura, as far as I know.
Post by Scout'sHonor on Sept 30, 2015 10:25:42 GMT -5
I'm sorry, it's not what you were hoping, but it sounds like the doctors will get it under control. If you were closer, I'd say you could visit my SIL, she specializes in epilepsy here in CO. If you like dogs, maybe you can get a seizure-detecting dog
I am glad that you have an answer and can go forward with a treatment plan, but I'm particularly sorry that it complicates the TTC part. Hugs.
Thanks. That's the part that I'm most upset about, too. TTC was already more than complicated enough! And so of course I spent all day yesterday on my local adoption agency's website, beating myself up over not getting onto an adoption waiting list years ago, because now I think that may end up being the way for us to become parents. Maybe I'm overreacting, but who knows. Domestic adoptions are just so complicated, and so many fall through. (And I'm not saying that's a bad thing, I'm just saying that's a hard thing to deal with. I'm very glad that we don't still live in a time when pregnant teens are shamed into giving up their babies, even if they want to keep them.) The current wait time for a healthy infant from China is 8+ years. We are already six years into TTC. If I had actually gone to an RE right away, like my GYN suggested, maybe I would have figured this out sooner and we'd already be 4 years into that waiting list.