Post by wanderlustmom on Nov 11, 2020 21:08:02 GMT -5
I will be thinking of you all! My friend's husband had the exact same thing, seizure, brain tumor. In his 40s, otherwise healthy. Five years past surgery and he's completely fine. He was well weeks after his surgery too. She said she realized how common this can be
Post by mountaingirl on Nov 11, 2020 21:18:34 GMT -5
I’m so sorry to hear this. It sounds like you have a great support system around you. I will be thinking about your family. I hope it is relatively “easy” to deal with so you can get on with life. Sending love
My best friend's dad had a benign brain tumor when we were in seventh grade. I remember his surgery lasted for something incredible like 20 hours, due to the tumor's size and location. He was fine when all was said and done. His speech and balance were affected and weren't great for a bit after the procedure, but both improved with time; the only thing he did pre-tumor that he never returned to, was riding a motorcycle. He walked with a very slight wobble and just couldn't trust his balance to ride a Harley again.
I am thinking of you both and sending you strength.
Post by maudefindlay on Nov 11, 2020 21:34:13 GMT -5
You have been through a lot this year. I'm glad you have supports. A friend had a slow growing tumor removed. He has impaired vision and can no longer drive. Other than that he is healthy and independent.
I will be thinking of you all! My friend's husband had the exact same thing, seizure, brain tumor. In his 40s, otherwise healthy. Five years past surgery and he's completely fine. He was well weeks after his surgery too. She said she realized how common this can be
Yes! He’s completely healthy, 39. Thank you for sharing! I’m trying to remember that brain surgery happens all the time, but it’s hard.
I'm so sorry. I know the trauma of repeat medical traumas and I wouldn't wish that mental load on anyone.
I do hope that you have a great team in place for your husband and it sounds like they are. Thinking nothing but positive thoughts for you and your family.
Thank you. Yes. He was taken to the same hospital I and the baby were in earlier this year. I had to fight off an anxiety attack walking through the doors again.
I will be thinking of you all! My friend's husband had the exact same thing, seizure, brain tumor. In his 40s, otherwise healthy. Five years past surgery and he's completely fine. He was well weeks after his surgery too. She said she realized how common this can be
Yes! He’s completely healthy, 39. Thank you for sharing! I’m trying to remember that brain surgery happens all the time, but it’s hard.
Of course, I'd be so upset too, but I've heard so many positive outcomes
My grandfather had a brain tumor and one my grandmother found a lot of support from her local brain tumor foundation. I imagine there is a local foundation in your area that could provide help. Additionally, braintumor.org is a helpful resource.
DD had brain tumors and seizures were our first warning sign- her first resection was at just under age 3 and the second was at 4. Both times went incredibly smoothly. The NS originally told us she’d be home in less than a week and I thought he was a liar. Surgery was Wednesday (Thursday? I always find it weird when I forget details about something so huge!), she was home Sunday. Second time she was home Saturday.
You can get a second opinion if you have questions or concerns - we did before the second surgery. Write down all your concerns and always go to appointments as a team. It’s information overload in a scary time.
DD had brain tumors and seizures were our first warning sign- her first resection was at just under age 3 and the second was at 4. Both times went incredibly smoothly. The NS originally told us she’d be home in less than a week and I thought he was a liar. Surgery was Wednesday (Thursday? I always find it weird when I forget details about something so huge!), she was home Sunday. Second time she was home Saturday.
You can get a second opinion if you have questions or concerns - we did before the second surgery. Write down all your concerns and always go to appointments as a team. It’s information overload in a scary time.
Wishing you the best.
I’m sorry you went through that but I’m glad she’s doing well. Thank you for sharing. ((Hugs))
Right temporal lobe The neurosurgeon said it’s in the spot they look first when someone has a sudden seizure. So they found it right away on the MRI.
He said as far as brain “real estate” it’s in a “good” spot. 🤷🏻♀️
I'm sorry to hear about your H. I spend many years of my career as a neuro onc nurse ( pets, though) and benign frontal tumors are one of the *best kind. I hope your H has a smooth resection and doesn't require much follow up treatment.
Reach out to the social work team at the hospital if they haven't spoke to you yet. They will have a lot of resources that you can utilize that can help your H and you navigate the emotional component of the diagnosis.
I'm so sorry. If it helps to hear, my MIL had a brain tumor removed when she was 16 (in 1968!) and had no lingering issues. At age 67, they found another brain tumor and it too was removed and she has made a miraculous recovery. Also, my husband had a cancerous tumor removed in August, so during COVID lockdown, and while it was tough not being able to be with him at his appointments and everything was more complicated/scary, surgery went perfectly and we feel he received very good care and a safe hospital experience.
I am so sorry this happened to you. It must have been terrifying.
No personal experience, but lots of professional experience working with neuro-oncology patients who were ill enough to require acute rehab (where you live at the rehab facility to receive 24/7 medical attention and receive 3+ hours of multidisciplinary therapy every day) either during or after treatments (most commonly surgery or radiation). This means I didn’t even see the people who were well enough to go directly home after treatment.
I’ve had some patients do very very well following treatment and intensive therapy, specifically with low grade, slow growing tumors. Like — come back to my office 6 months later and tell me how they’re killing it at work, closer than ever with their partners etc etc.
A lot will depend on the tumor grade, location, and viable treatment options. It is not an easy road ahead, and there will likely be bumps, but with the right team and a lot of support, this can be doable.
I don't have any personal experience with this, but I know a fairly wide variety of people who have had brain tumors and most of them have done really well. I think that if the doctors think it should be easy to remove, that's a really, really good sign. Hopefully this is just one of those stupid medical things that you can deal with and move on from forever. I can completely understand the stress, though, and wish you didn't have to go through this!