Post by pinkdutchtulips on Dec 2, 2022 13:48:22 GMT -5
Now that the assessments and evals (from the district) are over, we had our final IEP meeting in which yes .. she DOES have a specified learning disability, Inattention. Her attention span on a 'good' day is 5mins. The ripple effect of that inattention runs through everything. I have an appt scheduled for Miss R for late Jan (or possibly sooner bc I'm on the cancellation list) so we can have it confirmed by a MD and get meds started. I'm leaning towards Vvanyse (sp) since we do have a binge eating disorder involved.
One aspect of her IEP is 2x month counseling appts through the district. Thankfully she likes her therapist but I found out that her teacher didn't let her out of class to attend her counseling session . It's PE, it was pouring rain .... let her out of class. Now I get to add hyper vigilance to her IEP to the list of things. If these weren't mandated in her IEP, I wouldn't be so upset. However, they ARE mandated in her IEP and those things are non-negotiable.
Update *** we got an appt for early January .. thank you cancellation list !!
@kar, thanks. We did OT previously for executive functioning. Doing interoception work would be very helpful.
Do you have recommendations for period underwear? I get overwhelmed when I look for them. I thought it might help them feel more secure when leaks do occur. At least they wouldn't be sitting in the wet that also causes issues.
pinkdutchtulips, I'm glad to hear you've made some progress. Small steps are still good.
FWIW, I LOVED Vyvanse. Like, seriously life changing for me. I only stopped it because it impacted my sleep and the lowest dose still seemed too high. I also have binge eating issues and lost quite a bit of weight on it. Our insurance didn't cover it, but Vyvanse always has coupons on their website. Adderall is cheaper, but not quite as effective for us.
I have a question. I’m not sure when to tell my DS about his ASD diagnosis. He’s 7 and in 2nd grade, but has the maturity of a 5 year old.
Does anyone have any ideas on when and how?
I think I first told my DD1 around age 5, but IME, this may not be a "reveal" or "moment" that rocks their world or that they carry with them -- so don't stress about it too much. I very much overthought it, had a heartfelt-but-simplified talk with DD1 about it ... and she promptly forgot that I'd said anything at all to her about the subject, lol. I put so much effort into pre-thinking that conversation, but any one particular moment totally rolled off her -- it was the kind of thing that was better integrated into multiple conversations over years as she grew up, and real-world examples of, "Oh, well, you are probably having a hard time with X because you have autism so your brain works differently, so we are going to try Y to help you figure X out!" and then answering any specific questions.
My DS sounds precisely like your DD. A lot of times he doesn’t focus on what we’re talking about, so we more or less integrate ideas throughout times.
Post by mysteriouswife on Dec 2, 2022 15:29:55 GMT -5
I’m feeling more confident after speaking to the speech therapist at DS school. He will get an IEP that will replace the 504. In a way I’m excited we finally are moving in the right direction. At the same time I’m nervous. Since there are only 8 days left before break it will be Jan when he gets the evaluations.
I’m feeling more confident after speaking to the speech therapist at DS school. He will get an IEP that will replace the 504. In a way I’m excited we finally are moving in the right direction. At the same time I’m nervous. Since there are only 8 days left before break it will be Jan when he gets the evaluations.
Miss R had her eval started at the end of the school year last year (21-22) and it wrapped up in the beginning months of this year (22-23). It was nerve wracking having it straddle summer break. I touched base with the district to make sure everything was on track for completion when the district offices re-opened in August.
I’m feeling more confident after speaking to the speech therapist at DS school. He will get an IEP that will replace the 504. In a way I’m excited we finally are moving in the right direction. At the same time I’m nervous. Since there are only 8 days left before break it will be Jan when he gets the evaluations.
Miss R had her eval started at the end of the school year last year (21-22) and it wrapped up in the beginning months of this year (22-23). It was nerve wracking having it straddle summer break. I touched base with the district to make sure everything was on track for completion when the district offices re-opened in August.
I hope getting the IEP will open more opportunities for him. I have a feeling as the years progress he will get an official ASD. It’s so hard being in the limbo stages. He’s aged out for a lot of stuff with our insurance. this is hard AF
DS1, J, has diagnosed ADHD and anxiety. I am waiting on consent from the school to do his IEP re-eval early because his behavior at school is so bad. It will include functional behavior assessment, dyslexia screening, ASD screening, cognitive testing, etc. I think it's going to take a while to get it all done. In the meantime, today I got two emails and a phone call about his behavior when I'm already doing everything I can. It's frustrating, to say the least. He doesn't have the social pieces of ASD, but he has a lot of the other symptoms so I guess we'll see.
My 11 year old son has been diagnosed with ADHD since he was six. I would say he has a more severe presentation. He just got a school evaluation for an IEP (only qualified for a 504 in the past) and they diagnosed him with “Educational Autism” based on surveys from myself and his teachers. My son was evaluated for autism by a developmental pediatrician at age 6 and did not qualify. We still see the developmental pediatrician regularly for his ADHD medication. Do you think it is worth doing another medical autism assessment? I sort of doubt he would qualify under the medical criteria, but he is definitely in a lot of the ADHD / Autism overlap categories…. Is there a strong benefit to a medical diagnosis? It sort of feels like at this point, we know our son and his strengths and struggles so the exact label is less important?
vamoose I would ask if they think a reassessment would change anything. It probably depends on why he didn't meet the criteria before. I think there was one part of the diagnosis that required there to be symptoms at a young age, but that wouldn't have changed since the previous assessment. If you think that could be the right diagnosis having the label can be helpful. For my kid the diagnosis unlocked additional insurance coverage for therapies and was helpful for my friend to get her kid access to other resources as well. People (police, social workers, etc that we have unfortunately had to deal with) seem to take it more seriously that "just" adhd.
PennyCandy Do you have a meeting scheduled? I was amazed how fast my kids reevaluation tests got done once there was a meeting date on the books. I hope they get it done soon and stop stressing you with pointless calls.
PennyCandy Do you have a meeting scheduled? I was amazed how fast my kids reevaluation tests got done once there was a meeting date on the books. I hope they get it done soon and stop stressing you with pointless calls.
Another thing you may find helpful, if you do enough googling you can find the state iep procedural manual. I found it a when dd was in 3rd grade and printed a copy. It allows you to see the checklists for the criteria of each iep category and the rules the school is supposed to follow for setting meetings and stuff. When my dd got her asd diagnosis in 4th grade I could see she wouldn't meet the requirements of that category so I didn't spend time pushing for it and kept her under SED.
PennyCandy Do you have a meeting scheduled? I was amazed how fast my kids reevaluation tests got done once there was a meeting date on the books. I hope they get it done soon and stop stressing you with pointless calls.
Another thing you may find helpful, if you do enough googling you can find the state iep procedural manual. I found it a when dd was in 3rd grade and printed a copy. It allows you to see the checklists for the criteria of each iep category and the rules the school is supposed to follow for setting meetings and stuff. When my dd got her asd diagnosis in 4th grade I could see she wouldn't meet the requirements of that category so I didn't spend time pushing for it and kept her under SED.
Meeting isn't scheduled yet. I'm still waiting on the consent to come home.
@kar , thanks. We did OT previously for executive functioning. Doing interoception work would be very helpful.
Do you have recommendations for period underwear? I get overwhelmed when I look for them. I thought it might help them feel more secure when leaks do occur. At least they wouldn't be sitting in the wet that also causes issues.
L really like's thinx BTWN Shortys. I learned the hard way to order directly from thinx because even though the ones on Amazon are sold by thinx and say shorty style - they are not.
pinkdutchtulips , I'm glad to hear you've made some progress. Small steps are still good.
FWIW, I LOVED Vyvanse. Like, seriously life changing for me. I only stopped it because it impacted my sleep and the lowest dose still seemed too high. I also have binge eating issues and lost quite a bit of weight on it. Our insurance didn't cover it, but Vyvanse always has coupons on their website. Adderall is cheaper, but not quite as effective for us.
I'm hoping my insurance covers it *fingers crossed* ... what kind of sleep issues did you have? She has trouble falling asleep and melatonin use is hit or miss. I figure this is the one pill that might solve a multitude of issues w/o having her take a whole drug cocktail daily.
Thank you for confirming what I suspected, that it will pull the double duty i need it too.
pinkdutchtulips , I'm glad to hear you've made some progress. Small steps are still good.
FWIW, I LOVED Vyvanse. Like, seriously life changing for me. I only stopped it because it impacted my sleep and the lowest dose still seemed too high. I also have binge eating issues and lost quite a bit of weight on it. Our insurance didn't cover it, but Vyvanse always has coupons on their website. Adderall is cheaper, but not quite as effective for us.
I'm hoping my insurance covers it *fingers crossed* ... what kind of sleep issues did you have? She has trouble falling asleep and melatonin use is hit or miss. I figure this is the one pill that might solve a multitude of issues w/o having her take a whole drug cocktail daily.
Thank you for confirming what I suspected, that it will pull the double duty i need it too.
I had difficulty falling asleep before 1 a.m., even if I took Unisom or anything. My sleep was fitful and felt like when my anxiety is high. I've had similar issues with all stimulant medications and caffiene. It was hard, a constant weighing of pros and cons. I'm currently unmedicated again because the sleep issues also cause lack of focus and I have a history of sleep anxiety. Well, not unmedicated...self-medicating with caffiene. Like I did for the first 40 years of my life.
We are pursuing private schools that work with 2E kids since public isn’t working the process is so stressful and we don’t find out until March 10th if he was admitted!
jg183 or anyone else with a kid with a DMDD diagnosis- I have a couple questions. They have just changed DS diagnosis to this- not sure if it fits, but other diagnosis don't quite seem to fit either...
does your child display behaviors across multiple settings (home, school, etc.)?
does your child display pre-mediated destructive behavior (not just while angry)?
my son now has behaviors at school and at home but not at soccer still (thankfully) he is currently in a stable streak the longest we've had but no most of his destructive behaviors are not premeditated, I thought that would be more ODD. Do you want to reach out to talk more about the dmdd have you looked at the rmdd website? it has changed our life
Does anyone have recommendations for Executive Functioning? Is that done through OT or regular counseling? He is receiving OT at school, but all she does is concentrate on writing. She doesn't even discuss where on the paper to actually write on, and she doesn't address any organization either. We had to do that at home.
yourmother we told Ds1 when he was diagnosed at 8yo. We described testing as “a way for us to find out how your brain works differently than others” . Then described the dx as a brain difference just like people have external differences.
Does anyone have recommendations for Executive Functioning? Is that done through OT or regular counseling? He is receiving OT at school, but all she does is concentrate on writing. She doesn't even discuss where on the paper to actually write on, and she doesn't address any organization either. We had to do that at home.
Does anyone have recommendations for Executive Functioning? Is that done through OT or regular counseling? He is receiving OT at school, but all she does is concentrate on writing. She doesn't even discuss where on the paper to actually write on, and she doesn't address any organization either. We had to do that at home.
We also did OT almost exclusively for executive functioning. I know there are legit executive functioning coaches out there. At least in our area, I know of a few that are OTs or education professionals that left teaching/counseling.
Does anyone have recommendations for Executive Functioning? Is that done through OT or regular counseling? He is receiving OT at school, but all she does is concentrate on writing. She doesn't even discuss where on the paper to actually write on, and she doesn't address any organization either. We had to do that at home.
executive functioning can fall under private OT (not school), sometimes an IEP, private counseling. Thats normal for OT to not cover anything but writing mechanics in school OT... it's ridiculous what the limitations are
DS has ADHD/ASD and is going to start ABA therapy/OT tomorrow. We have been trying to get him started since August. Of course we just upped his Prozac and Guanfacine and that has really seemed to help his emotional regulation. I don’t know if this sort of therapy will be effective and they seem to want a lot of his time. His developmental pedi said it’s kind of the only option for him at this time. He’s too young for cognitive behavior therapy and we tried one on one therapy but it didn’t work for him. He needs the most help with emotional regulation, executive function and social skills.
Anyone have any ideas on retraining annoying habits?DS6 clears his throat all.the.fucking.time! Like every few seconds. He first developed the habit when he was sick in Oct and it lessens somewhat until he gets sick again and then I want to run screaming from my house. It's like nails on a chalkboard. He's FINALLY going back to school today after 9 days home (TDay break and a cold) and I'm doing a happy dance! I need a break from my child who I love very much. FWIW H ignores it completely and I tell DS to breath/take a breathe. My way eventually somewhat helps... just in time for him to get sick again. *beats head against wall*
Also we are bribing our child to take cough/cold medicine while sick and no regrets chicken. All that stuff childless me said I'd never do parent me laughs at and does gladly.
DS does this and it's because his tonsils are large anyway and swell with illness so it's worse then. When he's congested it feels like mucus is trapped in his throat so it's the constant clearing. I tell him to go to the bathroom and have a big cough, try to spit out the mucus if he can, then have a drink of water. It stops the throat clearing for a bit. Maybe when you're at the doctor next have them look at his tonsils and see if they are large? It may give you answers as to why, even if it doesn't stop the problem.
How old is your DS? Mine is 7.5 and did ABA from ages of 3.5 - 7ish. It was a huge help for him and he spent many hours there initially. We couldn’t sign him up for extracurriculars because his schedule was pretty tight. But through the years, his hours went down and freed up his schedule some. They are a big reason why my DS was able to accomplish so much in school. Complete lifesavers. They were compassionate and professional.
I hope your expenses well. Please feel free to PM anytime.
How old is your DS? Mine is 7.5 and did ABA from ages of 3.5 - 7ish. It was a huge help for him and he spent many hours there initially. We couldn’t sign him up for extracurriculars because his schedule was pretty tight. But through the years, his hours went down and freed up his schedule some. They are a big reason why my DS was able to accomplish so much in school. Complete lifesavers. They were compassionate and professional.
I hope your expenses well. Please feel free to PM anytime.
He is about to turn 9. My friend recommended this place but she said her daughter grew out of it at a young age so I am concerned we are starting it too late.
I mentioned in my earlier post that DS6 had a habit (actually a tic as other posters let me know). I reached out to his classroom teacher about it via email and she linked me to tichelper which is an 8 week program the school would pay for and implement after Christmas break if it gets approved by the principal. It's research based and seems ok. Anyone have any experience with it?
Post by pinkdutchtulips on Dec 8, 2022 12:32:30 GMT -5
I feel slightly vindicated being the parent of a child who was one of the youngest in her class that also had kids who were nearly a full year older than her in the same classroom (kinder cut off is 9/1, tk is avail for 9/2 -12/1 bdays so they enter kinder at 5 almost 6, this means that kids who JUST turned 5 before 9/1 are in the same room w kids who turn 6 in the first 2 weeks of school or worse there are kids starting kinder at 4 bc school starts mid August and they have a bday between the day school starts in August and 9/1). There was a study done in Norway that found that kids who were the youngest in their class were 80% more likely to be medicated for ADHD bc they were being held to the same expectations as the older kids in their class.
I am not surprised. You can't expect a barely 5yo to do the same work or be at the same place socially/emotionally as a new 6yo. Since the 5yo are behind, some of them act out bc they aren't ready. They don't necessarily have ADHD but they are lagging behind their peers.
Just something I found interesting and makes sense to me. I've had MANY problems with CA's Transitional Kinder program and this validates my concerns.