Post by karinothing on Oct 2, 2012 13:14:17 GMT -5
I hope you don't mind me posting since I am not a regular, but I just wanted to say I am sorry. I am glad you are at such a great hospital and I hope everything goes well.
I think SBP's daughter had heart surgery. She hands on on CEP, I am sure she would be willing to talk to you if you want. I have no idea if the surgeries are similar at all.
Im sorry about the heart defects. My DD was born with 3 and still has 2 of them. It is scary but I have had several friends in the Down syndrome community use CHOP and they have always raved about them. Keep us posted on how things are going!