The cardiologist called

[bania]

OMG no. I'm so so sorry Squirrley. Good thoughts and prayers that one of the other options works out.

[FloFTW]

Awful. I'm sorry.

[lilafowler]

Those motgerfuckers!!!

Hugs to you all! Don't give up.

[HiC]

((((((squirrely)))))

Keeping you in my thoughts and prayers.

[pursemeatballs]

 ((hugs)) and :drink:

I'm so sorry. What an awful time for your vehicle to break down. I don't know what to say. I hope that you get good news very soon.

[2boys2danes]

Jun 4, 2013 20:25:59 GMT -5 squirrelymom said:

Jun 4, 2013 19:04:30 GMT -5 2boys2danes said:

Can I come pick you up? Im happy to...... you have my phone number in an old PM.... I'm seriously ready to come get you.

We got home and H's truck is being towed to the shop. He broke down right there at Collierville Arlington and Macon so we got to hang out at that gas station on the corner and enjoy the...scenery(?). An ambulance stopped when they saw H's emergency tags and helped him push the truck out of the way. Don't stop at that gas station if you have a choice. Definitely don't hang out there.

Funny thing was, one of the guys transported my dad last fall and H used to work with both of them at Metro.

Shew!  Glad you all are home safe and sound.... that is definitely not on my list of hang outs.....but probably a fabulous place to people watch  

Hooray for the ambulance men coming to the literal truck rescue!  Rest up the best you can tonight....

[saraandmichael]

squirrelymom I don't even think that sorry holds the weight of the utter sadness I feel on behalf of you and your family. I cannot even begin to grasp how you are able to breathe, let alone look forward in this fight. But I do know what it takes to wage war on the injustices that are imposed upon those that haven't got control over their own medical fate.

I have a good grasp of how urgent situations like this can afford you luxuries from institutions on your behalf. I would encourage you to contact someone at the JDRF that works in advocacy and the legal department and demand that they get involved. I would also reach out to anyone and everyone to speak on your behalf, write letters on your son's behalf, and/or to spotlight your son's story.

ugh...my heart is just breaking for you. and my offer to drive up and sit with you, or clean your house, or do your grocery shopping or hang out with your daughter or you or anyone else is always up for grabs...please don't hesitate to let me know if you need a little help.

[Deleted]

God, I'm so sorry. I hope a facility approves him soon.

[textbookcase]

Oh, God. Shit, Squirrely. I am so, so sorry and my heart is aching for you guys. ((((hugs))))

[MWOS]

Jun 4, 2013 21:14:37 GMT -5 nuggetbrain said:

What the fucking fuck. This entire situation is just...what the fucking fuck, man.

This sums it up for me too

(((Squirrley)))

[KaraOrNot]

I am so sorry.

[gretchenindisguise]

have you gone to any media outlets about this?

[pantsparty]

I am so, so sorry (((squirrely)))

[runforrest]

I'm so very sorry

[Deleted]

God squirrely, I am so sorry. The shit that you've gone through is just terrible. I am so angry for you. fuuuuuuuck.

[winelady]

I am so sorry.

[AHappierHour]

I'm so sorry

[Deleted]

squirrelymom is there anything we internet strangers can do for you and your family?

[Deleted]

Jun 4, 2013 22:23:17 GMT -5 squirrelymom said:

Jun 4, 2013 22:16:00 GMT -5 @utahlove13 said:

squirrelymom is there anything we internet strangers can do for you and your family?

Not at the moment. But thank you.

I have the name of a cardiologist in Michigan if you want it. His daughter played hockey with my sister and they're very good family friends. Let me know if you'd like it, I'd be happy to get his info for you. 

[sugarbear]

Oh, God. I am sorry.

[Yankees21]

I am so very sorry for all you and your family are going through.

[silva]

I'm sorry. I'm hoping for better news real soon for you and your son. *hugs

[karyotypic]

Is an LVAD an option at all?

[wannabe]

Lots of love to you.

[tdk2]

This is insane. :***(. Wth?

I missed why Denver vs other places. I'm beyond pissed for you and F. Wtf??

[latte]

My heart aches for you, I am so sorry!

I hope somewhere accepts him, or something, someone, somewhere can help him.

(((Hugs)))

[Deleted]

I have faith that one will come through.

I am so, so sorry squirrely. And praying for you and your family.

Hang in there. Your strength is amazing.

[Deleted]

I think you need an advocate. It is too much for you to take in all the information people are throwing. Maybe Sarah - whom I am sure knows how to work these groups better than anyone - can put you in contact with a group that can give you a patient advocate, and the advocate can take it from there. I know everyone wants to help but I am not sure that criss-crossing the country is going to be effective. You need someone that knows where they will bend the rules and how to get the media to pay attention. I don't even know enough to know where you would get an advocate, but I do remember from going through this with my dad that you just need to get through the day and scouring every source for a transplant is too much. Don't feel like you have to do that. Do ask that the two or three people you most trust start reaching out to advocacy groups to find out whom at those groups will take this up.

[Deleted]

I am soo sorry. I will continue to keep you guys in my prayers. Elle gives some good advice. If you set up an FB page, get an advocate, etc.. Please let us know what we can do to help as in blasting it on FB, writing letters, etc.. ((Hugs))

[Waffles]

I'm so sorry squirrely.