My two year old son has ASD. He's very high functioning, though, so I find that a lot of other boards aren't really a good fit. Hopefully this board will have a wide enough variety that we can all help each other.
If it's okay I might pop in once in a while. I have an older brother who is bipolar. I know that doesn't fit as well, but I wish I could find better resources on it. He was diagnosed while in college.
Hi! I'm mostly a lurker, but my 8yo son has Aspergers and I'd love a place to get help and advice and share what we have learned.
I find it so overwhelming some days and he's not that far along the spectrum! It's just hard to be always worried about him and manage all the normal things at work and at home.
Post by cinnamoncox on Apr 13, 2014 10:44:22 GMT -5
Thanks for making the board!
My DS (15) has aspergers (phone just auto corrected to "perfect" Awww).
Starting at age 6, we've been told ADHD, ODD, now Aspergers.
That seems to fit better actually. His ADHD meds would seem to work briefly then the teacher would ask why we stopped the meds (we hadn't) so we would try another, rinse and repeat. Eventually we stopped the meds because it was clearly doing nothing.
This is the wicked condensed version of course
It's been extremely difficult to say the least . I'd say for me one of the hardest things is separating what is typical 15 year old behavior vs what is a trait of the Aspergers.
And he makes "inflexible" people look downright breezy!!
And he is clearly too old to be talking about on MM Moms.
I also have twin toddlers. Both my h and I have ADHD so it can get wild but really we are all otherwise healthy and happy and I couldn't ask for a better family
I'll crash! I have a typical 16 year old. My twins are 8 and my youngest is 6. Twin one has PDD nos, apraxia, dyslexia, dysgraphia. Twin two has Aspergers, ADHD, anxiety, dyslexia, dysgraphia, and resolved apraxia. My youngest has a 16p11.2 duplication, Aspergers, is gifted, ADHD, OCD, ODD, Apraxia, phonological disorder, dysarthria and I'm sure is left something out.
I'll crash! I have a typical 16 year old. My twins are 8 and my youngest is 6. Twin one has PDD nos, apraxia, dyslexia, dysgraphia. Twin two has Aspergers, ADHD, anxiety, dyslexia, dysgraphia, and resolved apraxia. My youngest has a 16p11.2 duplication, Aspergers, is gifted, ADHD, OCD, ODD, Apraxia, phonological disorder, dysarthria and I'm sure is left something out.
Post by cinnamoncox on Apr 13, 2014 19:22:50 GMT -5
Marisa I have twins too and they (so far ) are typically developing but sometimes I see behaviors/traits in the young ones that are reminiscent of my son's at their age and I always have it in the back of my mind "is this a glimpse into the future here or are they typical 3.75 year old traits and they'll outgrow them but DS didn't" Does that make sense? I'm not sure if just looking for things that aren't there, or if now that I know what to look for, I'm more aware.
I just noticed this board too. DS was born 2 months premature and has VACTERL, which is an association of symptoms which stands for Verterbral anomolies, Anal atresia, Cardiac defects, Tracheoesophageal fistula, Esophageal atresia, Renal & Radial anomalies, and Limb defects. Thankfully he only has the "V" and the "L" parts of VACTERL (maybe "A" too... we're still working on diagnosing that one) but overall is doing pretty well all things considering.
He had spine surgery a month ago and is currently in a brace, which is oh-so-fun on an almost-2 year old ;-)
Post by mividaloca on Apr 14, 2014 18:02:18 GMT -5
Hi I'm soooooo freaking happy for this board. Dd is 5, diagnosed at 2 with autism. Non verbal, progressing very slowly. We are working on using p.e.c.s phase 2.. we do aba , st, and ot.
DS1 was born with Amniotic Band Syndrome, it is on both his feet and one of his hands. He had his last surgery exactly a year ago, but he may need more on his hand as he grows.
Post by longtimenopost on Apr 15, 2014 13:11:33 GMT -5
Hi all! My DD is a former 26 weeker and has CP and hydrocephalus (shunted) resulting from brain bleeds at birth. At 15mo/12 adjusted she is rolling both ways but not sitting, crawling, standing, or walking obviously. We do PT and OT as well as Anat Baniel Method lessons and are just beginning aquatic therapy.
hi all... two daughters, 8 & 6... youngest was dx'd with PDD-NOS just before turning two... currently thriving in mainstream Kindergarten with the support of a program geared towards kids with her particular needs/challenges. We actually moved to this town last spring after our last town was about to drop the ball BIG time with her IEP... thank God we did. The right team and IEP has made a world of difference.
DD1 was placed with us from foster care for adoption at 14 months old. She was diagnosed with emotional trauma and a family history of NF-1, which according to posters on ML can cause some delays. She had EI three times a month. She just turned 2 and is down to once every 6 weeks for EI. We also have her now 1 year old half sister to hopefully adopt as well. I have met bio mom and know there are mental health issues with her but she won't go for diagnosis so we aren't sure which issues.
DS2 has moderate Autism and a global developmental delay. Is in ABA therapy right now. Speech is slow going, but progressing. All 3 of my boys have delayed speech. DS1 has anxiety issues. DS3 not sure if he will present with Autism.
Hi. I just saw this board and hope I can join. DD has quite a bit of medical issues that we're dealing with and is in PT twice a week, feeding therapy twice a week, and cranial helmet appointments every other week.
Hi! I am an on-again, off-again lurker who just noticed this board.
My daughter has an undiagnosed genetic anomaly. She has global delays and a myriad of birth defects and related health issues. Micro-form cleft lip, sub-mucus cleft palate, low muscle tone, torticollis, imperforate anus, lax joints, hearing loss, feeding/weight gain issues requiring her to get a g-tube and fundoplication, SPD, asthma, and chronic pneumonia.
She is in EI for speech, pt, and ot.
We don't fit in with any one sub-group of special needs...but our issues overlap a lot of known syndromes and conditions. I am glad this board is here!
I am so glad to have noticed this board! My 3 yr old son has Apraxia and SPD. I also think he has some behavioral issues but not sure how much of it is just stubborn toddler. Lol. B was diagnosed at 26 months and has been in speech therapy since he was 18 months.
I am a retired special education teacher who has also taught emotionally disturbed children. I mainly taught reading and math in sp ed. Many were ADHD, OCD, ODD, bipolar, Aspergers. Mostly K to 3.
I have also taught in an alternative school for K through 6th kids who have done a felony type crime, fire-setting, assault, theft, etc. My specialty there was discipline with structure, TO and positive reinforcement with earned rewards. Housed with us were also grades 7 to 9. Much bigger boys and many were in 3 main gangs.
The alternative school was in a larger city. The sp ed and emot dist were in a small town.
Now don't worry. Your babies won't end up there. Most were from very abusive and sad homes without love or compassion at the alternative school.
So I might join in.
Because special kids have a special place in my heart.
Are posts about delayed but not diagnosed kids ok here?
I just found the board, but I would say absolutely welcome! Children dealing with delays certainly have needs similar to children with more clear diagnoses. They often need many of the same interventions.
Both my sons have special needs. We adopted my older son when he was 7, and he immediately had his coarctation of the aorta repaired. He has a fetal alcohol spectrum disorder and dyslexia, along with a language based learning disability. We adopted my younger son when he was 5, knowing he had neurofibromatosis, type 1 and a severe speech delay. Since then we have learned that he actually has apraxia of speech, a language based learning disorder, and a central auditory processing delay.
Are posts about delayed but not diagnosed kids ok here?
I just found the board, but I would say absolutely welcome! Children dealing with delays certainly have needs similar to children with more clear diagnoses. They often need many of the same interventions.
Both my sons have special needs. We adopted my older son when he was 7, and he immediately had his coarctation of the aorta repaired. He has a fetal alcohol spectrum disorder and dyslexia, along with a language based learning disability. We adopted my younger son when he was 5, knowing he had neurofibromatosis, type 1 and a severe speech delay. Since then we have learned that he actually has apraxia of speech, a language based learning disorder, and a central auditory processing delay.
Did you see the Apraxia of Nj thing on April 30th?
I just found the board, but I would say absolutely welcome! Children dealing with delays certainly have needs similar to children with more clear diagnoses. They often need many of the same interventions.
Both my sons have special needs. We adopted my older son when he was 7, and he immediately had his coarctation of the aorta repaired. He has a fetal alcohol spectrum disorder and dyslexia, along with a language based learning disability. We adopted my younger son when he was 5, knowing he had neurofibromatosis, type 1 and a severe speech delay. Since then we have learned that he actually has apraxia of speech, a language based learning disorder, and a central auditory processing delay.
Did you see the Apraxia of Nj thing on April 30th?
No, I did not. Can you tell me more about what will be happening where?