Post by litebright on Apr 18, 2014 20:49:24 GMT -5
We just got the letter from DDRC today re: our state autism waiver. It irked me because all it says is basically "you are no longer eligible because of ..." and it's a section of the state code, rather than printing the section or giving you any indication at all other than, more or less, "look it up yourself."
Which, I did, and since DD1 is no longer under age 6, this is the official notification. No surprise, but it's just a reminder of how hard it can be to get assistance for therapies. Especially as your kids age.
It's so sad. Not so much for us, b/c DD1 is doing well with what we've been able to do ourselves, and thank God for that because even if we'd been in dire staits, she still would've received nothing. It's a terrible state of things when only 75 kids in the entire state, per year, can be covered by this waiver for services and the wait list is so long that she's been on it since being dx'd at age 3 (it was one of the first things I did, get her on the wait list) and is aging off before getting any therapies whatsoever.
We got some minor financial help from DDRC in the first couple of years and I'm grateful for it, but we've also now reached the point where DD1 must be re-evaluated at our expense in order to qualify for anything. I would rather put $4K into therapies than another eval right now -- which our insurance didn't cover the first time, despite repeated appeals, so I'm assuming we'll be on our own yet again. Sigh.
Thank God for the school district. But man, don't move to CO if you have a kid on the spectrum is my advice.
I'm lucky that in PA that Autism it is automatic coverage for Medicaid. He was approved within a week of receiving our paperwork.
We had Medicaid one year for DS.
None of DS's team members take insurance of any kind, much less a Medicaid HMO.
We have been lucky. If my insurance hasn't picked anything up, his insurance has. We had to get it before we could even thinking about getting him a TSS.