Hi everyone We are still here in the icu with DD. The day before yesterday they finally switched her from the oscillator to the traditional ventilator. We have had more up and downs since then. It is actually harder now because they stopped her paralytic drug that she had to be one when she was on the oscillator. As a result she is very obviously uncomfortable, squirming, coughing soundlessly around the tube, obviously scared and upset. They give her sedatives and painkillers still but they don't make her totally comfortable. It is super hard to watch but moving to this vent was an important step forward so we are ultimately grateful. We still have a long long way to go though. Thank you for keeping us in your thoughts and prayers.
Oh I am so sorry about watching her feel uncomfortable. That has to be heart breaking. She is so young so in a couple years this will feel like a teeny blip in her little world.
Thank you for the update. Continued positive thoughts for your family.
I'm sorry that she is still struggling so much. I can't imagine how hard that would be to watch as a parent. I hope she continues improving and is on the road to a full recovery.
Thank you for updating. I've been thinking about you and your family. I'm glad to hear there are steps in the right direction. Continued prayers for you all
Poor baby. I'm glad she's making these baby steps but I'm so sorry it's so hard right now. Sending your family so much love.
Is there anything you need right now? I'm sure you're spending a lot of time at the hospital - do you need food cards or gas cards or anything like that?
Post by foundmylazybum on Jan 8, 2016 7:46:00 GMT -5
I have been following and wishing your family well. I'm sorry your daughter is uncomfortable. Your whole family sounds pretty tough and like you are close. I hope this part in her recovery goes quickly for you all and she is feeling better soon. Huge huge hugs.
Post by sapphireblue on Jan 8, 2016 7:47:53 GMT -5
It must be beyond difficult. I am glad that there is progress even though it means she is more uncomfortable right now. I am keeping you in my thoughts and prayers.