Sending you so very much love and hugs. I can't imagine how overwhelming it must feel, but you can do this. Like others said, consider designating a person to update or do a caring bridge site. I am sure you are grateful, but I know how exhausting it can be. We're in this with you.
My mother has not had a 'stomach' since 1994. She lost hers due to a bad stomach wrap/weight loss surgery gone awry. She had a 'shelf' rebuilt from lower intestines (I believe) at that time. She's turning 64 next month. She eats everything I do and is totally fine, stomach-health wise. Feel free to PM me when you get back if you have any no-stomach Q's and I'll see if I can answer them.
You've got this. You can do this. Sending you good thoughts.
Post by Miss Phryne Fisher on Jul 21, 2016 17:57:19 GMT -5
Thinking of you. Let me give you some port advice:
Get some kind of soothing oil...like almond or bio oil, to use as it heals. It can itch badly. When they access the port, they will have to flush it first. Many people can taste the flush as it goes through. It tastes absolutely awful. Carry peppermints, gum, or other strong candy, or plug your nose when they do it. Tasting something as it is injected into your chest is kind of trippy. The spray numbing agent they used before access never quite worked well for me and stunk and made me more anxious than I needed to be. If it bugs you, ask for Emla cream and bandages, then use the cream yourself about a half hour before you need to be accessed. Big dollop and you should be good and numb.
Don't hesitate ever to let them make it as easy on you as possible.
His... I haven't been here at all until today, so I am just now seeing all of this. I am so sorry. It is understandable to need time to process. Sending so much healing thoughts your way. Xoxo