DS update

[blondemoment123]

I’ve been posting my saga so I thought I’d update.

We met with the pediatric psychiatrist today who ruled out Autism. It’s a relief and frustrating at the same time because we still don’t have a diagnosis.

We’re staying the course with therapy 4x/week and praying with time he’ll get caught up. He’s come so far so I’m confident he will.

Thanks for all your support. Y’all have been an excellent sounding board.

[ellipses84]

I hope you get the answers and support you need. The therapy will help regardless of a diagnosis.

[lilac05]

I've walked the road with many parents as they go through those feelings of diagnosis/no diagnosis. Your feelings of frustration and relief are very normal and make complete sense.

I'm glad you're seeing progress in therapy. As a therapist, I always told people that we don't treat a diagnosis, we treat a deficit. The diagnosis makes it easier to justify treatment to an insurance company and schools. (There are some dx that they would just automatically approve therapy for, and others we had to fight tooth and nail for.) The child is the same and the areas of need are the same regardless of the presence/absence of a diagnosis, so at a treatment level, it makes little difference.

Keep up the great work! Great progress in therapy does not happen without great support at home, too!

[duff]

I'm not super active anymore, but I saw your last post and wanted to send some hugs your way. My DD is a little older than your DS and she does have a genetic condition. She has been in various therapies since a couple of weeks after she was born. It's shocking to see how far she's come...she didn't start walking until a couple of weeks after her third birthday, but now she's running non stop. She talks a ton and overall is doing things that we were worried we wouldn't ever see. She goes to hippotherapy twice/week where she does PT, OT, and speech and also does music therapy once/week (online now thanks to COVID). We also opted to start her in preschool and she's doing that online as well, including PT, OT, speech, and orientation & mobility therapy. I credit all these therapists and teachers, plus the years in EI, with her progress. Therapy is a wonderful tool!

It's exhausting, as you know, but you're doing a great job and it's well worth it!

[jnibean]

Just wanted to send you internet hugs and tell you you are a great mom, and are doing a great job advocating for your DS. He is lucky to have you

[sahara78]

Did the psychiatrist do the ADOS? I think you’d mentioned that in a previous post.

No answers can be frustrating. Hope the therapies continue to help him!

[blondemoment123]

Oct 28, 2020 21:21:52 GMT -5 lilac05 said:

I've walked the road with many parents as they go through those feelings of diagnosis/no diagnosis. Your feelings of frustration and relief are very normal and make complete sense.

I'm glad you're seeing progress in therapy. As a therapist, I always told people that we don't treat a diagnosis, we treat a deficit. The diagnosis makes it easier to justify treatment to an insurance company and schools. (There are some dx that they would just automatically approve therapy for, and others we had to fight tooth and nail for.) The child is the same and the areas of need are the same regardless of the presence/absence of a diagnosis, so at a treatment level, it makes little difference.

Keep up the great work! Great progress in therapy does not happen without great support at home, too!

Thank you for what you do. DS’ EI was amazing and supportive the entire process. I don’t think I could have managed the barrage of therapies and doctors appointments without her guidance. We’re switching to a case manager when he turns 3 and I’m so sad I won’t see her weekly. She’s been a godsend.

I adore his OT and PT, but the SLP still annoys the crap out of me. I let H handle that one. 🤪

What you said about treating a deficit, not a diagnosis truly made me feel better. Thank you.

[blondemoment123]

Oct 29, 2020 17:58:42 GMT -5 duff said:

I'm not super active anymore, but I saw your last post and wanted to send some hugs your way. My DD is a little older than your DS and she does have a genetic condition. She has been in various therapies since a couple of weeks after she was born. It's shocking to see how far she's come...she didn't start walking until a couple of weeks after her third birthday, but now she's running non stop. She talks a ton and overall is doing things that we were worried we wouldn't ever see. She goes to hippotherapy twice/week where she does PT, OT, and speech and also does music therapy once/week (online now thanks to COVID). We also opted to start her in preschool and she's doing that online as well, including PT, OT, speech, and orientation & mobility therapy. I credit all these therapists and teachers, plus the years in EI, with her progress. Therapy is a wonderful tool!

It's exhausting, as you know, but you're doing a great job and it's well worth it!

I’m so glad your LO is going well! I remind myself that all of this is worth it. He’s come so, so far!

[blondemoment123]

Oct 30, 2020 12:10:07 GMT -5 sahara78 said:

Did the psychiatrist do the ADOS? I think you’d mentioned that in a previous post.

No answers can be frustrating. Hope the therapies continue to help him!

She did the ADOS.

Thank you