Personally I am soothed by statistics but I still have critical thinking skills.
I know these statistics aren't "final" yet because more investigation needs to happen (there could be more than 6 cases; it could be that the 6 cases only impact women who also have/do XYZ, etc.). But nothing about this makes me freak out yet. And I've also had a blood clot. ETA - I'm not trying to be dismissive of people who ARE freaking out, but I personally find statistics/data very reassuring.
Or, the below:
I know one of those one in a thousand women who had a stroke in her twenties because of smoking + the pill + bad luck. It’s serious. But so are the risks of pregnancy and birth.
Wild speculation ahead: I wonder if they will find that is at issue here - if these specific viral vector vaccines are contraindicated in people on the pill, or people on the pill who smoke. Given that more brits smoke than Americans it could be why the UK saw a higher rate of clots with AZ than the US has seen with J&J.
As someone who received the J&J vaccine and has a 50/50 risk for having an inherited thrombophilia, I think they’re making the right call in looking at this a bit more closely. I feel like some medical professionals and journalists are being way too dismissive of the link. CVST is a rare form of stroke. It’s not useful to compare the numbers of women who are getting this post-AZ or J&J to overall incidence of blood clots. DVTs are 160x more common than CVST, although the share the same risk factors. It would be good to know if these women are already at greater risk of blood clots. And someone upthread pondered if these people would have been more likely to have thrombosis from a covid infection, which is also super interesting. Given that we have two highly effective mRNA vaccines that are not associated with this risk, it may be helpful to investigate if we should be channeling women under 50 who might be using OCPs or pregnant or have a clotting disorder or smoke, etc to use those and save J&J for other populations.
Yes, these clots are atypical - clots in the veins of the brain. I think it's an open question whether people who have had other types of clots are more susceptible. FYI, the most common presenting symptom is headache.
The AstraZeneca info that was coming out indicated that this was a rare immune reaction that mis identified platelets as invaders. I read speculation that the adenovirus that is used as the vehicle in these two shots MAY be involved in that immune reaction.
Sorry for complete lack of sourcing, please treat this info accordingly.
I follow Friendly Neighborhood Epidemiologist on FB & she had a good post about this today. (She is in that age range and also received the J&J vaccine.) She stated that the risk of blood clot with COVID19 is 165,000 in 1 million. I didn’t realize it was that high! /?d=n
I’m glad that they’re stopping to figure out if there is a causation or if it is just correlation. I’m sure there are brilliant people everywhere asking and searching for answers to all of the questions we have...and many more!
@@@@@ As far as kids and vaccines go, I do think that vaccine hesitancy is going to go up. As far as we know at this time, Covid presents a very minimal risk to healthy children. I’m 100% pro-vax with my kids, but even I am (quietly) waiting to see what the studies show on vaccine safety/efficacy. I’m 99.99% sure they will get it, but I’d like the data to build my confidence to cover that last little twinge of uncertainty.
Has anyone heard of increased anxiety after a vaccine? I got the first Pfizer on Thursday and my anxiety has been HIGH since then (not vaccine related anxiety just general life panic). I'm assuming it has to do with my immune system doing all kinds of stuff. My rx anxiety medicine is actually an antihistamine, so I'm assuming this is all related to whatever hormones or body chemicals get created? I'm trying not to take my meds so as not to interfere with immunity but I feel like I'm about to start sobbing. When I google anxiety + vaccine I just get a bunch of stuff about vaccine hesitancy, ugh.
CurlyQ284, my anxiety is correlated more with my cycle, but I do think your body fighting off something can cause that or depression. I remember I felt depressed when I had Hand Foot Mouth. I had very few symptoms just a couple of spots on my hands, but I was definitely fighting it off. I would ask your doctor this, but personally I don't think taking an antihistamine now would affect immunity.
They are finding anti platelet antibodies and low levels of platelets among these cases (which is odd for clots normally). Majority of clots have occurred in the brain veins but also some in the abdomen veins.
melmaria, OMG!!!! To read his incoherent bullshit is SO WEIRD after him being gone for a bit. It is like shocking that this was normal 4 months ago. Thank goodness for the SM ban, I hope the ban is permanent!
Post by mrsukyankee on Apr 13, 2021 14:42:46 GMT -5
I met up with a friend for a socially distanced coffee. She's now very hesitant to get a vaccine. I tried to give her some good info but she's just not into hearing it. So I backed off. She's someone whose family watches Fox News all the time and who are very 'woo' about a lot of stuff. Ugh. She's a teacher who is teaching in person so I really hope this doesn't harm her in the end.
Article talks about how the vaccine induced blood clots are different from clotting seen with covid infection. I saw elsewhere (and have already forgotten where) that they don’t think the risk factors for blood clots in general apply to the vaccine induced clots. This is my own wondering, but women and men have a lot of differences in their adaptive immune system that may explain why the autoimmune response is more commonly seen in women. I have also read that women were receiving the AZ more than men earlier on because they were over represented in healthcare fields. There may not be a sex difference, ultimately.
The more reasonable articles on the subject are pointing out that this is likely to be a very short pause in administrating the J&J vaccine. They may limit who the vaccine is given to, but more likely be something akin to needing to wait 15 min after vaccination after rare cases of anaphylaxis were seen after the mRNA vaccines. It could be guidance for recipients and healthcare providers to be on the lookout for symptoms of the disorder in the two weeks following administration.
Post by mysteriouswife on Apr 13, 2021 18:13:23 GMT -5
I have avoided these post due to the trauma from me having Covid in the winter. I figured this was better a place than any to dump this.
I was officially DX as a long hauler. I still do not have full taste or smell back. My memory is shit and often debilitating. My hair is falling out in massive amounts causing balding. I still nap often and can’t even muster up enough energy to do much more than work. I am being sent to a Covid long hauler physical therapist. The doctor described it similar to a dementia therapist mixed with a brain injury therapist. I have no idea what to expect or if my insurance will even cover this. I can’t even cry due to the shock.
I have avoided these post due to the trauma from me having Covid in the winter. I figured this was better a place than any to dump this.
omg I had no idea you were dealing with this! 😭 I am so sorry. I wish to Heaven you could just catch a break.
Oh but I did catch a break! A break in my meniscus and damage my ACL. I’m currently doing PT and steroid shots to appease my insurance. I go back May 7th to see if I need surgery.
omg I had no idea you were dealing with this! 😭 I am so sorry. I wish to Heaven you could just catch a break.
Oh but I did catch a break! A break in my meniscus and damage my ACL. I’m currently doing PT and steroid shots to appease my insurance. I go back May 7th to see if I need surgery.
Post by tripleshot on Apr 13, 2021 19:45:46 GMT -5
mysteriouswife, I’m so sorry you’re dealing with that! Have you gotten a Covid vaccine yet? I’ve seen stories of long haulers improving greatly after Pfizer and Moderna vaccines. I hope the therapy helps.
I have avoided these post due to the trauma from me having Covid in the winter. I figured this was better a place than any to dump this.
I was officially DX as a long hauler. I still do not have full taste or smell back. My memory is shit and often debilitating. My hair is falling out in massive amounts causing balding. I still nap often and can’t even muster up enough energy to do much more than work. I am being sent to a Covid long hauler physical therapist. The doctor described it similar to a dementia therapist mixed with a brain injury therapist. I have no idea what to expect or if my insurance will even cover this. I can’t even cry due to the shock.
I
I'm really sorry to hear you're having to deal with this. It is really unfair. I hope you're able to get back on your feet sooner rather than later. I wish I had some words of wisdom to share.
I know it's not the same as dealing with it myself, but I found out today that my mom is being referred to some sort of COVID physical therapist due to her long haul symptoms as well, if I recall she had COVID just before you did. She too is trying to figure out insurance coverage for that, her Dr. thinks it'll be covered due to it falling under physical therapy (which I don't understand but that's what my mom was told).
My mom has the same symptoms you have mentioned above and is still on disability leave. I hope she can go back to work if that's what she wants, but it's uncertain at this point if she'll ever be able to go back, mostly due to how foggy her mind still can be (varies day to day) and how tired she gets. I think my dad is a long hauler as well as he also has the same symptoms you've described, but he's still in rehab to gain strength with walking and stability and they haven't looked at any further diagnosis for him. It's just crazy to even try to understand all this stuff that happens. I'm struggling/worrying with all the changes in their life and it's not even my own life. Sending you healing vibes and positive thoughts.
mysteriouswife, I’m so sorry you’re dealing with that! Have you gotten a Covid vaccine yet? I’ve seen stories of long haulers improving greatly after Pfizer and Moderna vaccines. I hope the therapy helps.
I get my second on Friday! It actually got worse after my first vaccine. I woke up in the middle of the night thinking I still had covid. Once I woke up I remembered I had the vaccine. I had covid toes again.
I have avoided these post due to the trauma from me having Covid in the winter. I figured this was better a place than any to dump this.
I was officially DX as a long hauler. I still do not have full taste or smell back. My memory is shit and often debilitating. My hair is falling out in massive amounts causing balding. I still nap often and can’t even muster up enough energy to do much more than work. I am being sent to a Covid long hauler physical therapist. The doctor described it similar to a dementia therapist mixed with a brain injury therapist. I have no idea what to expect or if my insurance will even cover this. I can’t even cry due to the shock.
I
I'm really sorry to hear you're having to deal with this. It is really unfair. I hope you're able to get back on your feet sooner rather than later. I wish I had some words of wisdom to share.
I know it's not the same as dealing with it myself, but I found out today that my mom is being referred to some sort of COVID physical therapist due to her long haul symptoms as well, if I recall she had COVID just before you did. She too is trying to figure out insurance coverage for that, her Dr. thinks it'll be covered due to it falling under physical therapy (which I don't understand but that's what my mom was told).
My mom has the same symptoms you have mentioned above and is still on disability leave. I hope she can go back to work if that's what she wants, but it's uncertain at this point if she'll ever be able to go back, mostly due to how foggy her mind still can be (varies day to day) and how tired she gets. I think my dad is a long hauler as well as he also has the same symptoms you've described, but he's still in rehab to gain strength with walking and stability and they haven't looked at any further diagnosis for him. It's just crazy to even try to understand all this stuff that happens. I'm struggling/worrying with all the changes in their life and it's not even my own life. Sending you healing vibes and positive thoughts.
I hope they both recover from this. It seems to be hit or miss on who gets the long hauler. I’m sorry
mysteriouswife , I’m so sorry you’re dealing with that! Have you gotten a Covid vaccine yet? I’ve seen stories of long haulers improving greatly after Pfizer and Moderna vaccines. I hope the therapy helps.
I get my second on Friday! It actually got worse after my first vaccine. I woke up in the middle of the night thinking I still had covid. Once I woke up I remembered I had the vaccine. I had covid toes again.
My folks (in Canada) are scheduled for their first vaccination next week!
Both are over 70, with health conditions, so this is a huge relief to know they'll soon have some protection.
Do you feel guilty that your employer arranged for you to get vaccinated yourself so early in this process, ahead of many elderly people in this country, and your parents are just getting their first shots this month?
My second Pfizer dose is today. I am nervous because multiple people have told me they felt nauseous after the second dose. As an emetophobe, that’s the only side effect I truly fear. I will take the fever, the chills, the headache - but to add anxiety on top of that will be really shitty.
My second Pfizer dose is today. I am nervous because multiple people have told me they felt nauseous after the second dose. As an emetophobe, that’s the only side effect I truly fear. I will take the fever, the chills, the headache - but to add anxiety on top of that will be really shitty.
If it makes you feel better, I had my second moderna dose on Monday and felt like utter shit yesterday. I barely got off the sofa all day. I also hate to be nauseous. The only times I felt mildly nauseous were if I moved around. As long as I didn't move about, the nausea stayed away.
My folks (in Canada) are scheduled for their first vaccination next week!
Both are over 70, with health conditions, so this is a huge relief to know they'll soon have some protection.
Do you feel guilty that your employer arranged for you to get vaccinated yourself so early in this process, ahead of many elderly people in this country, and your parents are just getting their first shots this month?
I got my first shot before my step-father got his. I feel no guilt because England happened to be giving it to my age well before New Mexico was giving it to over 65s. Why should someone feel guilt for getting a vaccination that is offered to them? I'm sure audette, like me, was more angry that the areas our parents were living in weren't moving as quickly as where we were/situations we are in. And I think you are really shitty for posting this.