UPDATE: I’m home! Just spent 4 days on a ventilator

[rosiebear]

Holy cats! I’m glad you’re feeling on the mend and had excellent care!

[blondemoment123]

Omg! I’m glad you’re ok!

[sparkythelawyer]

Holy crap! I'm in Chicago area, do you need anything?

[rebneen]

Sending healing prayers for a continued smooth and speedy recovery! ❤️‍🩹

[flex]

So scary! ::hugs::

[Gato]

Oh gosh, how scary! I'm glad you are doing better. (((HUGS)))

[wildrice]

Oh my gosh, how scary! I am so sorry you had to endure that. I hope you are feeling much better today and will be able to prevent something like this from happening again. Please let us know if there is anything we can do to support you.

[Bad Dingo]

♡♡♡ I can't imagine all of the emotions you are dealing with. I hope your recovery continues to progress.

[tcu2003]

So scary! Glad you’re doing better now and that you had a great medical team taking cate of you.

[dove]

Goodness! So glad you were able to get the healthcare you needed given the current environment.
Wishing you a speedy recovery!

[pugz]

Big big hugs!

[waverly]

So sorry. I hope you are feeling better.

[sadlebred]

I am glad you are on the road to recovery! Here is to going home quickly!

[Captain Serious]

My goodness! I'm so sorry you weren't through that. I am really glad to hear you had an amazing team of medical professionals looking out for you!

How are you feeling now?

[ellipses84]

I’m so glad you are doing well enough to post. I hope for lots of strength for you to get through your recovery.

[sandandsea]

How scary! I’m glad you’re okay.

[madringal]

Oct 17, 2021 7:43:46 GMT -5 cricketwife said:

Oh my gosh, I’m so sorry! I’m so glad there was a ventilator available for you. I hope you continue to have a full and speedy recovery!

I’m so thankful as well. My heater breaks to think of how many people may not have been able to get one when needed.

[madringal]

Oct 17, 2021 7:55:10 GMT -5 cmeon said:

That had to be a terrifying experience, I'm so sorry. I hope your family has been able to visit/be in touch, and that you are out of there as soon as you can be.

Yes! Initially when I came to the ER, DH came with me. They decided to admit me around 9 Pm based on my symptoms (shortness of breath, general weakness due to MG). I was sitting up, talking, generally ok so we decided it was best he went home, saw the kids, get some rest, pack me some stuff and come back in the morning.

He wasn’t gone 30 minutes before I crashed and they vented me. Scariest experience of my life. By the time they told him, a few hours had passed, and I woke up alone and terrified in the ICU. He’s been at my bedside basically none stop since (except to swap with my sisters and go home and see the kids for a few hours). Again, I’m so thankful we have that option right now and my heart breaks for all the people that have been alone fighting the past year and a half.

[madringal]

Oct 17, 2021 8:12:09 GMT -5 isabel said:

Holy shit! I’m glad you’re doing ok now. I’m sure that was terrifying for all of you.

Are there ways to prevent this from happening again or at least identify it early so it’s not as much of a crisis?

Looking back, I was headed towards a crisis for 2 weeks. My symptoms were all worsening. But mostly it was the shortness of breath and double vision should have been my first clue something was really wrong.

[madringal]

Oct 17, 2021 8:29:28 GMT -5 mags said:

How scary! Glad they got you better quickly.

I know how scary and dangerous MG can be. And how little the medical community knows about it.

May I ask what your treatment is?

They started me on IVIG right away which has been very helpful. They also increased my steroids that I had slowly been weaning down from.

[madringal]

Oct 17, 2021 8:33:31 GMT -5 tripleshot said:

Oh my goodness! How scary that must have been. I hope you’re on the way to recovery. Is there anything we can send you?

No, but you are sweet to offer!

[madringal]

Oct 17, 2021 14:34:49 GMT -5 mofongo said:

Oh wow! That must have been terrifying. I am glad you are making progress, please keep us updated. Hope you are home asap 🙏🏻.

So far I’m doing g much better. Very weak still, and I guess I have pneumonia and some blood clots in my lungs. Should find out more about those today.

[madringal]

Oct 17, 2021 15:11:07 GMT -5 ssmjlm said:

How scary! Glad you are recovering!

Is there anything we can do? How is your family doing?

They are doing ok. It’s been 11 days now which is the longest I’ve gone without seeing my kids. My inlaws and sisters have been a big help so they are doing ok. Just weary.

Im suffering from a lot of anxiety, mostly around swallowing, which is what ended up getting me vented so DH has been with my almost non stop. They have me medicated for the anxiety which is helping tremendously, but we’re both still too nervous for me to be alone.

[madringal]

Oct 17, 2021 15:36:40 GMT -5 jennistarr1 said:

Terrifying, glad you are better. Is it possible it will happen again?

Anything we can help you with?

Yes it is, which I think is the scariest part of all.

[madringal]

Oct 17, 2021 17:13:43 GMT -5 sparkythelawyer said:

Holy crap! I'm in Chicago area, do you need anything?

No, but thank you. We only live about 40 min from UofC, which has been such a blessing. The team here is just exceptional!

[NewGirlNic]

How scary. I'm glad you are doing better and hope your recovery continues to go well. 

[Deleted]

Oh my goodness, that had to be terrifying. I'm so glad you are able to get the care you need and you continue to improve. Sounds like you have a great medical team!

[womet]

How scary. I'm glad you're on the mend. I hope you get to go home soon.

[mrsukyankee]

Hoping the very best recovery for you!

[calamity]

Oh my goodness how terrifying, I am so sorry that you are going through all of this. Sending you so many positive vibes to continue getting well <3