Any other peanut or milk allergies on here?

[biblionerd]

We finally had Fiona tested and according to the skin test she is allergic to milk and peanuts. So frustrating since we have no family history of food allergies! The allergist said they don't to general allergy blood testing unless they've had a reaction and then they test those specifically. He was kind of an ass in general though and acted like he didn't want to do any testing and said something like "well, since she's never been exposed to them I'm sure she won't be allergic to peanuts, but since we suspect milk we'll do it anyway". Did anyone else's allergist say this about the blood testing? Basically he said it's 50% false positive most of the time and that "we're making kids allergic to things that they never were before because of avoiding everything out of fear and false positives" or something like that. So out of the 18 things we skin tested she allergic to those two (negative to soy and tree nuts and egss thank goodness- we're vegetarians who love our milk and peanut butter so it still sucks!!)  . She had bloodwork drawn to I guess test how severe those allergies are? It's terrifying me now though. He said to completely avoid everything, including the "made in a facility that processes nuts, etc." warnings until we know more. But he said to not stop giving DS peanut butter so he doesn't become allergic to it. So it's nervewracking. We have her epi-pen, but of course I never want to have to use it. And she's finally at the age where she's starting to realize he's getting certain things she's not and isn't happy about it. 

Any others with allergies that can still handle baked in milk? He said some with actual allergies still can and that we can trial it in the office in a while if we want. 

I hate allergy testing.

[shevacc]

Yuck, that's no fun for you to have to deal with! I hope she's able to eat baked goods, etc. with milk! I feel like I haven't seen you around that much lately (or maybe we're just on at different times?). Just wanted to let you know you've been missed!

[Deleted]

Oh man, that sucks - I'm sorry to hear she's allergic to those!!  I dont have any advice regarding your question, but as far as her not getting what Linus does... you could always give her soy nut butter when he gets peanut butter, so she *thinks* she's getting the same thing. And obviously soy/almond or whatever kind of milk you'll choose to give her. Might solve some tantrums in the future when she wants the same thing.

And that seems crazy, that she can't have things that have even been in the same facility that processes nuts, but she can be in the same household with someone who can eat regular peanut butter ?

[biblionerd]

May 6, 2013 16:25:51 GMT -5 shevacc said:

Yuck, that's no fun for you to have to deal with! I hope she's able to eat baked goods, etc. with milk! I feel like I haven't seen you around that much lately (or maybe we're just on at different times?). Just wanted to let you know you've been missed!

Aw, thanks! Just been working on getting the house ready to sell!

[biblionerd]

May 6, 2013 16:26:11 GMT -5 @sprinkles said:

Oh man, that sucks - I'm sorry to hear she's allergic to those!!  I dont have any advice regarding your question, but as far as her not getting what Linus does... you could always give her soy nut butter when he gets peanut butter, so she *thinks* she's getting the same thing. And obviously soy/almond or whatever kind of milk you'll choose to give her. Might solve some tantrums in the future when she wants the same thing.

And that seems crazy, that she can't have things that have even been in the same facility that processes nuts, but she can be in the same household with someone who can eat regular peanut butter ?

I know, I thought that was weird. He said to wash his hands, plate, utensils, etc. afterwards, not let anyone kiss her right after eating it, and all of that, but to still avoid the other stuff because I guess maybe she has more of a chance of directly ingesting it? Who knows... I feel like I'm constantly going crazy making sure Linus doesn't stick anything in his mouth while he's eating that she might get a hold of. I NEVER would have guessed that she'd have a peanut allergy because I just wasn't careful before and assumed she'd been exposed enough that I would have noticed. 

I try and give her similar stuff, but it's just one of those she wants EXACTLY what he's eating, off of the same plate lol. Or like last night Linus got some m&ms for using his inhaler and it was the first time she threw a fit. Puffs did NOT make her happy!

[Deleted]

May 6, 2013 16:31:43 GMT -5 biblionerd said:

May 6, 2013 16:26:11 GMT -5 @sprinkles said:

Oh man, that sucks - I'm sorry to hear she's allergic to those!!  I dont have any advice regarding your question, but as far as her not getting what Linus does... you could always give her soy nut butter when he gets peanut butter, so she *thinks* she's getting the same thing. And obviously soy/almond or whatever kind of milk you'll choose to give her. Might solve some tantrums in the future when she wants the same thing.

And that seems crazy, that she can't have things that have even been in the same facility that processes nuts, but she can be in the same household with someone who can eat regular peanut butter ?

I know, I thought that was weird. He said to wash his hands, plate, utensils, etc. afterwards, not let anyone kiss her right after eating it, and all of that, but to still avoid the other stuff because I guess maybe she has more of a chance of directly ingesting it? Who knows... I feel like I'm constantly going crazy making sure Linus doesn't stick anything in his mouth while he's eating that she might get a hold of. I NEVER would have guessed that she'd have a peanut allergy because I just wasn't careful before and assumed she'd been exposed enough that I would have noticed. 

I try and give her similar stuff, but it's just one of those she wants EXACTLY what he's eating, off of the same plate lol. Or like last night Linus got some m&ms for using his inhaler and it was the first time she threw a fit. Puffs did NOT make her happy!

Aahh, how nerve wracking. I'm sure over time it'll become easier to deal with and handle, but for right now ((((hugs))))! I've worked with a lot of kids who have food allergies, specifically peanuts, and its awesome how knowledgable they are about it. I've had kids as young as 3 tell me all of the things they cant have because it has nuts in it or made with nuts. 

I didn't think about her wanting to eat off of his plate - thats gotta be hard!! Maybe you could tell her her food is special or something, so then she thinks she is getting something 'better' than Linus, so she wont want to eat his? lol. I'm sure that'll be easier once she's older - a 1 year old just wants what they see!! 

[vidalia]

No milk allergy here and I'm not sure about peanuts yet since we haven't tried them, but N does have an egg allergy.

We haven't seen an allergist for testing, just talked to the pedi at her appointment and have been doing trials with baked in eggs. So far N is doing great with those foods and hasn't had any other reactions.

I hope your DD can tolerate the baked in milk, that would definitely make it easier! Did the allergist say it is likely she will outgrow the allergies? Sorry you are dealing with this!

[biblionerd]

May 6, 2013 17:08:41 GMT -5 vidalia said:

No milk allergy here and I'm not sure about peanuts yet since we haven't tried them, but N does have an egg allergy.

We haven't seen an allergist for testing, just talked to the pedi at her appointment and have been doing trials with baked in eggs. So far N is doing great with those foods and hasn't had any other reactions.
- m
I hope your DD can tolerate the baked in milk, that would definitely make it easier! Did the allergist say it is likely she will outgrow the allergies? Sorry you are dealing with this!

Good luck with the eggs! What was her reaction? He said peanuts were up in the air- just more so because it's one of the most anaphylactic foods- maybe they're just more careful to speculate? Who knows. He said she reacted much less to the milk (it's the smaller of the hive) and did mention that it was possible to outgrow. I've been reading studies actually about how baked in milk can help safely expose them and help them outgrow it. He said also that we should have more of an idea about severity from the blood work. Basically get that back to get more of an idea, trial baked in milk in the office, don't touch peanuts (said we'd revisit the "made in a facility that processes peanuts" warning based on her blood test results here within a couple weeks) and retest in a year. 

ETA: but I read that up to 20% can outgrow peanut allergies (fingers crossed), he just wouldn't give us any idea in her case. 

[vidalia]

When we gave her scrambled eggs she got pretty immediate hives all around her mouth and chin and was really upset. Luckily it was just hives and they faded after we washed her and were gone within a half hour. I've read similar articles about baked in eggs helping them to overcome the allergy safely.

Fingers crossed for you guys that you get good results from the blood work!

[Deleted]

I'm sorry, it really sucks. I just have my own personally experience, I was okay with dairy baked in and I slowly grew out of my milk allergy. Peanuts I grew out of the allergy but then grew back in it. I'm not that allergic to it now though. Hopefully she grows out of it all soon and that they aren't that bad.

[spaghetticat]

I'm sorry. It sucks and it is scary. I would definitely take advantage of doing the baked in test at the office. thedahliharpa is the board expert on milk allergies.

[thedahliharpa]

Yeah neither girl can tolerate any dairy/whey/casein and the baby can't tolerate soy. Luckily we are good with nuts. Oh, and H can't have eggs either. No baked milk or egg.
Those skin reactions look much worse than H's did but all her reactions manifest in her GI.
I know the blood tests are unreliable but for us we get false negatives that contradict the skin tests and food challenges.
I hope any issues F has now are quickly outgrown.

[jaime183]

Luke is very allergic to eggs (vomiting, welts) and he can't have things with eggs baked in either (for now).
We just did the blood test last week to see how severe the allergy is because a lot of vaccines have egg in them (MMR, flu) and his score depends on if he can have the vaccine.

we're waiting for the results, it takes a week.
They said most kids outgrow it by age 5