Post by RoxMonster on Sept 17, 2013 21:36:02 GMT -5
As some of you might remember, FIL was diagnosed with a stage IV glioblastoma (brain tumor) in April. He had had brain surgery to remove what they could. It is incurable, but the MRI post-surgery was good news. It looked like they got all that was in there. He went on an intensive regime of radiation and chemo this summer. He overall was feeling good and everyone was in high spirits.
Just recently he has started having headaches again and episodes where he speaks nonsense/doesn't know what he's saying. This is what happened in March to prompt him going to the hospital and finding all this out. Now, these episodes happened a couple times in, like, June, but he was undergoing radiation and the doctors said it was probably from brain swelling from that. He has been off of radiation for awhile now, though.
So he has his follow-up MRI tomorrow and H is worried sick. He is so stressed out and says he feels like this will be bad news and it will be back already, etc., and I don't really know what to say to comfort him. So anyways, if you could send some good thoughts our way that the MRI does not show anything tomorrow, we'd appreciate it! The past 6 months have definitely been a huuuuge roller coaster for us.
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"I was thinking about getting off on demand, but it sounds like I should be glad that I didn't"
Post by RoxMonster on Sept 18, 2013 20:12:42 GMT -5
Thanks for all the well wishes. They have an appt. on Friday with the doctor to find out the results, and I will update once I find out. It sounds like FIL is very, very stressed out (and naturally so) and just has a bad feeling about it. He has been very positive through this whole process so far, for how awful it has been, but the past week or so, just has a bad feeling he can't shake. I really hope that's not the case and we are all pleasantly surprised on Friday.
Thanks for all the well wishes. They have an appt. on Friday with the doctor to find out the results, and I will update once I find out. It sounds like FIL is very, very stressed out (and naturally so) and just has a bad feeling about it. He has been very positive through this whole process so far, for how awful it has been, but the past week or so, just has a bad feeling he can't shake. I really hope that's not the case and we are all pleasantly surprised on Friday.
Just a lurker here but sending positive thoughts your way. I lost my grandma to GBM three weeks ago, but she lived three and half years so there's certainly room for hope! We had many ups and downs, good MRIs and bad MRIs. It can be an emotionally challenging roller coaster for family members, and the patient's experience seems so dependent on where the tumor is located. If you ever need to ask anything or need a sounding board for someone who has gone through it, please don't hesitate PM me.
It can be so, so scary to watch someone you love go through this disease. It's equally as difficult to support someone you're IN love with when everyone's emotions are running high. Don't forget to take care of yourself every once in awhile.
<3 My Dad had a GBM, it sucked. I wish I had some good words to suggest you say to your DH, but I just don't think there are any. Many thoughts and hugs and healthy brain dust for your FIL.
I don't even know where to post an intro here! I was on TK/TN/TB since 2003, mostly local boards. I was m_and_m.
"I speak without reservation from what I know and who I am. I do so with the understanding that all people should have the right to offer their voice to the chorus whether the result is harmony or dissonance. The worldsong is a colorless dirge without the differences that distinguish us, and it is that difference that should be celebrated not condemned." -Ani Difranco
I am so so sorry. I had an aunt who lived through recurrent brain cancer. It's a complete bitch. Crossing fingers that the results are better than anticipated.