Post by madringal on Sept 27, 2013 20:36:14 GMT -5
And I need some hair pats and virtual hugs.
I've mentioned before that my niece (7 weeks old) is terminal. It looks like she can pass any day now. They are traveling here tomorrow and she might die in my house. I'm absolutely ok with that, just so sad that this is what lies ahead for my sister and her family. I'm also worried that my sister will always associate my house with her daughters death.
A really good friend was just diagnosed with cancer for the 4th time. Twice this year. He has just been through too much in 32 years.
My SIL is getting a divorce. Her husband has been cheating for over half their 6 yr marriage. She just doesn't deserve this. My IL's don't know yet, they are going to be devastated.
It's been a rough week. Prayers for my friends and family would be much appreciated.
I just want to warn you that if she dies in your house, once she passes she will release a lot of gasses and things. It is very loud and it scared me so much I screamed. I wish I would have known that and I guess all babies do that. Another thing that helped me was that the hospice workers took him into a spare room and brought him back once he was finished. That helped me out so much that I didn't need to hear it. If there isn't hospice please have someone think to offer to remove the baby just during that process. She may want to be there but it would help just to offer.
Lastly the thought of his death was actually worse than him dying. In an odd way that entire evening was peaceful and relaxed. I hope the same can happen for you guys. If you have any other questions please pm me. Also have lots of cold bottles of water on hand.
I'm so sorry you are going through all of this.
Thank you so much for this information. When we got her diagnosis and she was placed under hospice care, I told my sister about your sweet Ethan. She asked me to send her your posts, and I did. It really helped her to know what the end might look like. She lives in a different part of the state so her hospice people are not up here. My cousin and uncle are both doctors in the area, and I am sure they will be here, so that might help.
Trying for #3; FET 8/18 -- BFN. Leaving things up to chance for now... After three years, three IVFs, and two FETs, we finally have our miracle babIES!
Post by fiveoclock on Sept 27, 2013 22:53:50 GMT -5
I'm so sorry to hear about your niece. I volunteer in pediatric palliative care (I'm not a health care provider so I won't pretend to be knowledgeable about the health aspect of palliative care), but from experience I can say the wait can often be the hardest part, and that when it happens there can be a calm peacfulness. You and your niece's family are in my thoughts. I hope things go as well as they possible can. I'm so very sorry.