anyone have experience with Myoclonic Seizures?

[speedracer]

Today, a pediatric neurologist confirmed that Patrick has been having myoclonic seizures.  we have observed about 1/wk though it appears through his EEG that he can have some that are not as visible.  He had been randomly face-planting quite forcefully onto his lunch or dinner, so hard that sometimes he'd be bruised from it.  they are hard to notice when he's not sitting at a table, it almost looks like a silent sneeze and if you blink you miss it.  There was no pattern with them so it took us a while before we brought it to our Dr's attention.

he is going to start on some medications and we'll see if it changes anything.  Anyone else deal with something like this?

[Moe]

I'm just here to send you hugs.

[saraandmichael]

I'm sending mine right along with Moe. And alcohol.

[runforrest]

I have no advice either but will send along lots of thoughts and e-hugs.

[BunnyMacDougal]

Hugs from me too.

[papie]

(((Hugs)))

[papie]

My cousin's daughter had something similar as an infant but I thought it was a young baby thing. She had several every day but most were not visible. She was on meds for a whole and now at age 3 is completely seizure free. I can ask them for more info?

[papie]

Whole = while

[eav2c]

My 18m old has tonic clonic seizures (both grand mal and petite mal). He had 3-6 a week and they seemed to follow a pattern. It took q couple of months but we found the "right" combination of medications (keppra and zonigram) and doses and its been relatively smooth sailing since. I am so sorry you are dealing with this. I know it is so scary but I am hopeful that medicines will do the trick for your child. Try to not get discouraged if it doesn't seem like the medicines are working right away. Paitence with the medicines was something I didn't have. I wanted a fix then but the neurologists knew best! Feel free to PM me or ask questions. I am sending good vibes to you! ((Hugs)

[angelaa73]

Omg! I am scared. Does he stop breathing? Is it only while seated??

[BlackCanary]

I noticed that my limbs would spasm and I would stutter a lot. After a sleep deprived EEG (so much fun!) they diagnosed me with JME (Juvenile Myoclonic Epilepsy). I've been on Lamotragin for over 2 years and I haven't had any episodes.

speedracer (((hugs)))

[speedracer]

Oct 2, 2013 22:18:31 GMT -5 angelaa73 said:

Does he stop breathing? Is it only while seated??

no he has no other seizure-ish symptoms and he gets back to normal right away, he never seems confused or dazed.  He does it when he's standing/walking sometimes too, but I think it is much more noticeable when he is sitting.  The dr said he may outgrow it but right now there is no way to know.

he has been stuttering a lot over the last few months but right now it's developmentally OK and doesn't appear tied to any seizure activity.

[tdk2]

. I'm so sorry.

Many hugs to you.