Treatment question

[lemons]

Has anyone not known what their treatment will be until it starts? H's next scan is the 29th and next treatment starts 11/4. The timing means we won't know what type of treatment he will be getting until the 4th. One is cycle days 1-6, 8-10 and the other is cycle days 1 and 8. Not being able to plan is going to make me crazy. :-)

[Norticprincess]

Mine and DH's went with bloodcounts. So things were never really on an actual schedule. After a few rounds we knew a bit better about timing, but nothing exact. Some rounds I'd go in for blood check and things would be high enough, others I'd get sent home for another week. For my initial stuff, I didn't know which trial arm I was going to be on until after the selection. That was just one round and I was already in the hospital. My transplant got pushed around a bit, they thought my sister was sick and had to wait for tests to come back.

I hope you have some local support. It is a rough road.

[lemons]

Not much local support, but we just do what we need to do...we've reached about 15-16 mos of fighting cancer and are ready for remission! :-)