Squirrelymom / Forrest Update thread

[underwaterrhymes]

I'll be checking on Forrest's CaringBridge site and updating for squirrelymom. I'll keep the updates in this thread as I get them.

NOTE: Since this was getting long, I'll keep the three most recent updates here, and the remainder in the body of the thread.

**

If you want to send a card to Forrest, send me a PM and I'll provide you with the address.

Read more: pandce.proboards.com/thread/304405/squirrelymom-forrest-update-thread?page=7&scrollTo=5843789#ixzz2x0SRe7rO

**

Forrest is doing great

Today will be pretty busy. The plan is to remove the large IV line from his neck, get rid of the pacing wires, and move most of his meds to oral ones so he won't be connected to so many lines and machines. We're going to try to get him to walk a little this afternoon.

They have brought in some specialists to try to figure out what's going on with his muscles. The good news is that the number that shows tissue breakdown had come down some with his last set of labs. Fingers crossed, it will continue to do so. The docs want to rule out it being another autoimmune issue.

**

Out of the ICU

Forrest made it out of the ICU yesterday evening and has been walking laps around the floor. He's really doing great. We've been very fortunate with recovery so far because the VAD (the device they implanted last August) let him go into the transplant pretty strong.

There are no big plans for this weekend--it's usually relatively quiet on the weekend. There's been some murmuring about releasing him early next week. If things continue at the rate they're going, it shouldn't be a problem.

Much to Forrest's dismay, his school books made their way to St. Louis yesterday, courtesy of Gran and S. Pretty sure Forrest would've rather had another IV started than to find that out. lol.

**

It's been quiet

Which is wonderful. No new news, Forrest is getting up and around both more and easier. He's already complaining to be released.

The cardiologist said this morning they're aiming for letting him out Tuesday. Cross your fingers.


**

After lots of last minute testing and checking and re-checking, Forrest was finally released late yesterday.

Right now he's enjoying sleeping in for the first time since all of this started.

He has to have blood work done in the morning, but other than that, we're free until his first biopsy on Monday. If the biopsy goes well and doesn't show any signs of rejection, we'll be released to go home to Memphis some time next week.

[underwaterrhymes]

Mar 23, 2014 10:20:17 GMT -5 @cse1960 said:

are they ok for money/need anything?

I've asked her if I can help arrange something. Stay tuned.

[isabel]

I would love to donate if they're open to financial help. I know this can't be easy.

[underwaterrhymes]

Mar 23, 2014 10:30:07 GMT -5 isabel said:

I would love to donate if they're open to financial help. I know this can't be easy.

I'll let you know as soon as I hear back. I don't want to be presumptuous, but I definitely think donations would be so helpful.

I'd also like to see if I can arrange meals sent. I know that they've got a bunch of cupboard type stuff, but hot meals would probably also be useful.

[allaboutme]

Thank you for the update

[cuddlyevil]

Is Forrests amazon wishlist current? He will probably need stuff to keep him occupied.

Thank you for keeping us updated!

[underwaterrhymes]

I'll post this in its own thread too.

You can make donations to help with Forrest's medical care through this YouCaring site:

www.youcaring.com/medical-fundraiser/forrest-t-heart-fund/67306


** Forrest's Amazon list is out of date, but I'm not sure that it's a priority right now to get it updated. I think the main thing is helping the family with the mounting medical costs.

[cuddlyevil]

I know. I was just wondering since he's going to be bed ridden for a bit.

Again, thanks for the updates. I'm going to be on pins and needles all day.

[underwaterrhymes]

Mar 23, 2014 10:46:24 GMT -5 cuddlyevil said:

I know. I was just wondering since he's going to be bed ridden for a bit.

Again, thanks for the updates. I'm going to be on pins and needles all day.

I think it's a great idea. Once he's had the transplant and is feeling up to it, I'll ask squirrelymom if he wants to update it.

[Deleted]

Thanks so much for doing this! I knew he was on the list but missed that he's getting a heart. How amazing!!!

[gretchenindisguise]

Thank you so much for coordinating this.

[circa1978]

Thanks for coordinating this! I'm in St. Louis and pass by the hospital where they are every day. I'm happy to help, if anything is needed.

[audry80]

Thanks for the update!

[isabel]

Thanks for coordinating and keeping us up to date!

[underwaterrhymes]

They just called from the OR, the new heart is in and beating. They're beginning the process of closing him up now.

[bania]

Mar 23, 2014 13:26:21 GMT -5 underwaterrhymes said:

They just called from the OR, the new heart is in and beating. They're beginning the process of closing him up now.

Great news. Sending good thoughts and prayers for recovery. (Heart)

[joshlyman]

Mar 23, 2014 13:26:21 GMT -5 underwaterrhymes said:

They just called from the OR, the new heart is in and beating. They're beginning the process of closing him up now.

This is an awesome update!

[jodinia]

awesome!!

[FastHands]

So amazing. Thanks for the updates!

[cbwm1]

Such an awesome update!! <3

[kristie]

Great news!

[aussiecrush]

Terrific news!

[notoriousmeg]

Awesome news!

[paddywagon]

That is awesome news!! I'm so happy for them =)

[Marle]

Thank you UWR! I've been so out of the loop this time.
I'm glad things are going well!

[jlt19]

Great news! I'm also in the area and would be happy to help any way I can.

[piaffe]

Wonderful. Many prayers for recovery.

[alzi]

Great update!!

[ginandjucie24]

OMG. Such great news!!

[MrsAggie]

Great update!!!!