Post by ginkgoleaf on Jan 26, 2015 18:01:37 GMT -5
Have the Drs mentioned juvenile arthritis? My DS has it and it took months to diagnose. The rheumatologist always asks if he's had any rashes at his appointments. He never has, but it can be a sign.
I have never posted before but I created an account because I had HSP as a child and her symptoms had me immediately thinking about it. Has your doctor tested her for that? Sounds very similar. Rash and my joints hurt so bad I didn't/couldn't walk. It was a fairly easy fix after they finally diagnosed me. It took months though so I wanted to say something in case it could help her not go through the months of pain I did. Anyways, best of luck and I hope they figure it out soon. Henoch-Schonlein Purpura (HSP) is the official name
I mentioned this because my friends son just was diagnosed. It's not HSP. They said she would have bruising and a few other symptoms I can't remember. Thank you though.
Post by DarcyLongfellow on Jan 26, 2015 20:19:06 GMT -5
That is so scary -- I'm sorry you guys are going through this, but I'm glad you seem to be in the right place. I hope they figure it out soon! Please keep us updated.