Did I miss an update from the cardiac cath? How's the little man doing? You hanging in there ok?
I just updated the original post, I think it got bumped down. Heart and lungs looked fine. Pulmonary pressures weren't hypertensive but he was stay on the Viagra because it helping.
Airway was completely obstructed but ENT thinks it is just inflammation from the breathing tube and reflux. He was scheduled for Nissen surgery today to stop reflux but he spiked a fever again last night so it was postponed. After surgery they will take him off the vent and give him high doses of steroids for 5 days to get the swelling down. ENT is very optimistic this will work.
Yay for some good news! I hope the steroids help! What a LONG process for you all. Sorry I missed your update. Been thinking of and praying for you guys!