Post by HoneySpider on Aug 18, 2015 14:50:34 GMT -5
This will probably be long and rambling, so sorry in advance.
After my D&C I had my follow up and everything looked good. A few weeks ago (about 5 weeks after the surgery) I started to get curious about when my period was going to come back and thought I'd try to see if on the off chance I could catch ovulation. Took an OPK and it was positive, which surprised me. Like a crazy person I then took a HPT, and also positive (and also surprising). Took 2 more HPTs, all positive.
At this point I have no idea what's going on because I feel it's way too late after the D&C to still be getting clearly positive tests, but the odds of it being a new pregnancy were also so slim (but not impossible given our timing). We figured we'd wait and take a few more HPTs to see if we could figure out what was going on. Took 3 more the next week and all still positive so I asked my doctor about it and if I should come in for blood work for betas. She said yes so last Tues/Thurs I went in for blood work.
I expected to hear the results on Friday and when I didn't by mid-day I sent a message through the patient portal. Nothing. I was upset. Monday I still hadn't heard anything so sent another message and still no response. At this point I'm getting pretty pissed. Today I decided to try calling the nurses and left a message there.
My doctor finally called back and I found out the reason she hadn't called, despite having the results since Friday, was that they were not what she was expecting and she had to consult with some of the other doctors to figure out what's going on and how to proceed. My beta on Tues was 55 and on Thurs it was 50. If it was a new pregnancy it should have been doubling and if it was from the previous one, she expected the numbers to show a more significant decrease.
She is now suspecting that I had a partial molar pregnancy and some of the diseased tissue may still be present. She removed everything from the pregnancy during the D&C, but with moles they can burrow in places like the uterine lining, so the reason for the numbers staying high could be from that extra tissue. The baby was XXY which is the common chromosomal makeup of a partial mole. I also had very severe m/s which is a side effect. The odds of having a molar pregnancy in the U.S. are 1 in 1,000. Then the odds of having remaining tissue after the D&C are ~10%, so the odds of being in this situation are a fraction of a percent.
I feel like this can't even be happening. I don't understand how we can keep finding ourselves on the short end of the odds. Seriously, if I wasn't living this I would think my story was a bunch of BS because it's just that ridiculous.
I'm going tomorrow for more blood work, my doctor wants to check levels on a few more things and then will either repeat the blood work or, more likely, refer me to a specialist for treatment.
I'm pretty upset by this. I read that treatment is usually chemotherapy and sometimes the tissue can spread rapidly or become cancerous. It's also recommended that after treatment is complete, you don't have another pregnancy for 6-12 months.
I realize I'm getting ahead of myself here since we don't know for sure what we're dealing with and if I'm even going to need treatment but seriously, FML. The fact that this is even a possibility and is something I have to worry about and deal with right now just really freaking sucks.
I'm so sorry you're dealing with this. ((Hugs)) I'm so angry on your behalf. I'm praying that the next step is much less invasive than you fear and that all of this is resolved very soon.
Post by estrellita on Aug 18, 2015 15:15:46 GMT -5
Wtf. Seriously, when are you going to catch a break? I can't even believe everything you've been through. I really hope the treatment isn't as bad as you think it will be. Lots of hugs being sent your way!
Post by wanderingenough on Aug 18, 2015 15:35:29 GMT -5
Ugh, HoneySpider. Major hugs. This is all such bullshit. That's the only way to describe it. Unfair, maddening, bullshit. I'm sorry, and I'm praying that things will start looking up quickly.
Post by luv2rn4fun on Aug 18, 2015 15:45:40 GMT -5
I'm so sorry. Reading your post makes me sick to my stomach and angry for you. This is unbelievably unfair. I hate that you are going through this and pray/hope that it's much less than you are fearing. SO many ((hugs))...wish I could give them to you in person.
Oh my it's astonishing that this can be happening after everything else that has already transpired. I so, so sorry! I will pray that further treatment is not necessary and that your body is ready to move on quickly.
Ugh!!! Fuck!!!!!! Why, I'm so, so sorry for you. You definitely don't deserve this. I'll be praying and sending all the hugs your way. I hope further treatment isn't necessary. <3 (((HoneySpider)))
I've just been sitting here reading this and shaking my head. I am so sorry you are having to go through this CRAP my friend!! Praying they get a good, efficient solution without crazy treatments or complications. You deserve better! SO many hugs and prayers your way! I am so sorry....
Oh. My. God. Like the others said, how much more can you guys go through? Big hugs to you and your h. Yall have been through so much, more than people ought to.
Post by melsamoony on Aug 18, 2015 20:01:08 GMT -5
No way! Omg, I really don't have any thing else to say. I truly hope there is some way this is NOT a molar pregnancy/the remnants of a molar pregnancy.
I am so so sorry HoneySpider. It is so unfair. I cannot believe the incredible bad luck you've had. I am praying it isn't as bad as they think, and you get some good news soon.
Post by ginkgoleaf on Aug 18, 2015 21:52:55 GMT -5
Omg I can't believe it, you seriously deserve your luck to turn around! I hope it's more easily resolved and you don't have to wait so long to try again. I'm so sorry.
Post by cactuscookie on Aug 18, 2015 22:37:26 GMT -5
Oh my gosh, HoneySpider, this is insane. I'm so sorry you have yet another horrible thing to deal with. I'm hoping so hard that it doesn't turn out to be as bad as you're currently bracing yourself for.
Post by Skyesthelimit1212 on Aug 19, 2015 8:27:47 GMT -5
This isn't fair, and I'm pissed at the universe on your behalf. You and you H deserve something great to come your way and I'm sending all my good vibes and prayers your way for that to happen. Sending you creepy internet hugs too.
Oh HoneySpider, I am so sorry. I can't believe you've had to deal with so much. I'm hoping and praying that it is anything but a molar pregnancy, or if it is, that it can be resolved quickly.
I'm sending you and your H so much love and so many hugs.