Homebirth with a fatal diagnosis

[karinothing]

www.diannavagianos.com/blog/?p=269

Warning infant loss. I never thought about this situation. It is sad that hospice stood in the way when they are there to help folks have the comfort of home in death. Not sure I would have made the same choice, but I can understand wanting to be where you feel safe in such a situation

[carolinagirl831]

Interesting perspective for sure. It's so hard to know how you would feel if put in that situation

[meltoine]

Thank you for sharing. It's very well-written and definitely a new perspective on a heartbreaking situation.

[SallySparrow]

That is very sad. And I agree that maybe she should have (hindsight being what it is) gone with a neonatal hospice. But that hospice program manager was NOT following the spirit of hospice and should not be working for one if she can't do her job. That's not what hospice is.

[loira]

As someone who has prepared for death before birth, I think she absolutely should have been able to do things as she saw fit (within the confines of her own medical safety). I'm weirded out by all the quotation marks around the word diagnosis, though.

[Velar Fricative]

Sept 27, 2015 16:47:30 GMT -5 loira said:

As someone who has prepared for death before birth, I think she absolutely should have been able to do things as she saw fit (within the confines of her own medical safety). I'm weirded out by all the quotation marks around the word diagnosis, though.

I was wondering about the quotation marks too. It doesn't sound like she didn't believe the doctors re: the T18 diagnosis, which is why the quotation marks were odd.

Very sad story.

[imojoebunny]

I can't have an opinion on this because I have gratefully, never had to face it.

It would be kind, if hospitals could adapt for a birth type hospice, when children are born with extreme conditions. I have several friends who have aborted children who would not be able to live outside the womb and would have experienced extreme pain before they died. People who very much wanted their children, but they were not to be, no matter which avenue they chose. I have nothing, but the upmost compassion for anyone who is in that situation, no matter their choice. I do not agree that for women, it is more dangerous to give birth in the hospital, but I don't have to agree. It is not my body.

[sillygoosegirl]

Sept 27, 2015 17:22:50 GMT -5 Velar Fricative said:

Sept 27, 2015 16:47:30 GMT -5 loira said:

As someone who has prepared for death before birth, I think she absolutely should have been able to do things as she saw fit (within the confines of her own medical safety). I'm weirded out by all the quotation marks around the word diagnosis, though.

I was wondering about the quotation marks too. It doesn't sound like she didn't believe the doctors re: the T18 diagnosis, which is why the quotation marks were odd.

Very sad story.

It talked about potential issues with needing a doctor to show up to make the real diagnosis to avoid anyone getting charged with manslaughter.  I'm thinking they must have all been sure about the details, but perhaps there is some legal requirement that the doctor actually examine the baby before a legal diagnosis is made? 

[jeaniebueller]

Sept 27, 2015 16:47:30 GMT -5 loira said:

As someone who has prepared for death before birth, I think she absolutely should have been able to do things as she saw fit (within the confines of her own medical safety). I'm weirded out by all the quotation marks around the word diagnosis, though.

I am definitely getting a religious/prayer can heal everything vibe from her writing.

[cmarie11]

Sept 27, 2015 17:22:50 GMT -5 Velar Fricative said:

Sept 27, 2015 16:47:30 GMT -5 loira said:

As someone who has prepared for death before birth, I think she absolutely should have been able to do things as she saw fit (within the confines of her own medical safety). I'm weirded out by all the quotation marks around the word diagnosis, though.

I was wondering about the quotation marks too. It doesn't sound like she didn't believe the doctors re: the T18 diagnosis, which is why the quotation marks were odd.

Very sad story.

I wonder if she never had genetic testing done to confirm the T18, and they were going simply off of the anomalies of the baby. I know I had a patient a few weeks ago that never had any genetic studies done, but the MFM was calling it T18 since the anomalies seen on sono were consistent with T18.

Nerveless, such a heartbreaking story. 

[oceanstbride]

Sept 27, 2015 15:29:20 GMT -5 SallySparrow said:

That is very sad. And I agree that maybe she should have (hindsight being what it is) gone with a neonatal hospice. But that hospice program manager was NOT following the spirit of hospice and should not be working for one if she can't do her job. That's not what hospice is.

I wholeheartedly agree with this. Her experience is really sad. My H works very closely with hospice and her experience with hospice is infuriating. It's so frustrating as someone who works in healthcare to read about managers and providers caring more about covering their own butts than caring for patients. Yes, there are rules and protocols, but hospice is just different or at least it should be.

How heartbreaking to have to deal with all of that when you're going through probably the hardest experience in your life

[rbp]

Sept 27, 2015 17:49:25 GMT -5 sillygoosegirl said:

Sept 27, 2015 17:22:50 GMT -5 Velar Fricative said:

I was wondering about the quotation marks too. It doesn't sound like she didn't believe the doctors re: the T18 diagnosis, which is why the quotation marks were odd.

Very sad story.

It talked about potential issues with needing a doctor to show up to make the real diagnosis to avoid anyone getting charged with manslaughter.  I'm thinking they must have all been sure about the details, but perhaps there is some legal requirement that the doctor actually examine the baby before a legal diagnosis is made? 

That was my guess, since the word diagnosis didn't have quotes when she talked about the pediatrician coming to her house after birth.