My 15 month old is in the icu updated

[obladi]

H and I are currently in the PICU with DD who is 15 months old. She is 2 respiratory infections and pneumonia. We have been here for 2 days and she is still having a great deal of trouble breathing. They have her on power oxygen, iv, and breathing treatments every two hours. There is discussion of intubation because she is so very tired. H and I are completely beside ourselves, this is such a terrible nightmare. 2 days ago DD was talking and hugging us. I am in shock and totally terrified. Also I am 13 weeks pregnant. Peripherally I am concerned about this baby as bad as that sounds, I barely can remember I am pregnant. I am obviously not sleeping well. I am supposed to have my nt scan tomorrow and I don't know how I am going to be able to leave here.

Has anyone has a toddler with this severe of a respiratory problem here? I need help and hope please please please.

Update: she is being intubated. Thank you for your support everyone, we are in shock right now

[ciescalove]

I'm so sorry. I hope she recovers quickly!

[JayhawkGirl]

Praying hard for you. You're in good hands and I hope she improves very soon.

[snipsnsnails]

I said a prayer right now. (((Hugs))) to you, mama!

[MrsAxilla]

Oh no! Poor baby. I'm sorry you're dealing with this. Try to stay positive. {{{hugs}}}

[underwaterrhymes]

I'm so sorry you're going through this.

We were never in the PICU, but our little boy (who is now almost three) spent 16 nights in the hospital during his first year of life. (We had four stays with two nights being the shortest and six nights being the longest).

He was on blow by oxygen in all cases and on IV during our first and second stays. His oxygen levels at night were in the 80s without oxygen and in the low 90s with, so we had to stay until he could get them up into the 90s overnight on his own. He was generally given inhaled steroids anywhere between every two hours to every four hours depending on how bad off he was.

During our first visit, though, his oxygen dipped to the 70s with oxygen and they couldn't get it back up for several terrifying minutes. They did pulmonary massage to get him to cough and that got them back up.

He was officially diagnosed with asthma at around age one (which is early, but given all of his respiratory issues and my husband's history with it, they knew that's what it was). He's been on twice daily pulmicort since he was 1 and albuterol every four hours when he's sick, and has been so much better. We have not had any hospital stays since March 2014. He had pneumonia during his sedond stay and severe respiratory infections during the others. Anytime he gets a cold we have to watch very closely for signs of respiratory distress because it goes straight to his chest.
I hope your little girl feels better soon. I'll keep you guys in our thoughts.


Sending a ton of hugs your way and please let me know if you have any questions.

[nsl]

I have no advice to offer, but I'm so sorry you're going through this. Your little one will be in my thoughts!

[underwaterrhymes]

Also, obladi, I googled some of my old posts and this one in particular had some very interesting and helpful suggestions:

pandce.proboards.com/thread/287035/anybodys-baby-pulmonologist?page=1

[panicfoot]

Oh my goodness. No advice, but giant hugs. If you can't leave for the scan, then don't. They'll understand and you can reschedule. If you do go, maybe they can help out you at ease about your pregnancy.

I hope your LO feels much better very soon.

[obladi]

Dec 28, 2015 3:26:05 GMT -5 underwaterrhymes said:

Also, obladi , I googled some of my old posts and this one in particular had some very interesting and helpful suggestions:

pandce.proboards.com/thread/287035/anybodys-baby-pulmonologist?page=1

I am going to read this now thank you so very much. I have been trying to search the board for others experiences but it is hard to find. I am so sorry about your early experiences with your little one but God does it help me to read about people who have come back home and had healthy kids after because it is so hard to imagine that from where I am. Dd's O2 went down in the 70s yesterday even on regular oxygen and that is when they brought her to the icu for the forced oxygen or power oxygen or whatever they call it. It has stayed above 90 foe the most part but she is just laboring to breath so very hard and we are into day 3 of that. That is why the doctors started mentioning a ventilator I guess to prepare us us because we both are so scared of that.

[pandora]

Ugh, can't imagine! I'm so sorry. I just said a prayer for you and your son. Please take care of yourself too!!

[jenstar]

How incredibly scary. I hope she's breathing better really soon! Hugs x

[Aquatica]

Sending positive thoughts your way, I'm sorry you're going through this.

[readyin07]

My God, you poor thing and your poor baby. Sending so many hugs and prayers for healing.

[knx9211]

I am so sorry. I hope that she is better soon.

[aprilsails]

Prayers for you and your little one. The idea of intubation is scary but I'm sure the doctors when what is best and the break may give your DD a chance to get ahead of the pneumonia. Big hugs to all of you.

[ginger]

Prayers and hope.

[jeaniebueller]

I am so sorry. My thoughts are with you.

[wildfloweragain]

What a tough spot. I agree with rescheduling NT. Try to remember to eat and sleep- phone alarms if you have to.
Sending healing thoughts your way.

Sent from my SM-G900V using proboards

[bcv513]

I'm so sorry to hear this. T & P's to you all.

[juliachild]

Sending so many good thoughts your way.

[Monica Geller]

T&Ps for you and your little one!

[sarahswim]

Praying for you and your little one.

[mom2twoboys]

Big hugs. I will be thinking of your little one. Hoping for a speedy recovery.

[Deleted]

My thoughts and prayers go out to you and your family

[awick14]

I'm so sorry you are going through this.

When I was born I was taken to a children's hospital less then an hr later because of respiratory problems. I was in and out of their PICU for 2 years. In the end I was diagnosed with severe asthma and multiple respiratory infections. I believe I was on a ventilator 2-3 times in those 2 years. The doctors didn't have high hopes I would survive let alone grow out of my asthma like I have. (I'm 27, almost 28 now and I only use my asthma meds when I am sick, which is maybe once a year.)

I hope your daughter recovers quickly and she comes home soon. Please take care of yourself as well.

[lovelyshoes]

Sending get well wishes and prayers.

[poppyseed]

Oh my goodness, how scary for all of you. Sending good thoughts your way and hoping your little girl recovers quickly.

[mrsukyankee]

Sending my very best hopes for your LO!

[underwaterrhymes]

i also want to reiterate what others have said: if you can, get out of the room a bit. If you're on droplet warnings, you might need a mask, but it's worth it.

Have someone bring you a pillow from home.

Go to the nurse's station and ask for carryout menus so you can have something other than hospital food.

Once she's feeling better, see if the hospital has a childlife specialist who can come and entertain her for a bit.

Someone here recommended Daniel Tiger when we were in the hospital the second time and that bought some non stressing time for everybody.

Are they letting both of you stay? That makes a big difference, IMO.

And please know your unborn baby is going to be fine. Make sure you're eating and drinking water. I know it's scary, but you're in good hands and you will get through this.