Newb re: miscarriage/eptopic

[Coley]

I've posted a few times on ML, but I'm having a rough go right now and wanted to know if anyone has been through this.

Got a BFP December 7 and had betas done the 8 and 10. Came back 22 and 24 so I know miscarriage was imminent. Started bleeding on the 14th for a few days and then stopped. Went out of town and on the 21 started bleeding heavily again (going through an ultra tampon every 45 minutes or so. OB was closed so sent me to ER where they did an US and found nothing abnormal (nor a sac or anything). Saw my OB the next day and she said my quant was at 50. Wanted to do another draw.

Got those numbers back on Monday and I was at 60. Did another draw Monday and Wednesday (this week) and I got the call that I was at 72 yesterday with progesterone at 1. Today went to the er for heavy cramping, lightheaded and vomiting. Did another US and thing were clear but my quant came back at 80.

I wanted to do a d&c asap, as I believe I have retained tissue in my lining somewhere (lining is super thick) but unless cramping becomes severe, they can't do it until Tuesday.

Everyone is stumped. We can't find any baby, tubes look clear (but they can't be certain without laparoscopic and they're suspecting possible eptopic but not sure.

I'm stressed and drained and I want answers. Has anyone had their betas come up steadily after a m/c? I know the numbers are too low to be anything at this point but a question mark as to why.

[Coley]

And I realize I should have posted this on TTCAL. My apologies.

[bina]

I have no experience with your situation, but I'm really sorry your going through it.

[Coley]

Thank you, bina. I feel like the nightmare is never ending.

[konapoppy]

I am sorry you are going through this. I didn't track my betas after either loss. The only thing I can think of (and I REALLY HOPE this isn't it), is that molar pregnancies can screw around with the numbers.

Hugs.

[VillainV]

No experience with ectopic, but I have had two miscarriages, both of which required D&Cs (I never expelled any tissue on my own, even a month after the loss).

I am SO SO sorry that you are going through this. For me, I just wanted to be done with it so I could move on. Not being able to move on was the hardest part.

And WTF that cramping so bad you went to the ER isn't enough to get you in for a D&C for another 4 days.

[sterl724]

That's awful, and I'm so sorry your going through this. No advice, just thoughts and hugs!

[prettyinpink]

I'm so sorry you are going through this. With my missed miscarriage I had an appointment at just after 6 weeks and the baby was smaller than we expected. I went back two weeks later and there had been no change so I had a D&C that day. I don't know about my betas because my doctor or Kaiser I'm honestly not sure who, is anti betas. I do know that the sac continued to grow between those two appointments and that I had been feeling sicker. I just wanted to be done so I opted for the D&C.

[mpc]

With my miscarriage last year I bled a lot for about 3 weeks - it started just a few days after my BFP. Betas kept going up, but not doubling, that whole time. Finally I had another big bleeding episode and my betas started dropping. There was no special explanation, it was just a thing that took a long time to resolve. I hope things resolve for you soon. So sorry about your loss.

[luv2rn4fun]

((Hugs)) I'm really sorry you are going through this. A loss is hard enough but then this long drug out roller coaster and not being able to move on is the worst.

I have had 2 losses. First at 10.5 wks, d&c, no betas....just took a hot and followed myself (had a positive for 4 wks).

Second was at 7.5 wks and I m/c naturally after seeing the hb had stopped. I had been spotting for 1.5 wks, no hb at thurs appt, heavy bleeding started Sat morning, labor pains 14 hrs later and fetus came out at 5:45p Sun evening (I thought it was over since the bleeding had stopped very early Sun morning). Followed betas down to zero which only took about a week.

So many hugs and prayers that you get closure soon. Sorry your doctor isn't being as helpful and proactive in getting you your d&c sooner...I would maybe look for a new practice...one of the reasons I love my OB so much (and now drive 50 miles to see her...We moved and I didn't/won't change OB) is because she was really there for me through both my losses and pushed to get me the best care possible. She even gave me her pager # so I could call her directly off hours and promptly returned my call Sun evening during my second loss.

[Coley]

Thank you all for your thoughts and for sharing your stories. I'm sorry any of us have to go through this.

Yesterday my OB did both and D&C and a laparoscopic surgery. She had to remove my right ovary as well as the right Fallopian tube. The baby had implanted on my ovary and showed on US as a cyst. I also had an abnormality on my tube and she noted I have a minor case of endometriosis. It's been a hell of a week but I'm glad to have answers and for the process to be over. Now to finish healing- both mentally and physically.

[Blue Moon]

Coley, I'm so sorry for your loss and the emotional and physical trauma of everything you've been through. I had an ectopic pregnancy that presented very similarly to yours. My betas were slowly going up, I was bleeding randomly, and I was having a lot of pain. I wound up at the ER when the pregnancy burst my tube and the pain was unbearable. I lost my right tube as well during the D&C and lap surgery. My physical recovery wasn't so bad, and I remember being in my SIL's wedding less than one month after surgery and noting that I physically felt 100% normal. Emotionally, it did take me a while longer but my OB said to avoid TTC for 3 months anyway so it wasn't an issue. Sending you many good thoughts for a speedy physical and emotional recovery.

***Healthy Pregnancy mentioned below, so please feel to skip if it's not the right time.



My husband and I decided to officially TTC again as soon as we were allowed. I was so worried that because I had lost a tube TTC was going to be a difficult process. Luckily, I got pregnant immediately and went on to have a perfectly normal and healthy pregnancy. My ectopic surgery was on August 28, 2013. My beautiful daughter was born on August 29, 2014.

[Coley]

Blue Moon thank you for your response and I'm so happy for the positive outcome!! All of the products of the surgery were sent to pathology and my OB will go over them with me. She also wants to participate with my RE (I've had 5 MC, a partial molar pregnancy and I lost my son at 23 weeks due to him having one malformed kidney). My OB wants to act as my personal advocate. I don't think that she wants me to try again as I've been through so much already. My H and I are not sure how we want to proceed. We just had the initial meeting with the RE a month ago when we found out we were miscarrying again.

[bina]

Coley thinking of you and wishing you the best. I'm sorry for all you've gone through.

[Coley]

Thank you!

[Coley]

Update: I went in for a hcg check post op on Friday. Yesterday I thought I was just getting a second draw but the nurse said the doctor wanted to see me. My betas went from 70 (day of surgery- Tuesday) to 100 on Friday. She did another draw yesterday and now they want to do a chest X-ray. She's working with my hematologist (in nov 2014 while pregnant I had a blood clot so now every time I TTC I have to take blood thinners). If the X-ray is clear, I have to go for a PET scan.

I am so frustrated and scared. The C word came up and I just can't.

[konapoppy]

Oh I am so sorry Coley. Thinking good healthy thoughts.

[awick14]

I know this is an older post but I just wanted to say that I am so sorry Coley.

All of this is so heartbreaking without the C word being said. ((Hugs))

[Coley]

Thank you awick14. I have the PET scan tomorrow and found out my quants went from 75 last Wednesday to 53 on Friday. So while they should be at zero by now (tomorrow is two weeks post op) at least that was good news. I'll hear the results from the PET within 24-48 hours.

[bina]

Coley, thinking of you and I hope you received good news.