DS was recently diagnosed with dyslexia (he's in 2nd grade.) We have our first 504 planning meeting next week. He's a terrifically bright kid who has been on the cusp of reading "at level" since he started school.
His teacher is AMAZING with him. I can't sing her praises enough. She has been so on board with pushing his evaluation and diagnostic meetings with our district. We both suspected dyslexia. Even still, it's hitting me kind of hard. It doesn't help that today has been a crappy day (really, really sick pet, blah.)
Anyway, I need to hear from good news about having dyslexia. I have some really irrational and unfounded fears about his academic success and just his success in life in general. Reassure me. Please?
My 4th grader was finally diagnosed with it. He's always read at grade level because he has literally memorized every word but has no phonetic awareness and can't spell to save his life unless it is a word that he has had to memorize for a spelling test.
He just started SPIRE at school and next week he starts with a private tutor who is going to work with him as well. We are going all the way back to nonsense words.
As for positive stories I have a friend from law school (I still don't know why he did that to himself) who didn't learn to read until 6th grade but still went on to an Ivy for undergrad and a T25 law school.
My good friend's son has done all the wilson books and now is doing incredibly well at school. It is still hard work but he's hanging tough at an academically rigorous private school.
Post by 2curlydogs on Jan 13, 2016 17:49:44 GMT -5
We're all fairly certain my brother has it. You didn't get tested for this sort of thing when you were in a 70s Catholic grade school.
He has an associates degree in computer engineering (I think) and is now the head of IT Security for a company in the medical industry. I'm pretty sure he's making six figures doing that.
Post by 1confused1 on Jan 13, 2016 17:57:00 GMT -5
Can I ask how you figured out he had it?
I have been worried about my daughter recently and dyslexia crossed my mind, but she has a speech delay and I don't know if her issues are just because of that.
I have been worried about my daughter recently and dyslexia crossed my mind, but she has a speech delay and I don't know if her issues are just because of that.
So much of it all comes together.
My DS had/has speech delays. Also the first question the new SPIRE teacher asked was did he have a lot of ear infections as a baby. My son literally does not seem to recognize some sounds when given a spelling test.
I pushed for testing and the school denied because they said his inability to spell was related to his ASD dx. They totally brushed off my concerns that he was spelling on a 2st grade level in 4th grade even though they had tested him for gifted in 2d. His IQ and spelling abilities showed a huge discrepancy. We finally paid out of pocket to do a full psycho-educational evaluation and that's how we got answers and a game plan.
We just finished having DS privately tested for dyslexia. I have always been suspicious of his reading. He was slow to pick it up and even though he is now reading on level it is very laborious.
Unfortunately our school provides no diagnosis or services specific to dyslexia. DS's teacher thought I was crazy when I brought it up. So we are skipping the school completely and getting him private help. We can bring the diagnosis to the school and get a 504 plan should he need accommodations.
As far as positive stories, DH has always suspected he has undiagnosed dyslexia. He has a degree in computer science and is a very successful engineering manager.
Did you talk to your pediatrician first or go straight to the school?
My son came up through Early Intervention so he's had an IEP since he started school (actually since he was 3).
I've been commenting to his teachers for years (he's in 4th) that he seemed to be a whole word reader and not decoding) but because he's at grade level on his DRA testing no one seemed to care. Even last month his dyslexia tutor commented that he scored in the 80th percentile on his STARS test.
I tried calling an IEP meeting and when I suggested they test for dyslexia they told me they can't I have to see my pediatrician.. which was comical because the school has a psychologist on staff to do pscyho-educational testing and that is exactly who my pediatrician would have referred me to.
It was the first time I really felt frustrated with the whole IEP process. Also his teacher this year didn't speak up at all, meanwhile the same week my 5th grader's teacher was awesome really advocating for my other DS during his gifted IEP meeting asking for things I would have never thought to have considered etc. This year I've had to remind DS2's teachers he has an IEP over and over again.
Also I need to learn the ins and outs but I think the education law that was just signed by Obama includes some specific language about dyslexia.
No personal experience with testing and diagnosis but my exBIL has dyslexia and is a very successful automotive engineer.
Dyslexia is really common amongst engineers and I have suspected since my DS was about 9mos old that he is destined to be an engineer (he was always the kid who tried taking things apart including the baby gate at 9mos--in 2d grade he sewed purses for his market day project 1) because he figured he could put a higher $$ value on items if he marketed to the girls in his class but 2) he spent the whole time trying to figure out exactly how my sewing machine works. He loved the whole bobbin, etc.)
Did you talk to your pediatrician first or go straight to the school?
My son came up through Early Intervention so he's had an IEP since he started school (actually since he was 3).
I've been commenting to his teachers for years (he's in 4th) that he seemed to be a whole word reader and not decoding) but because he's at grade level on his DRA testing no one seemed to care. Even last month his dyslexia tutor commented that he scored in the 80th percentile on his STARS test.
I tried calling an IEP meeting and when I suggested they test for dyslexia they told me they can't I have to see my pediatrician.. which was comical because the school has a psychologist on staff to do pscyho-educational testing and that is exactly who my pediatrician would have referred me to.
It was the first time I really felt frustrated with the whole IEP process. Also his teacher this year didn't speak up at all, meanwhile the same week my 5th grader's teacher was awesome really advocating for my other DS during his gifted IEP meeting asking for things I would have never thought to have considered etc. This year I've had to remind DS2's teachers he has an IEP over and over again.
Also I need to learn the ins and outs but I think the education law that was just signed by Obama includes some specific language about dyslexia.
This was my exact experience. I know some people have success fighting with the school but I figured we could get DS help faster if we left the school out completely. I felt a little better when the psychologist who did the testing made the remark that he could see how the school might miss it.
Did you talk to your pediatrician first or go straight to the school?
My son came up through Early Intervention so he's had an IEP since he started school (actually since he was 3).
I've been commenting to his teachers for years (he's in 4th) that he seemed to be a whole word reader and not decoding) but because he's at grade level on his DRA testing no one seemed to care. Even last month his dyslexia tutor commented that he scored in the 80th percentile on his STARS test.
I tried calling an IEP meeting and when I suggested they test for dyslexia they told me they can't I have to see my pediatrician.. which was comical because the school has a psychologist on staff to do pscyho-educational testing and that is exactly who my pediatrician would have referred me to.
It was the first time I really felt frustrated with the whole IEP process. Also his teacher this year didn't speak up at all, meanwhile the same week my 5th grader's teacher was awesome really advocating for my other DS during his gifted IEP meeting asking for things I would have never thought to have considered etc. This year I've had to remind DS2's teachers he has an IEP over and over again.
Also I need to learn the ins and outs but I think the education law that was just signed by Obama includes some specific language about dyslexia.
Thank you again. She also has a IEP (she's in 1st). I think I will mention something to her teacher and see what she says.
Good, solid intervention now will pay dividends later. It's great he's been diagnosed this early. I know you will be an amazing advocate for him. I'm not sure what the options are in your area, but research-backed reading programs such as Orton-Gillingham are fantastic for catching up kids with dyslexia and other decoding vulnerabilities. I know many people with dyslexia who have gone on to college success and great careers.
This. One of the most successful people I know is dyslexic and never received help for it. It made him more determined to be successful. I know too many people to count who have it, adults and kids, alike. My DD had 3 years of Orton-Guillingham tutoring for a different problem, and it made a whole world of difference. Getting help early is very helpful, many kids are not diagnoses until 3rd, 4th, and 5th grades, and have already missed a lot. Just a word of caution, it obviously depends on your school system, but ours does not provide O-G tutoring, and what they do provide is not nearly as effective for a lot of kids. We had to pay out of pocket for tutoring. I know some people who tried the schools program for a couple of years, and eventually switch to private tutoring, but in our mind, earlier was better, and we don't regret it.
My son came up through Early Intervention so he's had an IEP since he started school (actually since he was 3).
I've been commenting to his teachers for years (he's in 4th) that he seemed to be a whole word reader and not decoding) but because he's at grade level on his DRA testing no one seemed to care. Even last month his dyslexia tutor commented that he scored in the 80th percentile on his STARS test.
I tried calling an IEP meeting and when I suggested they test for dyslexia they told me they can't I have to see my pediatrician.. which was comical because the school has a psychologist on staff to do pscyho-educational testing and that is exactly who my pediatrician would have referred me to.
It was the first time I really felt frustrated with the whole IEP process. Also his teacher this year didn't speak up at all, meanwhile the same week my 5th grader's teacher was awesome really advocating for my other DS during his gifted IEP meeting asking for things I would have never thought to have considered etc. This year I've had to remind DS2's teachers he has an IEP over and over again.
Also I need to learn the ins and outs but I think the education law that was just signed by Obama includes some specific language about dyslexia.
Thank you again. She also has a IEP (she's in 1st). I think I will mention something to her teacher and see what she says.
the beauty of already having an IEP in place is now they have to meet all of her educational needs The kids who 'only' have dyslexia have almost no luck getting services through the schools at best just 504 plan accommodations.
Post by earlgreyhot on Jan 13, 2016 20:30:35 GMT -5
I'm keeping an eye out for my son, 5.5 in K. He's been evaluated for basic delays through the school but none were found, but he's definitely struggling to be at grade level. He's in the bottom of his class for reading (it's him and a couple non-native English speakers and student with ASD and a low vision student). He's super curious and always asking about how things work and loves book...but actual reading is just not clicking. I'm going to see where he is at the end of the year to decide how to proceed.
My DH (an trained engineer) has said he sees his certain letter switched now and he didn't really learn to read until he was 7 and remembers having to work hard to memorize words.
Post by steamboat185 on Jan 13, 2016 22:19:01 GMT -5
I'm dyslexic. I was diagnosed in first grade in the early 80's. It was rougher when I was growing up, but both my parents were teachers so that helped. Computers have made a world of difference for me. My parents had me typing everything at an early age (Apple iie!) the instant feedback that a word was typed wrong really helped, but it takes time. I failed spelling test after spelling test not from not studying, but because it made no sense. I remember getting very mad at my 8th grade English teacher because she was making me look up a word in the dictionary, but I couldn't find the word because I had no idea how to spell it I just knew it started with D. Once spelling and grammar became less of a focus I moved into the advanced classes and finished in AP English.
I always loved reading. Sometimes it was hard or sentences made no sense, but context clues really helped. Writing was way worse.
Math sucked! I went from being in the 95th percentile to almost failing and I had tutors through college. I could explain theories and teach them to people, but couldn't actually do the math problems. Now I work with numbers daily, once again computers have helped a ton. I've also learned to look my most common spots for mistakes. I still don't always see errors especially when copying long numbers from paper into a computer or onto another paper, but it is easier.
Good coping mechanisms are really helpful. I'll always be dyslexic, but it doesn't impact me nearly as badly as when I was younger. DH helps and catches a lot of my silly everyday mistakes (right when I mean left). I've read that the neurons can sometimes be retrained. I think that might be true.
My best friend in middle and high school was also dyslexic and very smart. It helped to have each other in classes. She is now a scientist working on cancer research. My cousin has it too and he is a high school math teacher and runs his own brokerage part time. We will be looking for signs of it in my DD as there is some research it is genetic and my dad almost certainly has it, but they didn't test in the 50's he just got hit by nuns.
DS is a repaired dyslexic. He also has ASD, ADHD and GAD. Dyslexia is the one thing we came closest to fixing.
Ds was dxd in the middle of first grade; we were surprised because DS's speech was early and flawless. We did some RTI type interventions at his indie school but they weren't up to the task. We started a private Orton-based school the summer before 2nd and kept him enrolled year round until we bridge to public school for 4th. Studies we saw suggested that the outcomes were best when a child starts specialized instruction before he's 9. IMHO, Orton Gillingham and Lindamood Bell are the best multisensory circula for dyslexia. Wilson is meh. DS also did a pilot Read 180 program in high school that really raised the bar on written expression.
By the time DS bridged he was at grade level in a district where most kids are several grades ahead. By 9th, he was reading college undergrad for non-fiction and grade level for fiction. Fiction is a special challenge with ASD for a lot of reasons. He's a college senior who easily manages 500 pages a week.
There are so many great resources for adapting to dyslexia nowadays that it is really very manageable.
I've done a lot of testing on kiddos for LD, and so many of the kids are very bright and intelligent, and easily able to compensate for the dyslexia with a few simple accommodations.
DD has apraxia which puts her at a higher risk of having dyslexia. She's 5 and not reading yet so it's too soon to tell but it's something I am keeping my eye on for sure.
DH struggled to learn how to read. I think he was in third grade before it really clicked for him. I wouldn't be surprised if he has undiagnosed dyslexia. Elementary school was a struggle for him but he excelled after that and does very well today in his career. DH's best friend was diagnosed with dyslexia in the late 70's and while reading is still a struggle for him he still did well in school, got a PhD, and is now a chemist.
I'm keeping an eye out for my son, 5.5 in K. He's been evaluated for basic delays through the school but none were found, but he's definitely struggling to be at grade level. He's in the bottom of his class for reading (it's him and a couple non-native English speakers and student with ASD and a low vision student). He's super curious and always asking about how things work and loves book...but actual reading is just not clicking. I'm going to see where he is at the end of the year to decide how to proceed.
My DH (an trained engineer) has said he sees his certain letter switched now and he didn't really learn to read until he was 7 and remembers having to work hard to memorize words.
This is BS.. There shouldn't be "grade level" in K. I swear this is why my DS3 hates to read and I really really regret not leaving him at montessori for K. DS1 started public school at 1st. He wasn't reading. Lowest reader in his class. It clicked about 1/3d of the way into the school year and by the end of the year he was reading Harry Potter. It is completely developmentally appropriate for a kid to start reading anywhere from 5-7. There is a reason we used to not really "teach" reading until 1st and 2d grade.
I'm keeping an eye out for my son, 5.5 in K. He's been evaluated for basic delays through the school but none were found, but he's definitely struggling to be at grade level. He's in the bottom of his class for reading (it's him and a couple non-native English speakers and student with ASD and a low vision student). He's super curious and always asking about how things work and loves book...but actual reading is just not clicking. I'm going to see where he is at the end of the year to decide how to proceed.
My DH (an trained engineer) has said he sees his certain letter switched now and he didn't really learn to read until he was 7 and remembers having to work hard to memorize words.
This is BS.. There shouldn't be "grade level" in K. I swear this is why my DS3 hates to read and I really really regret not leaving him at montessori for K. DS1 started public school at 1st. He wasn't reading. Lowest reader in his class. It clicked about 1/3d of the way into the school year and by the end of the year he was reading Harry Potter. It is completely developmentally appropriate for a kid to start reading anywhere from 5-7. There is a reason we used to not really "teach" reading until 1st and 2d grade.
I totally agree it's BS!
I'm still trying to process all my feels vs the experience vs expectations. While I love his teacher (she's enthusiastic, warm, does an excellent job communicating what's going on in the class, etc etc) she has them writing a ton...which DS simply can't do without a ton of support. She was sending home packets of worksheets for HW but we put a stop to that and just focusing on the reading logs (where we read to him...) and he can do some online math app on the iPad.
It is frustrating, though, to overhear parents complaining about not enough, or too easy homework!! Plus there are several kids who are in tutoring already! It's definitely not what I expected in a public school....and a not particularly high ranking one at that!
What is also frustrating is seeing the common core statutes included on the worksheets and things like "test prep" and wanting bubbles filled in. I mean, I am not against CC in theory, but that seemed overkill to me. But whatever, I'm not seeing it anymore.
He still likes school and that I don't want to change so I'm not forcing anything. He will spend hours building things with his Legos and building robots out of random crap...which is what 5 years should be doing in their free time. If he needs more supports in the next couple years then we will make it happen.
My 15 yo dd has dyslexia. She has had an iep since 2nd grade and is doing beautifully. She is still only at a 7th grade reading level (she is a freshman in HS) but has been moved into all mainstream classes with a few modifications and is monitored regularly for her progress. She is a super hard worker and is on honor roll.
Total anecdote below with no scientific evidence at all: I think my dd may have a slight advantage over a lot of her peer group because learning has never been easy for her so she is used to hard work. A lot of her friends skated through middle school but are struggling with the work load of high school, for my dd and a few other children I know with ieps they seem more adaptable to working for their grades. To add to that my stepfather had really bad dyslexia and still can't read well as an adult. So he opened his own business in his 30s and is very very successful.
**And I never thought there was a connection before but after reading this thread I always thought my dd had an engineers brain (I am an engineer so I am pretty familiar with the breed, lol) I wonder if the dyslexia has anything to do with it.
My 15 yo dd has dyslexia. She has had an iep since 2nd grade and is doing beautifully. She is still only at a 7th grade reading level (she is a freshman in HS) but has been moved into all mainstream classes with a few modifications and is monitored regularly for her progress. She is a super hard worker and is on honor roll.
Total anecdote below with no scientific evidence at all: I think my dd may have a slight advantage over a lot of her peer group because learning has never been easy for her so she is used to hard work. A lot of her friends skated through middle school but are struggling with the work load of high school, for my dd and a few other children I know with ieps they seem more adaptable to working for their grades. To add to that my stepfather had really bad dyslexia and still can't read well as an adult. So he opened his own business in his 30s and is very very successful.
**And I never thought there was a connection before but after reading this thread I always thought my dd had an engineers brain (I am an engineer so I am pretty familiar with the breed, lol) I wonder if the dyslexia has anything to do with it.
In two of my kids IEP meetings it was noted that having the speech articulation issues would have a positive impact long term in that they know how to work on something really hard and somethings don't come easily. My DS1 is gifted but I'm thankful he already knows how to work hard and stick with something because seriously, academically I never felt like I had to work hard until I actually started practicing law. Even law school wasn't particularly hard and probably some of the most fun 3 years of my life.
My DS2 has some amazing coping skills because of his dyslexia and a really hard worker too, although he comes home exhausted from school and doesn't want to do homework which causes fights unlike DS1 who comes home, does his homework and moves along to his fun stuff.
Here are the names of some of the many talented and accomplished individuals who are dyslexic, or historic figures who had the pattern of talents and learning difficulties associated with dyslexia or related learning styles:
Actors & Entertainers:
Harry Anderson Jennifer Aniston Orlando Bloom Harry Belafonte Charley Boorman Jim Carrey Danny Glover Whoopi Goldberg Susan Hampshire Jay Leno Christopher Lowell Aakash Odedra, Dancer. Keanu Reeves. Kiera Knightley Oliver Reed. Billy Bob Thornton. Tom Smothers Vince Vaughn Henry Winkler Loretta Young Orlando Bloom Whoopi Goldberg Robin Williams
Inventors & Scientists:
Ann Bancroft, Arctic Explorer. Alexander Graham Bell. John Britten, Inventor. Pierre Curie, Physicist (1903 Nobel Prize). Thomas Edison. Albert Einstein. Michael Faraday. Carol Greider, Molecular Biologist, awarded 2009 Nobel Prize in Medicine. Jack Horner, Paleontologist. Dr. Peter Lovatt, psychologist and dancer. Dr. James Lovelock. Paul MacCready "Engineer of the Century." Archer Martin, Chemist (1952 Nobel Laureate) Matthew H. Schneps, Astrophysicist John R. Skoyles, Brain Researcher.
Artists, Designers, & Architects:
Leonardo da Vinci. Ansel Adams, Photographer. David Bailey, Photographer. Chuck Close. Ignacio Gomez, Muralist. Tommy Hilfiger, Clothing Designer. Ian Marley, Contemporary Artist, South Africa. Pablo Picasso. Robert Rauschenberg. Auguste Rodin. Bennett Strahan Robert Toth Jørn Utzon (architect, designed Sydney Opera house) Andy Warhol. Willard Wigan, micro sculptor. David Boies Pablo Picasso Cher
Law & Justice:
David Boies, Attorney. Erin Brockovich, Investigator. Jeffrey H. Gallet, Judge.
Military Heroes:
Thomas Jonathan "Stonewall" Jackson. George Patton. Musicians & Vocalists:
Cher. Brad Little. John Lennon. Nigel Kennedy, Violinist. Bob Weir, Grateful Dead Guitarist.
Athletes:
Muhammad Ali, World Heavyweight Champion Boxer Meryl Davis Olympic Gold Medalist, Figure Skating. Duncan Goodhew, Olympic Swimmer Bruce Jenner, Olympic Decathlon Gold Medalist Magic Johnson Greg Louganis Bob May, golfer. Diamond Dallas Page, World Wrestling Champion. Steve Redgrave, Olympic Gold Medalist (rowing). Nolan Ryan, Baseball Pitcher. Rex Ryan, Coach. Jackie Stewart, race car driver. Magic Johnson Greg Louganis Gavin Newsom
Physicians & Surgeons
Harvey Cushing, Surgeon. Fred Epstein, Neurosurgeon. Political Leaders:
King Carl XVI Gustaf of Sweden. Andrew Jackson. Dan Malloy, Governor of Connecticut. Gavin Newsom, Mayor of San Francisco; Lieutenant Governor of California. Nelson Rockefeller. Paul Wellstone, U.S. Senator. Woodrow Wilson. George Washington. Entrepreneurs & Business Leaders:
Richard Branson,Founder of Virgin Enterprises. John T Chambers,CEO of Cisco Systems. Henry Ford. William Hewlett, Co-Founder, Hewlett-Packard. Ingvar Kamprad, founder of IKEA. Sir Peter Leitch, New Zealand businessman Craig McCaw, Telecommunications Visionary. O.D. McKee, founder of McKee Foods. David Neeleman, CEO of jetBlue Airways. Paul J. Orfalea, founder of Kinko's. Charles Schwab, Investor. Ted Turner, President, Turner Broadcasting Systems. Robert Woodruff, President of Coca-Cola, 1923-1954. Frank W. Woolworth.
Filmmakers:
Robert Benton. Nicole Betancourt, Emmy-winning filmmaker. Walt Disney. Søren KraghJacobsen (Danish film director). Steven Spielberg Richard Branson Avi Ingvar Kamprad Sally Gardner David Neeleman Patricia Polacco
Writers & Journalists:
Scott Adams, Cartoonist (Dilbert) Hans Christian Andersen Avi Jeanne Betancourt, (Author of "My Name is Brain Brian"). Stephen Cannell, television writer & novelist. John Corrigan, novelist. Larry Chambers. Agatha Christie. John Edmund Delezen, author of Eye of the Tiger and Red Plateau. Andrew Dornenburg, award-winning author and chef. Jane Elson, children's author and playwright. Richard Engel, NBC Foreign Correspondent. Fannie Flagg (Author of "Fried Green Tomatoes at the Whistle Stop Cafe"). F. Scott Fitzgerald. Gustave Flaubert. Sally Gardner, children's writer and illustrator. Terry Goodkind fantasy writer, author of The Sword of Truth series. Byron Pitts, CBS News Correspondent. Patricia Polacco, Children's Author and Illustrator. Eileen Simpson (Author of "Reversals"). Natasha Solomons, contemporary novelist. Philip Schultz, winner of 2008 Pulitzer Prize for poetry. Elizabeth Daniels Squire(author of mystery novels). Bernie Taylor, author of Biological Time. Victor Villaseñor, author of bestselling novel, Rain of Gold William Butler Yeats, poet.
So my son is in first and is struggling with reading. He does okay memorizing the sight words, but has a hard time sounding things out. He also very commonly mixes up numbers, like 23 will be 32, etc.
I think I will ask his teacher in our upcoming conference on her thoughts.