Lyme people, an update.

[scottyderp]

My Lyme is clear.  My Nano. Trap test came back negative.

I have high c4a and other immuno-suppressor issues.  Something's still brewing, mainly looks like inflammation, but my doc and I haven't had a follow-up, yet, to talk.

So, no more abx for me.  I am a little nervous about what is going on.  Because one of the high measures in my blood suppresses things like autoimmune disease.  I don't know enough about science/the body to understand on my own, but I'm really good at worrying about it. 

So, hey, I'm at least Lyme-free at this point.  I feel weird when stress gets bad, but that could be COMT mutations.

I'm just going to keep kicking ass, being weird, you know.

[isabel]

I don't know if I know the appropriate reaction here since you still seem to have a lot going on, but I'm glad the Lyme is gone for now!

[scottyderp]

Thank you. I am glad, if it would have been positive, we would have started with Amoxicillin twice per day, I think 1000 mg a day for three months. I was not looking forward to that. lol.

My tone is weird, I'm sorry. It is very good news! I can deal with the rest.

[scottyderp]

Jan 21, 2016 13:38:44 GMT -5 @tambcat said:

#fvckyeah!  hahaha thanks!

[scottyderp]

If anyone knows anyone who needs a more up-to-date Lyme test, Nano.Trap was developed by George Mason U, I think, and it's completely legit, it's just expensive, $400. But, worth it, it's a urine test.

That's another great thing, out of pocket expense will go down! Woo!

[scottyderp]

Jan 21, 2016 13:40:54 GMT -5 @tambcat said:

Glad your test came back clear. I hope whatever else is going on clears up too.

Oh, no, the crazy is staying.

[Bernadine]

I'm glad you got good news! And I hope you're able to figure out the rest. Autoimmune stuff is so tough.

[scottyderp]

Also, if I could get that pic of Sally on a t-shirt, that would be greeeeat.

[Eagles]

Holla! I hope you can figure out the rest and keep on being a boss.

[scottyderp]

Jan 21, 2016 13:44:57 GMT -5 Eagles said:

Holla! I hope you can figure out the rest and keep on being a boss.

I'm on this diet (it's not really a diet, you just eat healthy, basically) that helps.  I'm good.  Hell, I'm great.  Thank you!

[calle28]

Glad your Lyme free! Hope they figure out all the other stuff soon Scotty.

[FastHands]

Good news! Hope you can manage the other parts that need managing. (Can you tell I only have a vague sense of what's happening here? )

[speckledfrog]

No more lyme? Yay! That's great.

[mom2twoboys]

Glad your test came back negative. Yay to no more Lyme disease! Hopefully you get answers to the rest.

[ginger]

Kick ass!

[aprilsails]

So glad you font have to do further courses of antibiotics! Yay for Lyme free!

My friend got cleared last year and is expecting! I'm so happy for her. She was miserable during treatment.

[keyslover]

Did you test for mycotoxins? It's a urine test as well.
After being on high amounts of abx long term, inability to detox and immune issues can lead to mycotoxins.

It used to be a separate issue, but they are finding the crossover with Lyme people is common.

Congrats at Lyme not being an issue anymore, that is huge.

I hope the other pieces of the puzzle come together soon.



Eta- are you still symptomatic?

[sofamonkey]

Jan 21, 2016 13:41:34 GMT -5 scottyderp said:

If anyone knows anyone who needs a more up-to-date Lyme test, Nano.Trap was developed by Georgetown U, I think, and it's completely legit, it's just expensive, $400. But, worth it, it's a urine test.

That's another great thing, out of pocket expense will go down! Woo!

Does it test all bands of Lyme? I think there are 3? Last time I had Lyme, I tested negative for a portion for a while before I got the all clear.  

This time (ugh, that sucks to type!!!), I am dealing with some coinfections, and we are adding hyperbaric treatment. I will ask about this test, as my doc is really getting to be a specialist. 

[sofamonkey]

@

Congrats!!! What a fantastic and freeing bit of news!!

[keyslover]

Jan 21, 2016 15:40:25 GMT -5 sofamonkey said:

Jan 21, 2016 13:41:34 GMT -5 scottyderp said:

If anyone knows anyone who needs a more up-to-date Lyme test, Nano.Trap was developed by Georgetown U, I think, and it's completely legit, it's just expensive, $400. But, worth it, it's a urine test.

That's another great thing, out of pocket expense will go down! Woo!

Does it test all bands of Lyme? I think there are 3? Last time I had Lyme, I tested negative for a portion for a while before I got the all clear.  

This time (ugh, that sucks to type!!!), I am dealing with some coinfections, and we are adding hyperbaric treatment. I will ask about this test, as my doc is really getting to be a specialist. 

We were looking at HBOT, but the time commitment is nuts! The only local place is open 10-5 M-F. The level needed would take a out 1 1/2-2 hours. You are supposed to do the treatment daily!

[scottyderp]

Jan 21, 2016 15:40:25 GMT -5 sofamonkey said:

Jan 21, 2016 13:41:34 GMT -5 scottyderp said:

If anyone knows anyone who needs a more up-to-date Lyme test, Nano.Trap was developed by Georgetown U, I think, and it's completely legit, it's just expensive, $400. But, worth it, it's a urine test.

That's another great thing, out of pocket expense will go down! Woo!

Does it test all bands of Lyme? I think there are 3? Last time I had Lyme, I tested negative for a portion for a while before I got the all clear.  

This time (ugh, that sucks to type!!!), I am dealing with some coinfections, and we are adding hyperbaric treatment. I will ask about this test, as my doc is really getting to be a specialist. 

Good question.  I am pretty sure.  I see an LLMD, so, the doc is careful to cover all bases before giving me the okay.

[scottyderp]

Jan 21, 2016 15:03:34 GMT -5 keyslover said:

Did you test for mycotoxins? It's a urine test as well.
After being on high amounts of abx long term, inability to detox and immune issues can lead to mycotoxins.

It used to be a separate issue, but they are finding the crossover with Lyme people is common.

Congrats at Lyme not being an issue anymore, that is huge.

I hope the other pieces of the puzzle come together soon.



Eta- are you still symptomatic?

Uh, not yet?  I will ask about that, though.  Thank you!

I don't feel great.  I feel better than I did, which, to me is GOOD, but I have neuropathy in my face that comes and goes, sometimes.   Pain, that sort of a thing.  Neuro stuff.  All worse before/around my period and when I am stressed.

[sofamonkey]

Jan 21, 2016 16:13:25 GMT -5 keyslover said:

Jan 21, 2016 15:40:25 GMT -5 sofamonkey said:

Does it test all bands of Lyme? I think there are 3? Last time I had Lyme, I tested negative for a portion for a while before I got the all clear.  

This time (ugh, that sucks to type!!!), I am dealing with some coinfections, and we are adding hyperbaric treatment. I will ask about this test, as my doc is really getting to be a specialist. 

We were looking at HBOT, but the time commitment is nuts! The only local place is open 10-5 M-F. The level needed would take a out 1 1/2-2 hours. You are supposed to do the treatment daily!My doc said 2 times a week is sufficient, 3 if you're super ambitious. And it's about 1.5 hours from start to stop. Not too bad.

[keyslover]

Jan 21, 2016 17:02:56 GMT -5 carrotsmakemefat said:

So what is that nano test? Is that where they check your blood under the microscope?

I'm very happy for you! Keep fighting the good fight for overall wellness my friend!

It's a urine test.
It's pretty new. lLMD mentioned it during our last appt. it sounds promising and more accurate than an test out there.

[karmasabiotch]

That's great news. Hopefully whatever the other issue is(are) will be easy fixes.