Update on MIL

[Deleted]

Thanks for the tag yesterday dana86 . I know I haven't been around although I peek in and skim stuff every few days. Things keep going up and down with MIL and it's emotionally and physically exhausting.

I'm just trying to get through work as I can then go home and zone out on my video game or on tv with H and hope there's something premade in the freezer from TJs that we can have for dinner or we pick up fast food. We have no energy to deal with food. My period started today so I'm extra-out of sorts so hoping I have the energy to go get taco seasoning, beef, salsa, and tortillas and we'll just make up that and have tacos every night this week for less effort. Bleeding money between all the eating out, grabbing food on the go as we can, extra gas, and then no energy when we *are* home to get groceries or do anything with them.

We got her transferred out of the hospital a week ago yesterday back to the care center she was at before (because none of the ones closer that we wanted would take her due to stupid billing coding crap) and it's all the way in Fed Way when we wanted her West Seattle/White Center/Burien and closer to friends and family for visiting. Last Wednesday when I visited, she was doing great! The hour I was there, she was using full sentences and coherent and carrying on a conversation and able to hold her own cup and drink from a straw, LOADS better than she had been in the hospital. Then we went to visit her on Easter and she could barely speak more than a word and that was with effort and she wouldn't eat (I had made devilled eggs to entice her) and slept and needed lots of morphine for pain.

Yesterday, we got called that she had been unresponsive in the morning and her blood sugar was crazy low. They started giving her sugar injections and by the time her friend visited, she was indicated she wanted to see us then. I thought for sure this was it, we get there and she's in a lot of pain. We have a care meeting with staff at 1pm...and they talk about how its strange since she's not diabetic and we just stare in horror. SHE IS FREAKING DIABETIC!! Apparently, the hospital completely left that OUT of her transfer charts!! Also, they talked to us about moving her to "comfort care"...and we were confused again. That's what we thought she was ON the WHOLE TIME. Again, nothing in the records the hospital sent over indicated that. So what the hospital told us and we agreed to, etc, was not properly passed on to the care center. What a clusterfuck. We spent most of yesterday just trying to entice,cajole,bully MIL into taking sips of juice (she's not a big sweets person and with her appetite nil and her levels so bad, everything tasted 'too sweet' so it was just frustrating). She started perking up slightly but it will be a bit of a battle. Taking proper care of her blood sugar levels so that she feels ok should be part of comfort care, ffs.

Work has been really kind about letting me take off at a moment's notice as needed. It's an emotional rollercoaster to think "it will be today or tomorrow" and then everything kind of changes again. Before she left the hospital, we were under the impression it would be any day, then she seemed to get better, then worse again. Don't know if this is just the blood sugar not being known to be monitored or the previous upswing was the temporary boost from getting out of the hospital and this second down turn is the permanent bit. I really want to just go home and nap and not do anything or have responsibilities for a while but don't have that luxury or option.

Did I ever mention how much I *hate* fair rides? Like, I won't even do the Ferris Wheel. Anyway, just keepin' on as best as we can as there isn't really any other option.

[Deleted]

That sounds really frustrating dear! Keep me posted if I can do anything for you. Love you lots oxoxox

[dana86]

I just want to give you a big hug. I sadly know what you are going through and we went through a very similar thing with my grandma and are still kind of going through it. Its the hardest thing when there are so many ups and downs in their health and especially when they are so drastic. Dealing with the centers and the hospital are just the worst and will never be easy especially if she is going back and forth between them. We also had to learn that the hard way. Just hang in there, I know its hard and draining

[madDawg228]

I'm sorry your family is going through such a difficult time