Any experiences with uterine hyperplasia?

[TrickyBob]

I had a d&c with hysteroscopy and a polyp removed in early September because I had been spotting/light bleeding for 7 months. For 2 weeks it cleared up after and I got a break from bleeding. The pathology report came back with complex hyperplasia with atypia - no pre-cancerous cells at this time.

Doc put me on provera and I started bleeding, heavily. I have been bleeding for 30 days, passing large clots several times an hour, and having to stand up and cross my legs when I sneeze less I want to bloody my pants.

So it hasn't been fun. I am tired. I am tired of bleeding. I have been in constant contact with my gynecologist and it has been stated that at this time, this is the only medication I can be on and we wait for results.

I go back in 2 months for a biopsy.

At almost 28, I feel like my baby window is being slammed shut and Dr. Google tells me that if the body doesn't respond by 9 months on progesterone that it is considered a medical failure and a hysterectomy is recommended. (For complex and especially complex with atypia because of the 20 to 50% chance of cancer)

Guys...I am not ready for that. I am not ready for these options. I am frankly just trying to hold it together. I know I have 8 months to hope my body responds but these are not the things I thought I would be dealing with.

All that to say...has anyone dealt with this?

[readyin07]

I have no experience but didn't want to read without responding. Sending you hugs and prayers it resolves. It sounds very stressful.

[thatgirl2478]

i'm so sorry you're going through this. I don't have any advice for you though.

[toutsuite]

So I haven’t experienced hyperplasia but I did have to go through the emotional rollercoaster of possibly needing a hysterectomy without a viable baby during one of my pregnancies due to placenta accretta. It was a long nine months. Luckily I didn’t end up needing one but to this day that anxiety, anxiousness, anger, and hopelessness I felt about having the decision to have children taken away from me at a young(ish) age is still raw. I can totally commiserate and went through a period of mourning the loss of future children to mentally prepare myself for the worst case scenario.. It was truly terrible. I’m so so sorry you are going through this and am always here to talk things through since it is an emotionally draining experience. I do hope it doesn’t come to worst case scenario for you and pray that you will feel better, with all bleeding ending soon,

[lilac05]

I don't have any experience of advice (other than not believing Dr. Google too much), but I'm so sorry you're having to go through this.

[bluelily]

I have PCOS, and if I'm not on birth control, my periods become constant and incredibly heavy, as you describe. I've also had a hysteroscopy, D&C, and polypectomy.

For *me*, the solution has been to stay on hormonal birth control when I'm not actively trying to conceive. I use one called Generess FE, which makes my periods SO much less awful: three days of light to medium flow, with no breakthrough bleeding. It keeps endometrial growth much lower than any other hormonal b/c I've ever tried.

[megstoo]

I have PCOS like the previous poster and I can go an entire month (or 2) of light spoting/period and then have nothing for a couple months. The only thing that worked for me was birth control when I was younger. Now I'm on metformin and that's helped a lot. I've been able to go an entire month now without bleeding. Also don't trust what Dr. Google says. I was on provera for a couple months and when I was on that it did lead to heavy bleeding for me as well. I know it's hard not to keep reading but what about going for a 2nd opinion?

[TrickyBob]

Thank you ladies. I was contemplating a 2nd opinion as well.

He did diagnose me with PCOS and I do take metformin. I retake the bloodwork in November for that.

The reason I didn't choose birth control is every time I have taken it in the past, I have bled the entire time and I explained that and we ended up on the provera choice.

I try not to google too much because I know everyones experience is different and every doc does things differently. But well...we know how that goes and it nagging at you.

I think I will research some more gyns and get a 2nd opinion

[bluelily]

Provera makes my body go crazy.

Definitely try to find a PCOS-savvy doc for your second opinion. I googled "uterine hyperplasia and PCOS" and found stuff I didn't know. I'd never heard of hyperplasia before, but it sure fits (symptomatically) with some of my previous experiences.