I can't wink my left eye. I can wink my right eye fine, and obviously I can blink, but I can't just close my left eye, even if I hold my right one open.
Same except I’m the opposite. I can’t wink my right eye. My kids find it hilarious .
I have it, too. Blue-gray-green eyes with a gold halo around my pupil. I also have a bone that sticks up on the top of my feet. I thought everyone had it and you could just see mine because my feet were so skinny, but I went to a podiatrist for plantar fasciitis and he said "Wow! I've seen a couple of these deformities, but never this severe!" Thanks.
Does it change more with age? Mine are brown in the middle with some greenish around the edges and i thought maybe it was part of getting older.
I don’t know if it happens with age but my eye colour and hair colour changed drastically with puberty (went from green/hazel to brown with one bright green streak in each eye, and from white blonde to very dark almost brown blonde quite quickly). Maybe menopause will bring more fun!
Post by klingklang77 on Jul 31, 2020 0:54:39 GMT -5
I used to have a big mole on my belly button, which was an outie. Then the mole exploded when I was 16 and I had to have it taken off. I now have an innie.
Not sure if this is weird, but one side of hips is significantly higher than the other. This is from my scoliosis.
I have a chiari malformation. It's a fancy word for when brain tissue extends out of your skull down toward your spine. It's mild and mostly just causes headaches. My son ended up with it, too.
My 16 y/o dd has chiari. Thank goodness she doesn't need surgery but she will go through headachey stages. How old is your son? We just found out less than 2 years ago that my dd has it. She has another genetic disorder that she was getting an MRI for because it causes tumors so when she had constant headaches we were really worried.
I have this weird thing on my left thigh. I don't think it's a mole because there's no pigmentation, but it's the size of a small mole. It's hard and deep, almost like a cyst. Every couple of weeks I scratch it off (I'm a bad picker) and it bleeds and gets flat. Then it grows back.
I had started thinking maybe it's a wart, but then there was that wart thread on here a bit ago, and nothing people were saying about warts matched this thing.
I should Google it... but it hasn't bothered me enough yet.
Does it change more with age? Mine are brown in the middle with some greenish around the edges and i thought maybe it was part of getting older.
I don’t know if it happens with age but my eye colour and hair colour changed drastically with puberty (went from green/hazel to brown with one bright green streak in each eye, and from white blonde to very dark almost brown blonde quite quickly). Maybe menopause will bring more fun!
Oh, it brings fun alright! My hair got several shades darker--just at the time I started getting gray hairs, so they stand out more.
I have a chiari malformation. It's a fancy word for when brain tissue extends out of your skull down toward your spine. It's mild and mostly just causes headaches. My son ended up with it, too.
My 16 y/o dd has chiari. Thank goodness she doesn't need surgery but she will go through headachey stages. How old is your son? We just found out less than 2 years ago that my dd has it. She has another genetic disorder that she was getting an MRI for because it causes tumors so when she had constant headaches we were really worried.
He was five when it was discovered during an MRI for something else. He's twelve now and has been pretty unaffected by it thus far.
Post by basilosaurus on Jul 31, 2020 7:40:16 GMT -5
Everyone in my family has a birthmark at the nape of the neck. Not weird exactly. Kind of cool and how in there world is that genetic?!
My toes basically don't curl. Even my aunt mocked me for having ape feet. Nearly every pedicure including ones not in English comment on my freakishly small toes and nails. Gramma (dad's side) and I could share shoes, but I'm a half foot taller. I found shoes that were my mom's and they fit, so I get it from both sides. I don't find it weird but plenty have commented on it.
I also have central heterochromia. My dad has it too and so does my DS1. Technically, the outer color is the "true" color. My eyes are easier to identify because they are blue outer/green inner. But my dad and DS1's are way harder to pick a color. From a distance, DS1's eyes look brownish, but that's technically just the inner color and the outer part is....hazel? Interestingly, DS2 has sectoral heterochromia, his eyes are brown but one has a small section of blue.
I have it, too. Blue-gray-green eyes with a gold halo around my pupil. I also have a bone that sticks up on the top of my feet. I thought everyone had it and you could just see mine because my feet were so skinny, but I went to a podiatrist for plantar fasciitis and he said "Wow! I've seen a couple of these deformities, but never this severe!" Thanks.
Huh. Last year when I read this thread, I learned I have an accessory toenail.
This year, when I revisited it, I learned I have central heterochromia. I can’t wait to tell H. I have green eyes and he loves what he calls “the orange burst” I have around my pupils. I didn’t know there was a name for it!
I have it, too. Blue-gray-green eyes with a gold halo around my pupil. I also have a bone that sticks up on the top of my feet. I thought everyone had it and you could just see mine because my feet were so skinny, but I went to a podiatrist for plantar fasciitis and he said "Wow! I've seen a couple of these deformities, but never this severe!" Thanks.
Huh. Last year when I read this thread, I learned I have an accessory toenail.
This year, when I revisited it, I learned I have central heterochromia. I can’t wait to tell H. I have green eyes and he loves what he calls “the orange burst” I have around my pupils. I didn’t know there was a name for it!
I can't wink my left eye. I can wink my right eye fine, and obviously I can blink, but I can't just close my left eye, even if I hold my right one open.
I can't wink with my left eye either!
Also I miss 1 tooth in my bottom jaw. It was never there. No one notices this but the dentist.
I’ve had 3 surgeries for my pilonidal cyst. An excision, marsupialization, and a cleft lift last year. It SUCKS. Basically my butt crack was too deep, the final surgery took away most of my crack so there is no where for the cyst to reappear. So now I am crackless hahaha.
I also have a giant birthmark on the back of one of my legs and a mirror image of it on my upper belly that is lighter and sideways. Blame my Mom for smoking during pregnancy.
I used to have a big mole on my belly button, which was an outie. Then the mole exploded when I was 16 and I had to have it taken off. I now have an innie.
Not sure if this is weird, but one side of hips is significantly higher than the other. This is from my scoliosis.
I have it, too. Blue-gray-green eyes with a gold halo around my pupil. I also have a bone that sticks up on the top of my feet. I thought everyone had it and you could just see mine because my feet were so skinny, but I went to a podiatrist for plantar fasciitis and he said "Wow! I've seen a couple of these deformities, but never this severe!" Thanks.
Huh. Last year when I read this thread, I learned I have an accessory toenail.
This year, when I revisited it, I learned I have central heterochromia. I can’t wait to tell H. I have green eyes and he loves what he calls “the orange burst” I have around my pupils. I didn’t know there was a name for it!
I have this, too, as well as the pinkie toe accessory nail. LOL
My eyes are a dark navy/blue around the circumference, green in the outer part of my pupil, and hazel/gold in the middle around my pupil. They get super green if I wear a green shirt.
I have this weird thing on my left thigh. I don't think it's a mole because there's no pigmentation, but it's the size of a small mole. It's hard and deep, almost like a cyst. Every couple of weeks I scratch it off (I'm a bad picker) and it bleeds and gets flat. Then it grows back.
I had started thinking maybe it's a wart, but then there was that wart thread on here a bit ago, and nothing people were saying about warts matched this thing.
I should Google it... but it hasn't bothered me enough yet.
I’ve had actinic keratosis that I could pick off and they would come back. I wouldn’t describe them as hard and deep though.
My derm cut one of those off and sent it for a biopsy last year. Then I had to go back a couple weeks later to freeze off more of it. Apparently, they can turn into squamous cell carcinoma, so they like to take them off. I felt kinda bad for the PA when she called me to tell me that is has about a 1% chance of turning into cancer, I started laughing. This was about 3 weeks after I got diagnoses with my lymphoma relapse, with had less that 1% chance of happening.
You are supposed to get it from one of your parents but both my parents tested negative.
I'm the first one in my family to have it.
Its more horribly weird than a cool 6th toenail or third nipple but still I guess interesting.
😔 that sucks! It is to some particular types or does that mean any cancer in general. I’m sure it’s doubly difficult to be dealing with this during a pandemic.
Lynch syndrome. It is associated with higher risk for colon cancer, endomentrial cancer and some others (pancreatic, stomach) There are 5 genes and each one has its own set of risk factors. Some are high (like one has a really high risk of colon cancer) and some are only slightly more elevated than the general population.
Basically its important to know though bc we need to get preventative screenings, have knowledgeable doctors etc. We do get cool things like colonscopies starting at 30 instead of 50 and we have to have them annually instead of every 5-10 years🥴.
So..i guess, yes! When all the "elective" procedures were stopped, that had a big and true impact on people who have this issue. I know a lot of people who had to put off those vital procedures!
I wish I could say a more fun or funny one haha.
I know someone who has a big family. Like 6 kids. They all have 11 toes.
I have this weird thing on my left thigh. I don't think it's a mole because there's no pigmentation, but it's the size of a small mole. It's hard and deep, almost like a cyst. Every couple of weeks I scratch it off (I'm a bad picker) and it bleeds and gets flat. Then it grows back.
I had started thinking maybe it's a wart, but then there was that wart thread on here a bit ago, and nothing people were saying about warts matched this thing.
I should Google it... but it hasn't bothered me enough yet.
I’ve had actinic keratosis that I could pick off and they would come back. I wouldn’t describe them as hard and deep though.
I have this too! I’m middle eastern but honestly I don’t know much about it. Like do I take iron? Anything special I can do to not feel so tired all the time? I went to a blood specialist but she didn’t have much to say as I’m my area doesn’t have many with my condition. Any tips for me? Or reading material? Thanks!
Not Circa, but my understanding of it is that your just body doesn’t absorb iron so supplements don’t help. My grandma has it and a few aunts. I’m surprised it’s so rare I always thought it was kinda common. My iron is always on the lower side, but not crazy low. I’ve never been able to donate blood anyways.
I have one pinky toenail that grows upwards and curls in around itself, so it’s just like a nub that’s difficult to put nail polish on. It’s been that way my whole life, even fallen off after an injury and grew back the same.
I can stretch my toes really far apart and I can bend the last joint in my fingertips while keeping the other joints straight.
I have a genetic mutation that puts me at a higher risk of cancer. The most interesting thing about that is that we traced it far back in my paternal bloodline to distant cousins in another country.
I don’t know if it’s weird exactly but I have thalassemia minor, which is a blood condition that is somewhat rare in many parts of the US but common in Italians. In my case I’m just always anemic and I need to have blood standing by for surgery and we needed genetic counseling before having DS. I guess it must look pretty weird on a CBC if you don’t know because when I lived in a city without much of a Mediterranean population doctors would freak out if I forgot to tell them.
ETA: one wild thing I forgot is there is a body of thought that thalassemia protects from malaria. I remember when I first read that thinking all genetic mutations should come with that kind of bonus. Like, sorry, you are going to be run down for life but let me tell you about your immunity to a deadly disease!
Other than that, I do have really large bony growths in my mouth near my tongue - Torus mandibularis. I didn’t realize everyone didn’t have them until my 20s. I also have them in a few other places in my mouth but the ones on the bottom are most noticeable.
I have this too! I’m middle eastern but honestly I don’t know much about it. Like do I take iron? Anything special I can do to not feel so tired all the time? I went to a blood specialist but she didn’t have much to say as I’m my area doesn’t have many with my condition. Any tips for me? Or reading material? Thanks!
Just seeing this but no, don't take iron. Actually, that can hurt you! Unless you have the more severe type (you would know) there isn't anything to be done. The only treatment I'm aware of is transfusions.
I have this too! I’m middle eastern but honestly I don’t know much about it. Like do I take iron? Anything special I can do to not feel so tired all the time? I went to a blood specialist but she didn’t have much to say as I’m my area doesn’t have many with my condition. Any tips for me? Or reading material? Thanks!
Not Circa, but my understanding of it is that your just body doesn’t absorb iron so supplements don’t help. My grandma has it and a few aunts. I’m surprised it’s so rare I always thought it was kinda common. My iron is always on the lower side, but not crazy low. I’ve never been able to donate blood anyways.
Are you Italian or Greek? It isn't unusual at all for Mediterranean ethnicities - it's also called Mediterranean trait. And it's hereditary. My father and brother have it. DS does not. I had to have genetic counseling when I got pregnant but DH doesn't have it so the more severe version wasn't possible, as I understood it. You have to inherit from both parents for that.
I used to have a big mole on my belly button, which was an outie. Then the mole exploded when I was 16 and I had to have it taken off. I now have an innie.
Not sure if this is weird, but one side of hips is significantly higher than the other. This is from my scoliosis.
LOL, sorry 🤣. Yeah it was about the size of a pencil eraser when I was 16. It was a horror growing up. At sleepovers and pool parties I used to get asked what’s wrong with my belly button. One day I woke up and it cracked open. Maybe exploded was the wrong word, but it felt like that when I was 16. Brought to the doctor and had it taken off immediately. Check your moles, kids!
I also have central heterochromia. My dad has it too and so does my DS1. Technically, the outer color is the "true" color. My eyes are easier to identify because they are blue outer/green inner. But my dad and DS1's are way harder to pick a color. From a distance, DS1's eyes look brownish, but that's technically just the inner color and the outer part is....hazel? Interestingly, DS2 has sectoral heterochromia, his eyes are brown but one has a small section of blue.
My dad also has it. His are dark steely blue outside and brown inside. Mine are brown I side, but kinda of a greeny-bluey colour- aqua maybe? My daughter doesn’t have it.
Interesting! I have this but didn't even realize it had a name. My eyes have been a different color on all of my licenses, lol. They have a dark blue ring, green on the inside with that gold coloring around the Iris.
I guess my thing are my two rods on my spine. They go from the base of my neck to my lower back so I can't bend my whole back or twist. I also have a half of hip. So that was fucking fun, lol.
I have it, too. Blue-gray-green eyes with a gold halo around my pupil. I also have a bone that sticks up on the top of my feet. I thought everyone had it and you could just see mine because my feet were so skinny, but I went to a podiatrist for plantar fasciitis and he said "Wow! I've seen a couple of these deformities, but never this severe!" Thanks.
Huh. Last year when I read this thread, I learned I have an accessory toenail.
This year, when I revisited it, I learned I have central heterochromia. I can’t wait to tell H. I have green eyes and he loves what he calls “the orange burst” I have around my pupils. I didn’t know there was a name for it!
Me too and I didn't even know it was a thing, lol.
I have a brown stripe in one of my eyes (they are blue). It's like a slice of pie. One of my cousins has the same thing, but it's more like a third of the iris.
I have a black one in one of my (brown) eyes. It looks like the pupil leaked.