DD relapsed into her kidney disease...

rdgove
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DD relapsed into her kidney disease... Dec 14, 2012 20:37:40 GMT -5

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Post by rdgove on Dec 14, 2012 20:37:40 GMT -5

Ugh. This morning when I went to get DD up for the day, I saw her face and I knew. Her eyelids were all swollen (this is the classic symptom of Nephrotic Syndrome). My stomach instantly hurt.

I brought her downstairs with the baby, put him in his exersaucer, and got her to pee in a cup for me (took 20 min, but I was able to get her to do it with some bribery). I dipped her urine: dark green. That means over 2000+++ protein. Fuck.

Now we have to start her on high-dose steroids again for another 3 months and monitor her closely for kidney damage or infection. I hate the side effects of the prednisone...it's so hard on her.

This is a really bad sign for her. The first relapse usually signals how the body will react to the disease and the fact that she relapsed only 7 weeks after diagnosis is not good. It means she will probably relapse often and it will be harder on her body each time.

*sigh* This and the horrific shooting today have me feeling like the world hates loving parents and children.

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pierogigirl Senior Member Posts: 5,409 Likes: 3,338	DD relapsed into her kidney disease... Dec 14, 2012 20:41:53 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by pierogigirl on Dec 14, 2012 20:41:53 GMT -5 ({) (}) I'm sorry.
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minzy Senior Member Posts: 5,212 Likes: 5,378	DD relapsed into her kidney disease... Dec 14, 2012 20:42:38 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by minzy on Dec 14, 2012 20:42:38 GMT -5 Oh, poor thing! I hope it isn't as bad as you think.
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bunch Senior Member Posts: 9,202 Likes: 4,754	DD relapsed into her kidney disease... Dec 14, 2012 20:43:36 GMT -5 via the ProBoards App Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by bunch on Dec 14, 2012 20:43:36 GMT -5 I am so sorry. Thinking of you.
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karinothing Elder Posts: 28,249 Likes: 21,791	DD relapsed into her kidney disease... Dec 14, 2012 20:44:11 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by karinothing on Dec 14, 2012 20:44:11 GMT -5 I am so sorry. I hope she recovers quickly this time.
	Back to Top DS1: 10/24/2011 DS2: 07/29/2015

rootbeerfloat Senior Member Posts: 9,173 Likes: 10,350	DD relapsed into her kidney disease... Dec 14, 2012 20:45:07 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by rootbeerfloat on Dec 14, 2012 20:45:07 GMT -5 I'm sorry.
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luvmagoldn Full Member My twins are seven. My "baby" is five! Posts: 2,583 Likes: 477	DD relapsed into her kidney disease... Dec 14, 2012 20:46:17 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by luvmagoldn on Dec 14, 2012 20:46:17 GMT -5 I'm so sorry...
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sewpinkgal Full Member Posts: 3,975 Likes: 2,035	DD relapsed into her kidney disease... Dec 14, 2012 20:47:49 GMT -5 via the ProBoards App Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by sewpinkgal on Dec 14, 2012 20:47:49 GMT -5 I'm so so sorry
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nonsenseabound Full Member Posts: 1,463 Likes: 303	DD relapsed into her kidney disease... Dec 14, 2012 20:58:20 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by nonsenseabound on Dec 14, 2012 20:58:20 GMT -5 I'm so sorry. Hugs to you.
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ijack Elder Posts: 16,121 Likes: 8,168	DD relapsed into her kidney disease... Dec 14, 2012 20:59:01 GMT -5 via the ProBoards App Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by ijack on Dec 14, 2012 20:59:01 GMT -5 I'm so sorry
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satama Full Member Posts: 1,228 Likes: 1	DD relapsed into her kidney disease... Dec 14, 2012 21:03:07 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by satama on Dec 14, 2012 21:03:07 GMT -5 I am so sorry.
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froggy76 Senior Member Posts: 5,072 Likes: 2,813	DD relapsed into her kidney disease... Dec 14, 2012 21:08:28 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by froggy76 on Dec 14, 2012 21:08:28 GMT -5 I am so sorry!
	Back to Top DD 11/14/11 DS 12/14/16

Ashley&Scott Elder Posts: 15,702 Likes: 6,630	DD relapsed into her kidney disease... Dec 14, 2012 21:11:01 GMT -5 via the ProBoards App Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Ashley&Scott on Dec 14, 2012 21:11:01 GMT -5 I am so sorry, sending positive thoughts your way!
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litasail Full Member Posts: 2,776 Likes: 1,331	DD relapsed into her kidney disease... Dec 14, 2012 21:12:32 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by litasail on Dec 14, 2012 21:12:32 GMT -5 I'm so sorry, I hope she's ok.
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hannamaren Full Member Posts: 3,479 Likes: 66	DD relapsed into her kidney disease... Dec 14, 2012 21:17:23 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by hannamaren on Dec 14, 2012 21:17:23 GMT -5 Poor dear. Is there any possibility of preventative treatment as she gets older? This is why I cannot believe in God. Man sucks and shoots people but God sucks for giving children any pain
	Back to Top Baby L was born Nov 2.2011

rdgove
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DD relapsed into her kidney disease... Dec 14, 2012 21:20:07 GMT -5

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Post by rdgove on Dec 14, 2012 21:20:07 GMT -5

Dec 14, 2012 21:17:23 GMT -5 hannamaren said:

Poor dear.
Is there any possibility of preventative treatment as she gets older?
This is why I cannot believe in God. Man sucks and shoots people but God sucks for giving children any pain

No prevention. The disease is ideological, which means they have no idea what causes it or how it develops in the body.

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cherry1111 Full Member Posts: 4,020 Likes: 3,731	DD relapsed into her kidney disease... Dec 14, 2012 21:23:16 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by cherry1111 on Dec 14, 2012 21:23:16 GMT -5 Oh man, I am so sorry.
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fbf2006 Full Member Posts: 1,920 Likes: 308	DD relapsed into her kidney disease... Dec 14, 2012 21:59:29 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by fbf2006 on Dec 14, 2012 21:59:29 GMT -5 I am so sorry
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schrodinger Full Member Posts: 2,039 Likes: 1,152	DD relapsed into her kidney disease... Dec 14, 2012 22:06:54 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by schrodinger on Dec 14, 2012 22:06:54 GMT -5 Hugs to you and your DD, I hope she feels better soon.
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Deleted Posts: 0	DD relapsed into her kidney disease... Dec 14, 2012 22:07:37 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Deleted on Dec 14, 2012 22:07:37 GMT -5 I am so sorry, rdgove. She is so little to be having to endure all that! Hugs to you all.
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KaraOrNot Elder Posts: 10,667 Likes: 4,633	DD relapsed into her kidney disease... Dec 14, 2012 22:10:48 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by KaraOrNot on Dec 14, 2012 22:10:48 GMT -5 I am so sorry.
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mollybrown Full Member Posts: 2,795 Likes: 668	DD relapsed into her kidney disease... Dec 14, 2012 22:40:58 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by mollybrown on Dec 14, 2012 22:40:58 GMT -5 Sending good wishes to your little girl.
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kimibrighteyes Junior Member Posts: 907 Likes: 500	DD relapsed into her kidney disease... Dec 14, 2012 22:48:33 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by kimibrighteyes on Dec 14, 2012 22:48:33 GMT -5 I am really sorry. I can't imagine how difficult this must be for you. I hope that they find better treatments and a cure soon
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Deleted Posts: 0	DD relapsed into her kidney disease... Dec 15, 2012 1:48:02 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Deleted on Dec 15, 2012 1:48:02 GMT -5 I'm so sorry to hear this. I hope she gets better soon.
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mellymel Senior Member Posts: 7,564 Likes: 4,436	DD relapsed into her kidney disease... Dec 15, 2012 6:38:31 GMT -5 via the ProBoards App Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by mellymel on Dec 15, 2012 6:38:31 GMT -5 I am so sorry, this sounds so difficult. Thinking of you and your DD. I hope she recovers soon.
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yellowbrkrd Senior Member Posts: 6,719 Likes: 4,410	DD relapsed into her kidney disease... Dec 15, 2012 7:56:58 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by yellowbrkrd on Dec 15, 2012 7:56:58 GMT -5 I'm so sorry.
	Back to Top M - 6/8/13 S - 2/14/16

Bumblebee Full Member Posts: 1,055 Likes: 647	DD relapsed into her kidney disease... Dec 15, 2012 8:45:44 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Bumblebee on Dec 15, 2012 8:45:44 GMT -5 I'm so sorry. Thinking of you and Isabella.
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Deleted Posts: 0	DD relapsed into her kidney disease... Dec 15, 2012 9:01:08 GMT -5 via the ProBoards App Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Deleted on Dec 15, 2012 9:01:08 GMT -5 I'm sorry to hear this.
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Saudade Senior Member Posts: 5,258 Likes: 5,080	DD relapsed into her kidney disease... Dec 15, 2012 9:24:18 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Saudade on Dec 15, 2012 9:24:18 GMT -5 I am so sorry.
	Back to Top DS 2/2012 DS 5/2014 DC 8/2016

Deleted Posts: 0	DD relapsed into her kidney disease... Dec 15, 2012 9:25:32 GMT -5 via the ProBoards App Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Deleted on Dec 15, 2012 9:25:32 GMT -5 Poor thing. Hang in there momma.
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DD relapsed into her kidney disease...

Post by rdgove on Dec 14, 2012 20:37:40 GMT -5

Post by pierogigirl on Dec 14, 2012 20:41:53 GMT -5

Post by minzy on Dec 14, 2012 20:42:38 GMT -5

Post by bunch on Dec 14, 2012 20:43:36 GMT -5

Post by karinothing on Dec 14, 2012 20:44:11 GMT -5

Post by rootbeerfloat on Dec 14, 2012 20:45:07 GMT -5

Post by luvmagoldn on Dec 14, 2012 20:46:17 GMT -5

Post by sewpinkgal on Dec 14, 2012 20:47:49 GMT -5

Post by nonsenseabound on Dec 14, 2012 20:58:20 GMT -5

Post by ijack on Dec 14, 2012 20:59:01 GMT -5

Post by satama on Dec 14, 2012 21:03:07 GMT -5

Post by froggy76 on Dec 14, 2012 21:08:28 GMT -5

Post by Ashley&Scott on Dec 14, 2012 21:11:01 GMT -5

Post by litasail on Dec 14, 2012 21:12:32 GMT -5

Post by hannamaren on Dec 14, 2012 21:17:23 GMT -5

Post by rdgove on Dec 14, 2012 21:20:07 GMT -5

Post by cherry1111 on Dec 14, 2012 21:23:16 GMT -5

Post by fbf2006 on Dec 14, 2012 21:59:29 GMT -5

Post by schrodinger on Dec 14, 2012 22:06:54 GMT -5

Post by Deleted on Dec 14, 2012 22:07:37 GMT -5

Post by KaraOrNot on Dec 14, 2012 22:10:48 GMT -5

Post by mollybrown on Dec 14, 2012 22:40:58 GMT -5

Post by kimibrighteyes on Dec 14, 2012 22:48:33 GMT -5

Post by Deleted on Dec 15, 2012 1:48:02 GMT -5

Post by mellymel on Dec 15, 2012 6:38:31 GMT -5

Post by yellowbrkrd on Dec 15, 2012 7:56:58 GMT -5

Post by Bumblebee on Dec 15, 2012 8:45:44 GMT -5

Post by Deleted on Dec 15, 2012 9:01:08 GMT -5

Post by Saudade on Dec 15, 2012 9:24:18 GMT -5

Post by Deleted on Dec 15, 2012 9:25:32 GMT -5