Ugh. This morning when I went to get DD up for the day, I saw her face and I knew. Her eyelids were all swollen (this is the classic symptom of Nephrotic Syndrome). My stomach instantly hurt.
I brought her downstairs with the baby, put him in his exersaucer, and got her to pee in a cup for me (took 20 min, but I was able to get her to do it with some bribery). I dipped her urine: dark green. That means over 2000+++ protein. Fuck.
Now we have to start her on high-dose steroids again for another 3 months and monitor her closely for kidney damage or infection. I hate the side effects of the prednisone...it's so hard on her.
This is a really bad sign for her. The first relapse usually signals how the body will react to the disease and the fact that she relapsed only 7 weeks after diagnosis is not good. It means she will probably relapse often and it will be harder on her body each time.
*sigh* This and the horrific shooting today have me feeling like the world hates loving parents and children.
Post by hannamaren on Dec 14, 2012 21:17:23 GMT -5
Poor dear. Is there any possibility of preventative treatment as she gets older? This is why I cannot believe in God. Man sucks and shoots people but God sucks for giving children any pain
Poor dear. Is there any possibility of preventative treatment as she gets older? This is why I cannot believe in God. Man sucks and shoots people but God sucks for giving children any pain
No prevention. The disease is ideological, which means they have no idea what causes it or how it develops in the body.