DD's lymph nodes are "reactive" which means they flared up because she was fighting something off. If they get bigger within the next month we need to take her back in.
There is a mosquito floating around my office. The damned crack in my window is bigger and they have not said if they'll reseal it. I am very close to just bringing in some silicone from home and doing it myself. This is ridiculous.
Post by dixienormous on May 22, 2013 9:02:27 GMT -5
Cuddly - good luck with that! Does she still have her tonsils and adnoids?
The humidity made the heat yesterday 1903428094820 times worse. And yet it's supposed to be in the 60s tomorrow. So the question is: Do we install our AC now or not? I want to be able to keep my windows open as long as possible. GRRRRRRRR Stupid northeast!!
Had a good conference call with H and all of PF's therapists. We have monthly meetings so we all are on the same page. They understand how frustrated we are and how we don't see the progress that they do. PF's physical therapist feels that she's on the cusp of many things. That she has the muscular ability now we need to help her develop the drive to want to move around. Her speech/feeding therapist is going to meet with us separately and show us stuff for us to do at home. And they want PF's babysitter to go and see sessions so she knows what to do at home in the afternoons!
Also we signed PF up for a gymboree movement class and then at the end of June she'll start a music class.
I'm tired but super excited about several things going on right now.
Dixie - Yep, she still has both. The doctor said everything was pointing toward it being a benign thing as there are many of these little lymph nodes rather than just one flaring up. They're also rubbery which is another good sign. If it gets bigger or turns hard, then we need to bring her back in and they'll have to take it out because it is infected and that kind of infection does not respond to antibiotics.
I am glad you had a great call with PF's therapy team!
Post by dixienormous on May 22, 2013 9:11:50 GMT -5
Cuddly - I asked about the tonsils because when I still had mine (removed when I was 17), my lymphnodes were constantly inflamed and painful. I hope that this resolves without any medical intervention.
Us too, Muddled. And we're ground floor facing a major street so we get all kinds of crazy noise.
Only one floor up, but lots of traffic- cars and people. I just listened to a woman yell into her phone from half a black away about how she was down the fucking block and asshole better get there fucking now.
Only one floor up, but lots of traffic- cars and people. I just listened to a woman yell into her phone from half a black away about how she was down the fucking block and asshole better get there fucking now.
It is around 50 degrees outside right now. And cloudy/rainy and will be for another few days.
Also, the campsight I stayed in last weekend completely flooded out only hours after we left. It was totally evacuated including the main office. Oof.
My dad came down to the basement last night with a look on his face and asked if I wanted to watch taken with him (liam neeson, kidnapped daughter, lots of kicking ass). So we started watching it, and about a half-hour in he looked at me and said "this is how I worried about you when you were in california". I said except that I'm not 18... and he said dads never stop worrying and thinking about their kids. And I realized the movie was his way of telling me how much he loves me and wants me happy and safe. wahhh. I'm a lucky person.
Post by partiallysunny on May 22, 2013 9:31:50 GMT -5
cuddlyevil Good luck to your DD. Hopefully her nodes don't get bigger.
dixienormous We are also wondering about the AC. It's so humid here (which is really odd. Usually it's rainy with thunderstorms in May, not hot and humid). It's suppose to cool down today and tomorrow, so we are in "wait and see" mode.
I'm glad you got some kind of reassurance with PF's therapists.
Vacation in 3 days! I can't wait. I haven't seen my two best friends in years, 3 1/2 years for one, and 7 for the other. I'm like giddy, crying, geeking out excited.
I am wearing bright red pants today.
I just watched a video about that kid that died of cancer that wrote that song Clouds and now I'm a post-crying mess at work. Why did I watch that here?
Dixie, glad you had a good call with all the therapists and have some things you can do at home. This sounds, like kind of an exciting time, where you'll be able to hopefully see changes start occurring in a bigger way.
Cuddly, I hope the lymph nodes are nothing and that she doesn't need any surgical intervention.
Gault, that was seriously sweet of your dad. I teared up a little at that story too.
Motzie, where are you going on vacation? It's great that you'll be able to see your friends again!
Post by starrieskies on May 22, 2013 10:32:52 GMT -5
gault, I think I love your dad! He sounds amazing!
dixienormous, I'm so happy to hear that you have so many wonderful things lined up for you and PF! She's going to have so much fun she won't even realize she's learning, and you're going to see so much progress! I just KNOW it!
2 more bedtimes till I finally get to unplug from 3/4 of my life. I'm nervous and excited at the same time. I have this icky, nervous feeling that there will be an uncomfortable situation with H while we're at the cabin, and I'm trying to prepare myself for it. But there's always the chance that it will go smoothly. So, I'm cautiously optimistic.
Also, this is going to be the first time DS has slept in a tent. I'm hoping that he will wear himself out during the day playing with his friends and just pass out when he lays down, but I'm afraid I may have a difficult time with him not wanting to sleep. Any tips?
We don't have another dog lined up yet and I'm afraid I'm going to have the sads all weekend.
As someone in my rescue told me, there is always another dog.
We get an email every day about new dogs coming into the program, adopted dogs or just updated pictures. They updated yesterday with a cutie coming into the program, but no word on it through the list serve yet.