Ehlers Danlos Syndrome people

[MWOS]

kirra

And there's a lurker in the crazy flameful thread too

Just wanted to (carefully) wave and say hello and see if there's anyone else out there lurking with this disorder

[textbookcase]

I am extremely hypermobile with suspected eds but haven't been tested.

[MWOS]

Are you having a hard time finding a doctor to do the test? I know doctors with EDS experience are few and far between. I would encourage you to get tested if it's suspected. EDS goes way beyond your joints and you need to have your heart monitored (as well as pregnancies) because of the collagen issues.

[kirra]

Hi. I just saw the notification.

textbookcase, if EDS is suspected, it might be a good idea to look into it. It was suggested to me a year ago, and confirmed last week. It's changing how we deal with several medical issues. It definitely isn't just joints.