Since my last post we have talked with our pediatrician and consulted with a neuropsychologist about the possibility of seizures and to go over his medication (not an appointment including DS or an MRI, just a discussion to start). Neither doc thought that seizure disorder was likely for him, and agreed that Abilify is a good med to stick with as we experiment with other things. We did a trial with Adderal that did not go well, and will be trying Straterra next.
The other thing that happened which I am ridiculously excited about is that we talked with Child Find and met with the charter/STEM school psychologist, who was more than willing to meet with us face to face over the summer. We put together a security plan to handle the elopement, went through the behavior and toileting issues, and talked about data gathering and actions before we put a formal IEP in place. The main thing I walked away with is a real sense of encouragement that this school is the right place for him and will not drop him like a bad habit after a few months. I feel assured that unless he tried to burn the place down we shouldn't worry about disenrollement and that she will be very involved with him and other faculty to make sure that he gets all of the support he needs.
DS still has his good and bad days, but the soiling has decreased dramatically. I have no idea why because we didn't do much of anything specific to address it but I'm not really questioning it either. Maybe hearing from awesome strangers decreased my tension and helped decrease his, too.
Anyway, I'm finally more excited than scared about Kindergarten, and you all helped with that tremendously! So THANK YOU.
I hope the year goes well. A good team can do a lot, even without a formal eval and IEP. DS transferred from private to public in 4th without an IEP. We put an informal plan in place based on what I thought he'd need and it went really well.
Post by onomatopoeia on Jul 19, 2013 13:11:24 GMT -5
I just read your original post from your link, and I'm glad things are going well for you and moving ahead. We dealt with encopresis for a long time. Your story sounds a LOT like mine, my son just turned 7. and I will say with an invested school system (most of the staff, anyway), good home-school communication, and a lot of structure and routine, my son is a different kid now than when he was 3-4-5. I think he just grew into his emotions too, if that makes sense. He's still on a behavioral plan, and he still does stuff that has us shake our heads and mystifies his counselors, but for the most part he's doing very well. Good luck!
I'm so glad things are working out for your son. Hopefully, next year will be better for him, with protocols in place, and it's something he grows out of soon.